Hello! Need advice on RAI

[Guest guest]

Hi, I haven't posted in a while. I am 32 and have been diagnosed

with Graves Disease for 18 months now. Though I had this for

approx. 12 years my

symptoms peeked over the last 3 years and finally the doctors decided

to check my thyroid. Graves caused hyperthyroidism. I started with

body tremors, 130 pulse rate, blurred vision, adrenaline rushes,

difficulty breathing, rapid heart rate, lost of memory, no

concentration, rage, and feeling like I was losing my mind. the

tissue around my eyes is swollen. This is a terrible disease that

people around you don't understand. They think you can control

yourself on your own. It doesn't work that way. After my first

thyroid scan/uptake my doctor decided to try 450mg. of PTU and put me

on beta blockers Inderal 80mg. After a month on the ptu I broke out

with hives and itched all the time. He cut my ptu in half. I felt

great for 2-3 months. After about 8 months I started to notice some

symptoms coming back. He said my lab work looked great and I will

see you in 6 months. During the next 6 months all my symptoms came

back. My specialist was dissapointed that the ptu did not work for

me. He sent me to a radiation oncologist whom set up another

scan/uptake. I had testing all last week. My uptake numbers were

really high. I am set up for an ultrasound and the radioactive

iodine treatment tomorrow. About 18 months ago I was against the

possibility of radiation treatment. Now, feeling the way I do I have

no other choice. I am still on bets blockers and have total body

tremors, eyes puffy, rapid heart beat, muscle weakness etc. The only

thing that makes me nervous is this radiation doctor is basing his

treatment on his own theory. He is taking the numbers of the uptake

and charting them. He is trying to give me an exact ammount of this

to make me normal, not Hypo. Chances are this will not work the

first time and he will have to give me another dose. Could someone

let me know their opinion on this. Good luck to all out there who

are suffering with this disease. Thank you, Lucille