Re: thank for your support

[Guest guest]

Liang,

Please, please further your education. There will be links on the home page.

TSH should NEVER be used to judge autoimmune thyroid disease.

To do so can cause life threatening consequences

quote:

_______________________________________

..

I will go back to check TSH in 6 weeks. If TSH is still very low,

then I am really not sure if I want to go through this again.

Thanks, everyone

Liang

gaves since 97

in this group since 01

_____________________________________________

-Pam L-

[Guest guest]

Liang,

I hope you do well and remain comfortable with your decision. Having not had

RAI myself, I can't add much there--but I do have a question: each time you

were weaned off of the PTU, was it because your antibodies were <2% and

staying on any ATD made you hypO, or was it because the doctor said " time's

up " in one or another way?

I am asking this because I have chosen the course of staying on ATD's, and

had one time where my levels got to the logical stopping point including low

TSI, and then I relapsed, just as you seem to have done. I thought at the

time that it was due to switching brands of generics, but now I am not so

sure. I had to up my dose after my relapse to 12.5 mg. of Tapazole, and

gradually wean down again. I've been back on a low maintenance dose for well

over 6 months, and in the last few weeks have had to raise the dose a bit

again. I started to get a bit hyper again, much to my surprise.

I am trying to figure out if this is some sort of " seasonal " fluctuation, or

if my very low dose (about 2 mg. of Tapazole/day) was just too low to have a

long-term repressive effect on the thyroid hormone production. Now I'm back

up to about 3.75 mg. (I hedge myself there because the pills are so hard to

split evenly).

It's my intention to stay on ATD's for the rest of my life if I have

to--I've had no adverse reaction to them, I am just trying to figure out

what the optimal way of managing my thyroid health on them is.

Thanks for any input you may have from your experience,

Terry

>

> Reply-To: graves_support

> Date: Sat, 18 Oct 2003 21:57:24 -0000

> To: graves_support

> Subject: thank for your support

>

> Thanks everyone here who replied or took time read my post. Yeah, I

> got RAI last week. I have been on PTU for almost 6 years. During the

> past 6 years, I have been on and off for 3 times. I started with

> 450mg per day and got to a point only needed to take 25mg per day.

> But after got off 3 times, I needed to take 450mg per day again and

> the symptoms were not well control.

>

> I am working in research lab and got access to a lot of resources

> and also got support from here as well. In a certain degree, I am

> well informed. Just each after the endo weaned me off from PTU,

> hyper symptoms just kept coming back, each time i had to double the

> dose to control it. It got to a point that 450mg PTU still got it

> control well. So after some strugle, I decided to take the RAI last

> week. This is the second week after RAI. I still felt a bit hyper

> but not as bad before, still need beta-blocker. and the radiation

> counter does buz but not as bad as last week. I drank a lot of

> fluid, i mean a lot.

>

> I will go back to check TSH in 6 weeks. If TSH is still very low,

> then I am really not sure if I want to go through this again.

>

> Thanks, everyone

>

> Liang

> gaves since 97

> in this group since 01

>

>

>

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[Guest guest]

Hi, Pam,

Could you please elaborate about your comments:

TSH should NEVER be used to judge autoimmune thyroid disease.

To do so can cause life threatening consequences

Because from my understanding, there is risk associated with eye

problem after I-131 treatment. I did not know any other serious risks

involved.

Sorry for my ignorance.

Liang

> Liang,

>

> Please, please further your education. There will be links on the

home page.

>

> > quote:

> _______________________________________

> .

> I will go back to check TSH in 6 weeks. If TSH is still very low,

> then I am really not sure if I want to go through this again.

>

> Thanks, everyone

>

> Liang

> gaves since 97

> in this group since 01

> _____________________________________________

>

> -Pam L-

>

>

[Guest guest]

Hi Liang,

I hope you feel better real soon!! Make sure when you go back for more labs

that they test more than just TSH. As your thyroid is dying from the

radiation it will be dumping a lot of thyroid hormone into your system at

first, then your thyroid levels should plummet. Since TSH takes a while to

respond to changes in your thyroid levels it will most likely be several

months before there is any change in it.

in MA USA

Graves since March 1997

Currently on 0 PTU tablets per day

Was euthroid from 2000-2003

Will not undergo RAI

thank for your support

Thanks everyone here who replied or took time read my post. Yeah, I

got RAI last week. I have been on PTU for almost 6 years. During the

past 6 years, I have been on and off for 3 times. I started with

450mg per day and got to a point only needed to take 25mg per day.

But after got off 3 times, I needed to take 450mg per day again and

the symptoms were not well control.

I am working in research lab and got access to a lot of resources

and also got support from here as well. In a certain degree, I am

well informed. Just each after the endo weaned me off from PTU,

hyper symptoms just kept coming back, each time i had to double the

dose to control it. It got to a point that 450mg PTU still got it

control well. So after some strugle, I decided to take the RAI last

week. This is the second week after RAI. I still felt a bit hyper

but not as bad before, still need beta-blocker. and the radiation

counter does buz but not as bad as last week. I drank a lot of

fluid, i mean a lot.

I will go back to check TSH in 6 weeks. If TSH is still very low,

then I am really not sure if I want to go through this again.

Thanks, everyone

Liang

gaves since 97

in this group since 01