Re: NEED HELP WITH MEDICAL ISSUES

[Guest guest]

hi heather!

i dont know your financial situation but maybe you would qualifiy

for SSI benefits and along with that you will receive medicad for

her. christopher gets ssi based solely on his rss (i know others

who have applied as well and were denied but it is worth a try, plus

if you are denied you can appeal) also most hospitals have a

finacial program based on your income where you may only have to pay

20% of the bill. it's worth looking into. also when she turns 3,

atleast here in nj, the school district would be responsible for any

early intervention if she qualifies. call the school about having

her tested. christopher attends the preschool disabled program at

our school for free and receives OT there. good luck!!!

jodie c.

-- In RSS-Support , heatherzietz@a... wrote:

> Hi everyone-

>

> It has been a while so here is a quick update. My daughter Laikyn

is 2 1/2

> and has RSS. She is now in the early intervention program where

we live in

> North Dakota but when she turns 3 she is then out of the program

and then also

> will loose her MA because she is to smart. I am in a great need

of help from

> who ever can offer it!! Here in our state they don't look at what

your child

> needs to make them smart. We do so much for Laikyn but our

average monthly

> medical bill are way to much for us to afford without her MA. We

are trying to

> fight the system but I really culd use some help. With Laikyn

being one of two

> children in ND with RSS it is really hard to fight this when no

one knows

> what I am talking about. We are trying to pass a bill to change

the eligibility

> of the Human Services Department for being Developmental disabled

but is is a

> long and hard battle. I can't also think right an want to help

Laikyn in

> anyway I can so if anyone has been through this or there state is

diffrent with MA

> please fill me in!!! Thanks for the help!!!

>

>

> (Mom to Laikyn 2 1/2 17lbs 32 1/2in)

>

>

>

[Guest guest]

,

As a few others have already responded, once Laikyn turns three your

school system should help with PT, OT, issues.

Also, in terms of help with medical bills you should look into your

state's medicaid waiver program. Every state has one, but each is run

differently. It is a " waiver " because it waives certain

qualifications to enter the medicaid program (ie. financial income of

parents, etc.). I'll do a search for ND and let you know what I find.

Alison

> Hi everyone-

>

> It has been a while so here is a quick update. My daughter Laikyn

is 2 1/2

> and has RSS. She is now in the early intervention program where we

live in

> North Dakota but when she turns 3 she is then out of the program

and then also

> will loose her MA because she is to smart. I am in a great need of

help from

> who ever can offer it!! Here in our state they don't look at what

your child

> needs to make them smart. We do so much for Laikyn but our average

monthly

> medical bill are way to much for us to afford without her MA. We

are trying to

> fight the system but I really culd use some help. With Laikyn being

one of two

> children in ND with RSS it is really hard to fight this when no one

knows

> what I am talking about. We are trying to pass a bill to change the

eligibility

> of the Human Services Department for being Developmental disabled

but is is a

> long and hard battle. I can't also think right an want to help

Laikyn in

> anyway I can so if anyone has been through this or there state is

diffrent with MA

> please fill me in!!! Thanks for the help!!!

>

>

> (Mom to Laikyn 2 1/2 17lbs 32 1/2in)

>

>

>

[Guest guest]

,

Here is a link regarding Medicaid Waivers in ND:

http://www.state.nd.us/humanservices/services/medicalserv/medicaid/waiver.html

This should give you a start. In my state (Virginia) what happens is

the individual would apply for the waiver and if accepted that person

gets waiver services (ie. respite care, etc.) plus automatically

receives Medicaid. It is not based on parent's income. If the child

qualifies for the waiver, they become an independent entity,

therefore not financially linked to the parent. So, the parents

income does not count against them. Then the child has his/her

parent's health insurance as a primary insurance, but then medicaid

comes in where they leave off, hopefully minimizing all out of pocket

expenses for the parent. Each state runs this differently, but all

states have a waiver program.

I could go on and on, we just won a three year battle. So, please

feel free to ask me questions. I am very passionate about this issue.

I would be happy to help in any way.

Alison

> > Hi everyone-

> >

> > It has been a while so here is a quick update. My daughter Laikyn

> is 2 1/2

> > and has RSS. She is now in the early intervention program where we

> live in

> > North Dakota but when she turns 3 she is then out of the program

> and then also

> > will loose her MA because she is to smart. I am in a great need of

> help from

> > who ever can offer it!! Here in our state they don't look at what

> your child

> > needs to make them smart. We do so much for Laikyn but our average

> monthly

> > medical bill are way to much for us to afford without her MA. We

> are trying to

> > fight the system but I really culd use some help. With Laikyn being

> one of two

> > children in ND with RSS it is really hard to fight this when no one

> knows

> > what I am talking about. We are trying to pass a bill to change the

> eligibility

> > of the Human Services Department for being Developmental disabled

> but is is a

> > long and hard battle. I can't also think right an want to help

> Laikyn in

> > anyway I can so if anyone has been through this or there state is

> diffrent with MA

> > please fill me in!!! Thanks for the help!!!

> >

> >

> > (Mom to Laikyn 2 1/2 17lbs 32 1/2in)

> >

> >

> >

[Guest guest]

Hi allison

Thanks alot for the info. I am in need of any help that I can get. I did go to

the website but could not find anything on there. I sent an e-mail to childrens

special health services. Is there any info you could give me to help fight out

system?? I need facts about our kids and anything else out there. This is

going to be a hard battle for me. Please let me know!! thanks again for the

help!