Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 rai Well I just wanted to say I am going ahead and tell my docter I am going ahead and try RAI. I talked to my family Dr. abot it. so please can some one tell me some thing good abot rai. Hello Rose, Sorry to hear of all your medical troubles. What treatments has your doctor tried for your Graves disease? Do have any lab work results you can share with us? The " good " thing about RAI is it's the last treatment you can ever try. Once you have this procedure there is no going back, no trying something else. This " treatment " is permanent and irreversible. Sorry, I really can't find a lot of good in RAI. Graves is an immune system dysfunction so killing off the thyroid gland with radiation doesn't " cure " you. You simply trade hyper-thyroid problems for hypo-thyroid problems. You will also need to be on replacement thyroid hormone for the rest of your life. Share a little more info with us about current treatments, past treatments tried and your lab results and maybe you can avoid RAI, at least for now. in MA USA Graves since March 1997 Currently on 2 PTU tablets per day Was in remission from 2000-2003 Will not undergo RAI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Rose, RAI is merely a trade off of one thing, for another. I'm not sure that there is anything good to say from what I read and hear. Now, if you want some input on RAI you'll need to talk with people who've not had it done recently. I think people who had it done years (and I mean no less then 5+) yrs ago might be able to tell you an honest opinion on whether they'd do it again given the info they had at the time. Sandy~Houston On Fri, 17 Oct 2003 16:36:48 -0000 " ROSE " wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 > so please can some one tell me some thing good abot rai. Hi Rose. I guess you know that you won't get that here. I sincerely hope that you, and , who chimed in, do well. If you've had any, absolutely any, eye involvement, I would recommend you read Elaine's new book on TED cover-to-cover. Anyone here who's had, or lived with someone who's had, active Graves understands what goes into the decision making. I feel bad that you've come to this point and only hope it's a thoroughly informed decision. Take care and an enjoyable weekend, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Hi, Rose, > Well I just wanted to say I am going ahead and tell my docter > > I am going ahead and try RAI. I talked to my family Dr. abot it. > > my thing of it is it seens like every time i try something it > messes up My dr. even says it. Are you saying that you aren't good at following treatment plans? If so, please take into account that RAI is not a way to avoid taking daily medicine, like you have to with anti-thyroid drugs (ATD's). Most people who do RAI end up hypothyroid, taking daily hormone supplement for the rest of their lives, whereas many of the people who take ATD's go into remission for periods of time or permanently and don't have to take any thyroid meds while in remission. Please be sure you get full and accurate information on all of the treatment options (including surgery), especially before choosing one of the permanent ones (RAI or surgery) - which you can't really " try " , you just " do " them. Some people get sold on RAI as the answer to all of their problems, the last pill they'll ever have to take, but this is seldom the case. Best wishes, Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 Jill is certainly right, and you also must recognize that there is no such thing as " trying " RAI. You do it and then deal with the consequences. " Trying " suggests that it can be undone. That is incorrect. ElaineTM (Virginia) Sometimes I've believed as many as six impossible things before breakfast. -- Carroll Hello Jill On Wednesday, October 22, 2003, you wrote JH> Hi, Rose, >> Well I just wanted to say I am going ahead and tell my docter >> >> I am going ahead and try RAI. I talked to my family Dr. abot it. >> >> my thing of it is it seens like every time i try something it >> messes up My dr. even says it. JH> Are you saying that you aren't good at following treatment plans? If so, JH> please take into account that RAI is not a way to avoid taking daily JH> medicine, like you have to with anti-thyroid drugs (ATD's). Most people who JH> do RAI end up hypothyroid, taking daily hormone JH> supplement for the rest of JH> their lives, whereas many of the people who take JH> ATD's go into remission for JH> periods of time or permanently and don't have to JH> take any thyroid meds while JH> in remission. Please be sure you get full and JH> accurate information on all of JH> the treatment options (including surgery), JH> especially before choosing one of JH> the permanent ones (RAI or surgery) - which you JH> can't really " try " , you just JH> " do " them. Some people get sold on RAI as the answer to all of their JH> problems, the last pill they'll ever have to take, but this is seldom the JH> case. JH> Best wishes, JH> Jill Quote Link to comment Share on other sites More sharing options...
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