Re: This is a little about me. I'm a Newbie

[Guest guest]

Thank you for the welcome. I'm a little scared. My throat hurts and my face

is swelling. I'm going to be make my first DR appointment since I left the

hospital tomorrow. I should be see the doctor in a week or two. In the hospital

the doctor was pushing RAI but I'm not keen to on the idea. The normal iodine

made me sick. I'm glad I found the website http://valkyrie.aarg.net/.

I'm looking forward to talking to everyone.

Blessings, Dionne

In a message dated 11/3/2003 7:26:13 PM Central Standard Time,

lisa-ohearn@... writes:

Welcome Dionne,

Sorry you had to join us but you'll love it here. Book I would recommend is

" Graves Disease, A Practical Guide " . The author posts here! Also she has

lots of articles at Suite101.com. A diet lower in iodine is a good place to

start. Also, my personal experience has been that a carbohydrate controlled

diet helps too. Every meal and snack should be equal portions of

carbohydrates and proteins, or just protein at times. Plus all that protein

will help keep the muscles strong!

in MA USA

Graves since March 1997

Currently on 0 PTU tablets per day

Was euthyroid from 2000-2002, Hoping that I am now too!

Will not undergo RAI

Cradle to Crayons Home Daycare

" We care We learn We laugh We play "

Provider: Dionne Lane

in Austin, TX

Check out:

Click here to see my website:

http://www.geocities.com/cradletocrayons1111/index.html

[Guest guest]

No, my husband thought I was just making it up. And that I was lying about

being VERY tired all the time. I'm glad I found this group. I'm in some wonder

daycare groups but I needed a group for this. Blessings, Dionne

In a message dated 11/3/2003 9:57:16 PM Central Standard Time,

ken.cindy@... writes:

let me guess, your husband tried to blame it on your job? I also have just

been diagnosed and have a home daycare in Michigan, my husband tried to tell me

it was because I do too much and I must be picking something up from the

kids! : )

I go for my next set of labs tomorrow - this group has been VERY helpful! I

now know to have them drawn about 10 AM - not exactly sure why, but will

follow that advise..............my family found the letter to spouse very

helpful

in understanding the degree of this disease.

Good luck,

Cindy from MI

This is a little about me. I'm a Newbie

This is a little about me. I went in the hospital last Tuesday and I just

got

out Saturday. I'm still very weak. They say I have Graves' Disease. I went

in

to the hospital because I throw up 20 times. And found out my pulse rate

was

a 160. I'm normal is 60. I could have a heart attack. I'm so depressed. I

have

had to symptoms for years. I'm glad they figured what was going on because

I

felt like I was going crazy for years. I was so tired all the time. My hair

has been coming out. I have had irritability, muscular weakness, insomnia,

and

swelling of the tissue around my eyes. I since April I have loss 35 pounds

without dieting, a rapid heart beat, and body tremors. My husband thought I

was

just making it all up. He being an angel now. We will see how long that

lasts.

LOL I'm going forward to your group for info!

I'd love to have websites to go to for more info Graves Disease as well as

books you recommend. And is there diet that will help me feel better and

grow

stronger?

Blessings, Dionne

Cradle to Crayons Home Daycare

" We care We learn We laugh We play "

Provider: Dionne Lane

in Austin, TX

Check out:

Click here to see my website:

http://www.geocities.com/cradletocrayons1111/index.html

[Guest guest]

No, my husband thought I was just making it up. And that I was lying about

being VERY tired all the time. I'm glad I found this group. I'm in some wonder

daycare groups but I needed a group for this. Blessings, Dionne

In a message dated 11/3/2003 9:57:16 PM Central Standard Time,

ken.cindy@... writes:

let me guess, your husband tried to blame it on your job? I also have just

been diagnosed and have a home daycare in Michigan, my husband tried to tell me

it was because I do too much and I must be picking something up from the

kids! : )

I go for my next set of labs tomorrow - this group has been VERY helpful! I

now know to have them drawn about 10 AM - not exactly sure why, but will

follow that advise..............my family found the letter to spouse very

helpful

in understanding the degree of this disease.

Good luck,

Cindy from MI

This is a little about me. I'm a Newbie

This is a little about me. I went in the hospital last Tuesday and I just

got

out Saturday. I'm still very weak. They say I have Graves' Disease. I went

in

to the hospital because I throw up 20 times. And found out my pulse rate

was

a 160. I'm normal is 60. I could have a heart attack. I'm so depressed. I

have

had to symptoms for years. I'm glad they figured what was going on because

I

felt like I was going crazy for years. I was so tired all the time. My hair

has been coming out. I have had irritability, muscular weakness, insomnia,

and

swelling of the tissue around my eyes. I since April I have loss 35 pounds

without dieting, a rapid heart beat, and body tremors. My husband thought I

was

just making it all up. He being an angel now. We will see how long that

lasts.

LOL I'm going forward to your group for info!

I'd love to have websites to go to for more info Graves Disease as well as

books you recommend. And is there diet that will help me feel better and

grow

stronger?

Blessings, Dionne

Cradle to Crayons Home Daycare

" We care We learn We laugh We play "

Provider: Dionne Lane

in Austin, TX

Check out:

Click here to see my website:

http://www.geocities.com/cradletocrayons1111/index.html

[Guest guest]

Welcome Dionne,

Sorry you had to join us but you'll love it here. Book I would recommend is

" Graves Disease, A Practical Guide " . The author posts here! Also she has

lots of articles at Suite101.com. A diet lower in iodine is a good place to

start. Also, my personal experience has been that a carbohydrate controlled

diet helps too. Every meal and snack should be equal portions of

carbohydrates and proteins, or just protein at times. Plus all that protein

will help keep the muscles strong!

in MA USA

Graves since March 1997

Currently on 0 PTU tablets per day

Was euthyroid from 2000-2002, Hoping that I am now too!

Will not undergo RAI

This is a little about me. I'm a Newbie

This is a little about me. I went in the hospital last Tuesday and I just

got

out Saturday. I'm still very weak. They say I have Graves' Disease. I went

in

to the hospital because I throw up 20 times. And found out my pulse rate was

a 160. I'm normal is 60. I could have a heart attack. I'm so depressed. I

have

had to symptoms for years. I'm glad they figured what was going on because I

felt like I was going crazy for years. I was so tired all the time. My hair

has been coming out. I have had irritability, muscular weakness, insomnia,

and

swelling of the tissue around my eyes. I since April I have loss 35 pounds

without dieting, a rapid heart beat, and body tremors. My husband thought I

was

just making it all up. He being an angel now. We will see how long that

lasts.

LOL I'm going forward to your group for info!

I'd love to have websites to go to for more info Graves Disease as well as

books you recommend. And is there diet that will help me feel better and

grow

stronger?

Blessings, Dionne

[Guest guest]

let me guess, your husband tried to blame it on your job? I also have just been

diagnosed and have a home daycare in Michigan, my husband tried to tell me it

was because I do too much and I must be picking something up from the kids! : )

I go for my next set of labs tomorrow - this group has been VERY helpful! I now

know to have them drawn about 10 AM - not exactly sure why, but will follow that

advise..............my family found the letter to spouse very helpful in

understanding the degree of this disease.

Good luck,

Cindy from MI

This is a little about me. I'm a Newbie

This is a little about me. I went in the hospital last Tuesday and I just got

out Saturday. I'm still very weak. They say I have Graves' Disease. I went in

to the hospital because I throw up 20 times. And found out my pulse rate was

a 160. I'm normal is 60. I could have a heart attack. I'm so depressed. I have

had to symptoms for years. I'm glad they figured what was going on because I

felt like I was going crazy for years. I was so tired all the time. My hair

has been coming out. I have had irritability, muscular weakness, insomnia, and

swelling of the tissue around my eyes. I since April I have loss 35 pounds

without dieting, a rapid heart beat, and body tremors. My husband thought I

was

just making it all up. He being an angel now. We will see how long that lasts.

LOL I'm going forward to your group for info!

I'd love to have websites to go to for more info Graves Disease as well as

books you recommend. And is there diet that will help me feel better and grow

stronger?

Blessings, Dionne

Cradle to Crayons Home Daycare

" We care We learn We laugh We play "

Provider: Dionne Lane

in Austin, TX

Check out:

Click here to see my website:

http://www.geocities.com/cradletocrayons1111/index.html

[Guest guest]

Dionne,

I recommend that you go to mediboard.com and read the Thyroid Awareness 101

thread:

http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549

I am a bit too tired this evening to respond much, but I just wanted you to

know that I read your post and I'm sorry to hear that you are having a hard

time right now. As for the throat hurting, perhaps you can take some

tylenol. Not sure if it will help, and perhaps you need some prednisone.

I'm just not sure, so hopefully someone else will have some ideas, if not

here, then maybe at mediboard.

At 09:14 PM 11/3/2003, you wrote:

>Thank you for the welcome. I'm a little scared. My throat hurts and my face

>is swelling. I'm going to be make my first DR appointment since I left the

>hospital tomorrow. I should be see the doctor in a week or two. In the

>hospital

>the doctor was pushing RAI but I'm not keen to on the idea. The normal iodine

>made me sick. I'm glad I found the website

><http://valkyrie.aarg.net/.>http://valkyrie.aarg.net/.

>I'm looking forward to talking to everyone.

>Blessings, Dionne

[Guest guest]

Thank you for your advice. I'm going to being calling to doctor today. I'm on

these drugs, 600mg of propylthiouracil and 200mg of metoprolol a day.

Hi Dionne, and welcome,

You've already gotten lots of good advice. Thanks for mentioning

valkyrie's website, that's a new one for me and I'll add it to my

list.

As mentioned, Elaine 's book is a great comprehensive guide

and will give you more info on diet. The place to start avoiding

iodine is to check your multivitamin, change to uniodized salt, and

start avoiding seafood and red food coloring.

Can the ER doctor who saw you start you on an antothyroid med or at

least a beta blocker for heart symptoms? Two weeks seems like a long

time to wait--I certainly wouldn't want to wait longer (I waited six

weeks while my levels continued to rise--bad idea).

Many doctors use a low-dose iodine scan to diagnoze Graves', but you

can avoid the iodine exposure and have an ultrasound instead. That

and the antibody test for Graves', often called TSI antibodies, are

all you need for diagnosis. As you already have some eye swelling I

would suggest you try the medication route rather than radioactive

iodine to destroy the thyroid. That treatment can make the eye

symptoms worse. Plus, Graves' disease is an problem caused by an

overactive immune system, which can be healed. As a result, many

people can attain remission with their thyroid gland intact.

When you start an antithyroid med your dr. will need to run baseline

liver and CBC (complete blood count) tests to watch for the

dangerous, but rare, side effects of these meds. One sign of a

problem is a sore throat. which you already have, so the baseline

will be really important (I had a sore throat and extremely swollen

glands during my first three months of treatment. We could fine no

cause--mono? Lyme?--so we assumed it was part of the disease itself).

You should start feeling much better shortly after starting an

antithyroid med. In the meantime, you really need to take care of

yourself. Your body's been in overdrive and you need to refuel,

physically and emotionally. The letter to familes that Cindy

mentioned is at http://velocitus.net/deecee/information.htm .

You'l also find great info in the Files section of this group and at

Mediboard--and keep asking questions here!

Best wishes,

Cradle to Crayons Home Daycare

" We care We learn We laugh We play "

Provider: Dionne Lane

in Austin, TX

Check out:

Click here to see my website:

http://www.geocities.com/cradletocrayons1111/index.html

[Guest guest]

Hi Dionne, and welcome,

You've already gotten lots of good advice. Thanks for mentioning

valkyrie's website, that's a new one for me and I'll add it to my

list.

As mentioned, Elaine 's book is a great comprehensive guide

and will give you more info on diet. The place to start avoiding

iodine is to check your multivitamin, change to uniodized salt, and

start avoiding seafood and red food coloring.

Can the ER doctor who saw you start you on an antothyroid med or at

least a beta blocker for heart symptoms? Two weeks seems like a long

time to wait--I certainly wouldn't want to wait longer (I waited six

weeks while my levels continued to rise--bad idea).

Many doctors use a low-dose iodine scan to diagnoze Graves', but you

can avoid the iodine exposure and have an ultrasound instead. That

and the antibody test for Graves', often called TSI antibodies, are

all you need for diagnosis. As you already have some eye swelling I

would suggest you try the medication route rather than radioactive

iodine to destroy the thyroid. That treatment can make the eye

symptoms worse. Plus, Graves' disease is an problem caused by an

overactive immune system, which can be healed. As a result, many

people can attain remission with their thyroid gland intact.

When you start an antithyroid med your dr. will need to run baseline

liver and CBC (complete blood count) tests to watch for the

dangerous, but rare, side effects of these meds. One sign of a

problem is a sore throat. which you already have, so the baseline

will be really important (I had a sore throat and extremely swollen

glands during my first three months of treatment. We could fine no

cause--mono? Lyme?--so we assumed it was part of the disease itself).

You should start feeling much better shortly after starting an

antithyroid med. In the meantime, you really need to take care of

yourself. Your body's been in overdrive and you need to refuel,

physically and emotionally. The letter to familes that Cindy

mentioned is at http://velocitus.net/deecee/information.htm .

You'l also find great info in the Files section of this group and at

Mediboard--and keep asking questions here!

Best wishes,

> Thank you for the welcome. I'm a little scared. My throat hurts and

my face

> is swelling. I'm going to be make my first DR appointment since I

left the

> hospital tomorrow. I should be see the doctor in a week or two. In

the hospital

> the doctor was pushing RAI but I'm not keen to on the idea. The

normal iodine

> made me sick. I'm glad I found the website

http://valkyrie.aarg.net/.

> I'm looking forward to talking to everyone.

> Blessings, Dionne

[Guest guest]

On Tue, 4 Nov 2003 07:22:06 EST Cradletocrayons2@... writes:

> Thank you for your advice. I'm going to being calling to doctor

> today. I'm on

> these drugs, 600mg of propylthiouracil and 200mg of metoprolol a

> day.

WHOA!! Forget my earlier post. You are on a megadose and based on how you

described yourself in the welcome, I think it's likely wildly

inappropriate!! 300 mg. is a normal starting dose. Many people also start

on 450. I heard that the potency of PTU is basically equivalent to that

of methimazole, the other ATD, just add a zero. That is, 300 of PTU = 30

methimazole. 30 methimazole is very common as a starting point. I hear

450 for PTU much more often than 45 for methimazole. Still, this really

seems like way too much and being on an inappropriately high dose can

bring on the dangerous side effects. DON'T let your doctor tell you PTU

is not an option based on your sore throat - reducing may well end the

problem.

I'm not familiar with beta-blockers and their dosing. Got to wonder

though if this is too high also.

You're on the right track and you will feel better soon. You're educating

yourself very well on this. Take care, Fay

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[Guest guest]

Dionne,

I agree with Fay. This is a huge dose. Please be careful, and ask your

doctor if you can reduce it at this point; 300-450mg should bring down your

levels, from what we gather. I am concerned that your doctor does not know

how to use this medication, so please educate yourself about proper blood

levels and symptoms of hypO to watch for.

At 09:21 AM 11/4/2003, you wrote:

>On Tue, 4 Nov 2003 07:22:06 EST Cradletocrayons2@... writes:

> > Thank you for your advice. I'm going to being calling to doctor

> > today. I'm on

> > these drugs, 600mg of propylthiouracil and 200mg of metoprolol a

> > day.