Re: muscle tone in RSS kids

[Guest guest]

Alison, My son also had low muscle tone, he just turned one, and has not started

growth hormone. With physical and occupational therapy weekly, he has caught up

in these areas. In physical therapy he is actually a month ahead of kids his

age. So, it can be done. Good luck!

le mom to Datreon, RSS, 1yr, 15lb 2oz, 26in, periactin

[Guest guest]

Hi!

My son is non RSS but had severe hypotonia, my 20 mo old

Emerence, SGA mild RSS, has more moderate hypotonia but we started PT

at 3 months. never had anything but PT and OT and began

walking at 26 months. I would ask about getting a walker...I think

once got upright it made it much easier. He had the walker 4

months before he walked. He rolled everywhere. Emerence did not

walk until 17 months.

>

> Hi everyone

> My son (Charlie 15mths RSS) had a physio assessment yesterday as he

> is not walking or pulling up yet. He is bottom shuffling very fast

> though! The physio said that he was a bit low toned and weak around

> the shoulders and torso. I had heard that when they start growth

> hormones this can help with their muscle bulk and strength but the

> physio asked if with exercise alone, strengthening and increased

> muscle tone could occur in these kids (as at this stage, Charlie

> won't be starting GH therapy for a while). I didn't know the answer

> to this - can anyone shed light?

> Thanks

> Alison (mum to almost 3yrs and Charlie RSS 15mths)

[Guest guest]

Alison,

Charlie's muscle tone will improve with physio. You don't have to

wait until gh is started to see an improvement in this area.

Email me at ade01@... if you would like to know some Early

Childhood Centres near where you live.

ne

>

> Hi everyone

> My son (Charlie 15mths RSS) had a physio assessment yesterday as

he

> is not walking or pulling up yet. He is bottom shuffling very fast

> though! The physio said that he was a bit low toned and weak

around

> the shoulders and torso. I had heard that when they start growth

> hormones this can help with their muscle bulk and strength but the

> physio asked if with exercise alone, strengthening and increased

> muscle tone could occur in these kids (as at this stage, Charlie

> won't be starting GH therapy for a while). I didn't know the

answer

> to this - can anyone shed light?

> Thanks

> Alison (mum to almost 3yrs and Charlie RSS 15mths)

[Guest guest]

Hi Alison,

Yes, strengthening and increased muscle tone CAN be achieved through

Physical Therapy.

butt-scooted for the longest time, and became VERY proficient at it!

LOL He didn't walk until he was 21 months of age, and crawled even later

than that.

Hope this helps

Pat (g-ma to , RSS, 33 months, 22.5#, 31.8 " , G-Tube)