for Rifat in Turkey

[Guest guest]

Hi Rifat,

Glad to hear from you. Sory for the delay in answering. I was very

busy the last couple of days and could not get a chance to read the

messages here on the list.

I see you have the same question we all have about our RSS children,

which is how do we get them to eat. I am not sure if you are also

asking how to get your daughter off a feeding tube. I have not had

that experience so other will have to answer that.

As for getting a child to eat, it is difficult. First, here in the

U.S.A. doctors often perscribe cyproheptadine to stimulat ones

appetite. It is not as widely used in Europe/Asia as here in the U.S.

Even with the cyproheptadine, it is difficult. It sometimes does not

work well. So we have to try other things. What has been most

successful for us is to distract our son. Let him watch his favorite

video on television or play a game with him and have him eat while

playing a game. This seems to work best. Also, having regular eating

times works good too. This gets children into the routine of eating a

specific intervals. In some, this has " trained " them to be hungry.

I can't think of anything else at the moment, Hopefully, some one

else has some good ideas for you.

I hope this helps

Ken M

>

> Regarding my daughter Deniz

>

>

> hi from turkey. y´ m writing again. y´ heard about

> kinderhospital in  frankfurt. my daughter had hardly

> eating problem. she is 2,5 old and 11,3kg and 82cms.

> she s a rss. she dont want to eat and feeding with

> g-tube since last 1,5 years. How can we solve this

> problem.y´'m waiting your advice. Thank you very much.