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Re: FW: Latest Endo Visit

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, I don't think it's pushy at all. I've noticed that when I go in for

labs, if I do it locally, then it's forwarded to my dr's office, he is

notorious for running FT4 and only running T3. Last time I talked to them,

I found out (not sure if this is true or not) but was told that the FT3

takes longer to get the results back? But, I also intend to talk to him

about it, as I think the T3 is a little unnecessary from all I read. So if

that's the case, then he could just run TSH, and FT4. That is definately

going to be our next conversation when I see him in person. I'm anxious to

hear his explanation, but I plan on being well prepared with notes in hand

cuz I forget by the time I get into see him. lol

Sandy~Houston

Original Message:

-----------------

From: L. O'Hearn lisa-ohearn@...

Date: Wed, 17 Sep 2003 09:39:51 -0400

To: graves_support

Subject: FW: Latest Endo Visit

<html><body>

<tt>

Hi everyone,<BR>

<BR>

Went to the endo yesterday and now I am waiting for my new lab results.<BR>

She said I look really good and seem to be doing very well. She's<BR>

concerned about my weight gain of 30 pounds in a year but I warned her<BR>

last year that this is what happens to me on ATDs. She didn't run a free<BR>

T3, only a total T3. I didn't realize it until I had left the lab, but<BR>

sent her a note and told her that next time I want a FREE T3! She did<BR>

run a free T4 though so should have the result of that one soon. <BR>

<BR>

Next visit I am brining in a list of tests I want run along with my copy<BR>

of Elaine's book. Until this visit my endo has pretty much gone along<BR>

with my wishes but this time she didn't. I've fired endos before and<BR>

I'll do it again if I have to. I want a TSI test next time too, haven't<BR>

had one in a few years. Maybe I can call my GP and see if they'll run<BR>

the labs I want for me? Is that pushy of me? <BR>

<BR>

in MA USA<BR>

Graves since March 1997<BR>

Currently on 2 PTU tablets per day<BR>

Was in remission from 2000-2003<BR>

Will not undergo RAI<BR>

<BR>

<BR>

<BR>

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" L. O'Hearn " wrote:

Maybe I can call my GP and see if they'll run

the labs I want for me? Is that pushy of me?

Hi ,

I don't think I've ever actually " spoken " to you before. :-) Just wanted to say

that NO - your wanting the proper labs and doing what you need to do to insure

that you have them done is not pushy. It's smart and being on top of your own

state of health. At least that's what I'd call it, and I'm only a newbie to the

whole thing.

I know how hard it is to be assertive, and I try to avoid confrontation like the

plague.....but I think that over the course of my own saga with Graves I'll

probably have to learn to deal with those issues myself better and just suck it

up, as my kids would say. :-) Not critiquing you at all......just being

encouraging that you can do it and we are all here for you to cheer you on.

Take care and God bless you in your journey. Have a wonderful day!

" Grief can take care of itself, but to get the full value of a joy you must have

somebody to divide it with. "

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Sandy Wrote: Last time I talked to them, I found out (not sure if this

is true or not) but was told that the FT3 takes longer to get the

results back?

That's what my endo said too. She said something about the FT3 takes

longer to get back, but she didn't mention she wasn't going to have it

run! Is it just me or does it seem really stupid that we even HAVE to

ASK for the CORRECT LABS?? Sheesh! Drives me batty!

I have liked my new endo up until this little misunderstanding. But I

didn't have time to go back to her office and wait 30 minutes to get a

chance to talk to her about it for 5 minutes! I was already really,

really late for work at that point so I sent a note voicing my

dissatisfaction! I mean I am the paying customer here, aren't I?

in MA USA

Graves since March 1997

Currently on 2 PTU tablets per day

Was in remission from 2000-2003

Will not undergo RAI

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yes, you are the paying customer. I'd be curious to know what

explanation you get also for the T3. I am hoping maybe somebody can

shed a little light on this difference in the length of testing on the

T3 and FT3. I know that it took me quite some time, as I'd had FT3

checked, on one occasion, but for some reason the lab I used didn't

forward the results of that test, although they did give me the TSH

and the FT4 within 24 hours?

Maybe Elaine can give us more info on it?

Sandy~Houston

On Wed, 17 Sep 2003 10:58:27 -0400

" L. O'Hearn " wrote:

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From my experience, if the FT3 takes longer, the results may be in a day

later or so. It's not like the TSI test, which can take a week.

At 11:06 AM 9/17/2003, you wrote:

>I am hoping maybe somebody can

>shed a little light on this difference in the length of testing on the T3

>and FT3.

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Thanks . That is interesting. I've been meaning to ask my

Endo that, but I find it I don't have it written down, then I tend to

forget. I dunno if anybody else has that problem, but I have it

majorly bad. lol.

Two nights ago I took my son to Sonic to get him a burger, fries and

drink, and decided that I'd pick up something for hubby too while I

was out. I was trying to order the food, had it all in my head on

what I was going to order, and the kid taking the order kept

interrupting me. Needless to say it irritated the devil outta me and

I finally found myself telling the kid on the other end of the

speaker: NOW! Let me finish my order so I can get it right, then you

can ask all the questions you want. rofl. My son was so embarassed

he was surely sitting there thinking: I'm NEVER going with her

anyplace else again! lol.

But, I can remember a time years and years ago when I'd have NEVER

spoken up for myself about anything. I'd have just accepted what was

handed to me and went on like a good little girl! lol. Boy! those

days are sure over! It must come with age and years of being too

quiet! rofl

Sandy~Houston

On Wed, 17 Sep 2003 11:14:52 -0400

" Conner, Psy.D. " wrote:

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Hi and Sandy,

My experience has been that if the FT3 is in a range consistent with the

FT4, which mine is, then I don't need to run it too often. My endo does want

to do it every once in a while, just to be sure--but I think it's the fact

that it costs a bit more than some of the other tests that deters a lot of

docs. I've heard again and again, that that's the reason and that total T3

is " good enough " because free costs so much.

Terry

>

> Reply-To: graves_support

> Date: Wed, 17 Sep 2003 10:28:23 -0400

> To: graves_support

> Subject: RE: FW: Latest Endo Visit

>

> , I don't think it's pushy at all. I've noticed that when I go in for

> labs, if I do it locally, then it's forwarded to my dr's office, he is

> notorious for running FT4 and only running T3. Last time I talked to them,

> I found out (not sure if this is true or not) but was told that the FT3

> takes longer to get the results back? But, I also intend to talk to him

> about it, as I think the T3 is a little unnecessary from all I read. So if

> that's the case, then he could just run TSH, and FT4. That is definately

> going to be our next conversation when I see him in person. I'm anxious to

> hear his explanation, but I plan on being well prepared with notes in hand

> cuz I forget by the time I get into see him. lol

>

> Sandy~Houston

>

> Original Message:

> -----------------

> From: L. O'Hearn lisa-ohearn@...

> Date: Wed, 17 Sep 2003 09:39:51 -0400

> To: graves_support

> Subject: FW: Latest Endo Visit

>

>

> <html><body>

>

>

> <tt>

> Hi everyone,<BR>

> <BR>

> Went to the endo yesterday and now I am waiting for my new lab results.<BR>

> She said I look really good and seem to be doing very well. She's<BR>

> concerned about my weight gain of 30 pounds in a year but I warned her<BR>

> last year that this is what happens to me on ATDs. She didn't run a free<BR>

> T3, only a total T3. I didn't realize it until I had left the lab, but<BR>

> sent her a note and told her that next time I want a FREE T3! She did<BR>

> run a free T4 though so should have the result of that one soon. <BR>

> <BR>

> Next visit I am brining in a list of tests I want run along with my copy<BR>

> of Elaine's book. Until this visit my endo has pretty much gone along<BR>

> with my wishes but this time she didn't. I've fired endos before and<BR>

> I'll do it again if I have to. I want a TSI test next time too, haven't<BR>

> had one in a few years. Maybe I can call my GP and see if they'll run<BR>

> the labs I want for me? Is that pushy of me? <BR>

> <BR>

> in MA USA<BR>

> Graves since March 1997<BR>

> Currently on 2 PTU tablets per day<BR>

> Was in remission from 2000-2003<BR>

> Will not undergo RAI<BR>

> <BR>

> <BR>

> <BR>

>

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thanks Terry. Makes sense. :-)

Sandy~Houston

Original Message:

-----------------

From: Terry ding aldente@...

Date: Wed, 17 Sep 2003 08:29:38 -0700

To: graves_support

Subject: Re: FW: Latest Endo Visit

<html><body>

<tt>

Hi and Sandy,<BR>

<BR>

My experience has been that if the FT3 is in a range consistent with the<BR>

FT4, which mine is, then I don't need to run it too often. My endo does

want<BR>

to do it every once in a while, just to be sure--but I think it's the

fact<BR>

that it costs a bit more than some of the other tests that deters a lot

of<BR>

docs. I've heard again and again, that that's the reason and that total

T3<BR>

is " good enough " because free costs so much.<BR>

<BR>

Terry<BR>

<BR>

> <BR>

> Reply-To: graves_support <BR>

> Date: Wed, 17 Sep 2003 10:28:23 -0400<BR>

> To: graves_support <BR>

> Subject: RE: FW: Latest Endo Visit<BR>

> <BR>

> , I don't think it's pushy at all. I've noticed that when I go in

for<BR>

> labs, if I do it locally, then it's forwarded to my dr's office, he is<BR>

> notorious for running FT4 and only running T3.  Last time I talked to

them,<BR>

> I found out (not sure if this is true or not) but was told that the

FT3<BR>

> takes longer to get the results back?  But, I also intend to talk to

him<BR>

> about it, as I think the T3 is a little unnecessary from all I read.  So

if<BR>

> that's the case, then he could just run TSH, and FT4.  That is

definately<BR>

> going to be our next conversation when I see him in person.  I'm anxious

to<BR>

> hear his explanation, but I plan on being well prepared with notes in

hand<BR>

> cuz I forget by the time I get into see him.  lol<BR>

> <BR>

> Sandy~Houston<BR>

> <BR>

> Original Message:<BR>

> -----------------<BR>

> From: L. O'Hearn lisa-ohearn@...<BR>

> Date: Wed, 17 Sep 2003 09:39:51 -0400<BR>

> To: graves_support <BR>

> Subject: FW: Latest Endo Visit<BR>

> <BR>

> <BR>

> <html><body><BR>

> <BR>

> <BR>

> <tt><BR>

> Hi everyone,<BR><BR>

> <BR><BR>

> Went to the endo yesterday and now I am waiting for my new lab

results.<BR><BR>

> She said I look really good and seem to be doing very well. She's<BR><BR>

> concerned about my weight gain of 30 pounds in a year but I warned

her<BR><BR>

> last year that this is what happens to me on ATDs. She didn't run a

free<BR><BR>

> T3, only a total T3. I didn't realize it until I had left the lab,

but<BR><BR>

> sent her a note and told her that next time I want a FREE T3! She

did<BR><BR>

> run a free T4 though so should have the result of that one soon. <BR><BR>

> <BR><BR>

> Next visit I am brining in a list of tests I want run along with my

copy<BR><BR>

> of Elaine's book. Until this visit my endo has pretty much gone

along<BR><BR>

> with my wishes but this time she didn't. I've fired endos before

and<BR><BR>

> I'll do it again if I have to. I want a TSI test next time too,

haven't<BR><BR>

> had one in a few years. Maybe I can call my GP and see if they'll

run<BR><BR>

> the labs I want for me? Is that pushy of me? <BR><BR>

> <BR><BR>

> in MA USA<BR><BR>

> Graves since March 1997<BR><BR>

> Currently on 2 PTU tablets per day<BR><BR>

> Was in remission from 2000-2003<BR><BR>

> Will not undergo RAI<BR><BR>

> <BR><BR>

> <BR><BR>

> <BR><BR>

>

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Sandy,

Life has forced you to become assertive. Life required it, and so you have

learned. That is a good thing :-)

At 11:21 AM 9/17/2003, you wrote:

>But, I can remember a time years and years ago when I'd have NEVER

>spoken up for myself about anything. I'd have just accepted what was

>handed to me and went on like a good little girl! lol. Boy! those

>days are sure over! It must come with age and years of being too

>quiet! rofl

>

>Sandy~Houston

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