Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Clair, it sounds like your dr is doing block and replace therapy for you. I am not familiar with it but I am hyperT/Graves and had gained a lot of weight. I was starting to think I'd never lose this weight I've put on over these past 4 yrs. I suspect I was hypoT before the Graves condition made itself present, so I knew I had to lose weight, but just never seemed to be able to. I take Methimazole, 5 mgs now, and 50 mgs of ATenolol, but I have high blood pressure so till that ceases (if it does) my Atenolol will stay in my daily regime. I know in the beginning, I was unable to do any type of exercise. I was just too sick to move. I got that way last year again after being on the 30 mgs of Methimazole which was my starting dose of ATD's from Dec, 2001- thru March 2002. I was either taken off the meds, or kept on the highest dose, which made the hypoT problem. I have just now started losing weight and have managed to get 24 lbs of this off, and I was pleased, but concerned. I dunno how true it is, but while taking ATD's, the dr had told me to enjoy what amount of weight I'd lost in the beginning. There must have been something to that, or else it was being made to go hypoT with the un-adjusted meds, but something definately packed the weight on me. I was 75 lbs overweight, and I was NOT happy about it! Somebody should be able to help you with this, since my experience with b & r is nil, and I'm rather curious about it myself. I was pleasantly surprised, and excited when I managed to get the weight off that I've dropped. I do know how it feels to gain and not be able to do much to lose it. It wasn't any fun for me at all. I do feel much better now, and I'm sure the weight that I've managed to lose has helped that. I'm crossing my fingers that you are able to do the same. It's nice for my clothes to look 'too big' for a change. Sandy~Houston Question about losing weight... Guess I'm full of questions lately! Anyway, since starting meds (PTU specifically) close to a year ago I have gained 25lbs. I hate it. I mean HATE it. I started Synthroid with PTU about 3 months ago and was hoping some of the weight which miraculously latched on to me might just as miraculously start to disappear. No such luck. Should I expect the Synthroid to have a positive effect on my weight (i.e., eventually lead to the loss of some of this weight I gained?). If not, can I diet or take any sort of diet supplements? Is cardio exercise OK? Will it be harder to lose this weight than it would be if I was not dealing with this illness or should I expect a similar weight loss experience as any normal person? I'm seriously going to cry. None of my clothes fit right anymore and I just feel so hopelessly unattractive and fat. Thanks. Clair Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Thanks for your input. I'm having one of those extra yucky days where I just want to cry. 25 pounds doesn't sound like a lot, especially when I started out thin. But seeing my body with these unfamiliar proportions is disheartening and upsetting. Trying on jeans and getting a love handle effect is nothing short of torture. Like you, I could NOT exercise in the beginning. I could barely do the dishes without my heart rate soaring and feeling like I might pass out. And since then, I haven't really tried to work out. I've never had to so it's foreign to me. And I'm kind of afraid to get that awful " Graves " feeling with the sweating and tremors and heart palps and so forth.... I called my husband and he suggested I call my doctor to see if there's anything I can do. I think I'm going to give that a try on Monday. I just wish weight gain wasn't part of this recovery package. I feel so much better than I did before I was diagnosed. But at the same time, I'm utterly depressed and mortified by the weight gain. It sounds horrible, but sometimes I wish I was never diagnosed so at least my self-esteem would be in tact. I know that's awful and it's really just a desperate thought. I would HATE to be sick again. But at the same time, this weight thing is so depressing. Blah. Anyway, thanks for responding. It's nice to know I'm not alone. And if anyone has any more info/support, I'm all ears!! Clair > Clair, it sounds like your dr is doing block and replace therapy for you. I am not familiar with it but I am hyperT/Graves and had gained a lot of weight. I was starting to think I'd never lose this weight I've put on over these past 4 yrs. I suspect I was hypoT before the Graves condition made itself present, so I knew I had to lose weight, but just never seemed to be able to. > > I take Methimazole, 5 mgs now, and 50 mgs of ATenolol, but I have high blood pressure so till that ceases (if it does) my Atenolol will stay in my daily regime. I know in the beginning, I was unable to do any type of exercise. I was just too sick to move. I got that way last year again after being on the 30 mgs of Methimazole which was my starting dose of ATD's from Dec, 2001- thru March 2002. I was either taken off the meds, or kept on the highest dose, which made the hypoT problem. I have just now started losing weight and have managed to get 24 lbs of this off, and I was pleased, but concerned. I dunno how true it is, but while taking ATD's, the dr had told me to enjoy what amount of weight I'd lost in the beginning. There must have been something to that, or else it was being made to go hypoT with the un-adjusted meds, but something definately packed the weight on me. I was 75 lbs overweight, and I was NOT happy about it! > > Somebody should be able to help you with this, since my experience with b & r is nil, and I'm rather curious about it myself. I was pleasantly surprised, and excited when I managed to get the weight off that I've dropped. I do know how it feels to gain and not be able to do much to lose it. It wasn't any fun for me at all. I do feel much better now, and I'm sure the weight that I've managed to lose has helped that. I'm crossing my fingers that you are able to do the same. It's nice for my clothes to look 'too big' for a change. > > Sandy~Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Clair, If you are stable and your heart rate is under control and there are no other health issues to deal with, there is NO reason not to do cardio exercise. Personally I walk the hills with the dog, swim, do Tai Chi and my physical therapy routine and try to exercise at least 1 hour every day, in some combo of those things. It helps a LOT, I don't gain more weight and I feel physically strong and good, as long as my thyroid levels are OK. Another thing you can try is to limit the high-glycemic index foods. Search glycemic index on google, and you'll get a list. The high g foods (white bread, white rice, other low-fiber carbs etc.) can really cause you to pack on the pounds. I try to eat protein, veggies, fruit (I know I should limit the fruit more but love it too much) and I only eat dessert in tiny amounts--sharing with my husband when we go out, etc. I also don't eat processed foods. Making sure you stay exactly in the right zone of thyroid levels for yourself is important--maybe the most important thing. I know when I went hypO for me (FT4 of 1.1 when the low norm was .8) I gained 10 lbs. in a week, without hardly eating. I had NO appetite (not my normal condition!). I've managed over the last 6 months to take 5 of it back off, but also by doing more exercise have built more muscle (which weighs MORE than fat) and so I'm a bit less concerned. I'm one of those people who didn't lose any weight when hyper. Sad state, far as I'm concerned. I'm not super heavy, but I am on the borderline of it. And, working as a caterer and being around food all the time doesn't help. Hope some of this helps you! Terry > > Reply-To: graves_support > Date: Fri, 17 Oct 2003 22:46:44 -0000 > To: graves_support > Subject: Question about losing weight... > > Guess I'm full of questions lately! Anyway, since starting meds (PTU > specifically) close to a year ago I have gained 25lbs. I hate it. I > mean HATE it. I started Synthroid with PTU about 3 months ago and > was hoping some of the weight which miraculously latched on to me > might just as miraculously start to disappear. No such luck. > > Should I expect the Synthroid to have a positive effect on my weight > (i.e., eventually lead to the loss of some of this weight I > gained?). If not, can I diet or take any sort of diet supplements? > Is cardio exercise OK? Will it be harder to lose this weight than it > would be if I was not dealing with this illness or should I expect a > similar weight loss experience as any normal person? > > I'm seriously going to cry. None of my clothes fit right anymore and > I just feel so hopelessly unattractive and fat. > > Thanks. > > Clair > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 In a message dated 10/17/2003 7:03:48 PM Central Daylight Time, cas9738@... writes: > > Anyway, thanks for responding. It's nice to know I'm not alone. And > if anyone has any more info/support, I'm all ears!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2003 Report Share Posted October 19, 2003 On Fri, 17 Oct 2003 22:46:44 -0000 " Clair Baca " writes: > Guess I'm full of questions lately! Anyway, since starting meds (PTU > specifically) close to a year ago I have gained 25lbs. My apologies if I'm confusing you with someone else but are you on any hormonal regimen in preparation for IVF? Sorry I can't offer you any concrete suggestions. Diet supplements scare me. One I've heard advertised explained how excess cortisol contributes to weight gain; this supplement suppressed cortisol. I don't think something like that should be done without a really competent dr.'s involvement. I've managed to put together a wardrobe I like fairly inexpensively. Wearing clothes that fit you, regardless of the number at the waist or collar, will give you a boost. A new haircut and accessories like earrings, scarves, shoes, etc., which will still fit you when you lose the weight, will go a long way too. I hope you can get exercise into your day, especially with the dreariness of late fall and winter looming. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 Hi Clair, I too have gained a lot of weight in the last year. Have you tried a lower-carbohydrate food plan? Maybe not Atkins (too strict, fake food) but something like Carbohydrate Addicts? Their website is www.carbohydrateaddicts.com. It's a pretty balanced food plan. My primary care doctor was all nervous when I first started, but I kept food logs of what I ate and brought them in one day and they were very happy with how healthy I was eating. I would avoid the older, original book and go with either the LifeSpan Program or the Healthy Heart one. in MA USA Graves since March 1997 Currently on 0 PTU tablets per day Was euthyroid from 2000-2002 Will not undergo RAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 Thanks so much for your support and advice Fay (and everyone else!). I feel much better. Went shopping Friday night and cured some of those woes. I'm also going to talk to my doctor about these 25 pesky pounds. I've never had to diet or exercise so all of this is foreign to me and I think some medical guidance is in order. And Fay, yes I am the same person also preparing for IVF. But no, I am not on any meds as of yet. We meet with our RE in January to start the process and I imagine by February I will be on the first round of meds. Thanks so much for your help and encouragement everyone. Clair > On Fri, 17 Oct 2003 22:46:44 -0000 " Clair Baca " <cas9738@h...> > writes: > > Guess I'm full of questions lately! Anyway, since starting meds (PTU > > specifically) close to a year ago I have gained 25lbs. > > My apologies if I'm confusing you with someone else but are you on any > hormonal regimen in preparation for IVF? > > Sorry I can't offer you any concrete suggestions. Diet supplements scare > me. One I've heard advertised explained how excess cortisol contributes > to weight gain; this supplement suppressed cortisol. I don't think > something like that should be done without a really competent dr.'s > involvement. > > I've managed to put together a wardrobe I like fairly inexpensively. > Wearing clothes that fit you, regardless of the number at the waist or > collar, will give you a boost. A new haircut and accessories like > earrings, scarves, shoes, etc., which will still fit you when you lose > the weight, will go a long way too. I hope you can get exercise into your > day, especially with the dreariness of late fall and winter looming. > > Take care, Fay > > > ________________________________________________________________ > The best thing to hit the internet in years - Juno SpeedBand! > Surf the web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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