Re: Taking Charge

[Guest guest]

,

In my experience, I have found that doctors (and nurses) are loathe to take

direction from patients. Others have had more success, but it really

depends on the doctor. I would be inclined to find another doctor, if

possible. But you can try, if you think that you can move her. I hope that

you have a backup plan, if things go awry with this one.

At 12:10 PM 10/10/2003, you wrote:

>Now I need to get my endo to listen to me. She won't run FT3 anymore,

>she won't run antibody tests and she only has me go for labs before an

>appointment. I was going to write a letter stating what I expect in my

>care, too over the top?

>

> in MA USA

>Graves since March 1997

>Currently on 2 PTU tablets per day

>Was in remission from 2000-2003

>Will not undergo RAI

[Guest guest]

Hi ,

Since I've only been dealing with Graves for about 3 1/2 months or so, I'm

afraid I don't have any pearls of wisdom to share with you and thus can't really

comment on the issues you raised in the first 2 of your paragraphs. I'm sure

somebody on this board has insight though, and you'll get a response in time.

:-)

As to your endo not listening to you, from what I've picked up in my brief

sojourn here at the Graves group, this seems to be a fairly common

occurrence....more's the pity. And a lot of folks seem to have a better rapport

with their GP when it comes to a doctor listening to them. Might you be able to

get your GP to work with you on getting the tests you need? I'll say a prayer

for you and keep my fingers crossed that all your matters are resolved well and

speedily. Hang in there!

the other

" L. O'Hearn " wrote:

Hi all,

I am desperately trying to take charge of my health care in relationship

to my Graves. This week I wrote a couple of posts that were apparently

too rambly and long since no one wrote any opinions or words of wisdom

in response. I'll try to cut right to

Is it possible for your body to become dependant on ATDs? In other

words, can your body become dependant on the ATDs to keep your levels

normal? Has this happened to anyone?

If your levels of thyroid hormones are only slightly above normal and

your body maintains them at that level consistently should you be put on

ATDs? Or, should you just be monitored closely and kept medications if

possible?

Now I need to get my endo to listen to me. She won't run FT3 anymore,

she won't run antibody tests and she only has me go for labs before an

appointment. I was going to write a letter stating what I expect in my

care, too over the top?

in MA USA

Graves since March 1997

Currently on 2 PTU tablets per day

Was in remission from 2000-2003

Will not undergo RAI