Re: Sittin on the fence: GONE BESERK

[Guest guest]

Hi everyone

Just got my blood results again. Don't know what the hell is going on in my

body. Its gone beserk:

FT4 19.8 (10-25)

FT3 4.5 (2.5-6.0)

TSH 0.88 (.35-5.0)

TSI - retested and is 74. It was the same as way back in August when my FT4

was 37.

I've been on 1/4 neomercazole for 1 month now.

If you look at the previous bloods on October 29, my FT4 was only 11.

Should I go back on 1/2 neomercazole to stop the FT4 from rising???

H e l p!!!!

Please excuse me, but I'm a drama queen!

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

>

>

> Hi ,

>

> I'd drop to 5 mg. immediately, as suggested. Your numbers are

awfully

hypo.

> I suspect you'll end up dropping to 2.5 mg. a day within a week,

but I

> wouldn't go lower than that without giving your body time to

adjust.

You

> could also try to schedule a TSI for those next labs, if you

haven't

had one

> in a while--antibody levels are a great predictor of remission.

You may

want

> to talk to your endo about testing for hashimotos as well. I've

never

been

> there--so don't have any answers on that one, but your lab

numbers make

me

> suspicious.

>

> I find at this point that 2.5 mg. a day is about right for me. If

I

edge

> lower I notice a few symptoms. More and I'm miserably sluggish in

every

way.

> I'm resigned to staying here long-term. But, I never, ever in my

wildest

> imagination could conceive of having numbers like yours. I stay

at the

top

> of normal range for FT4 and FT3, and my TSH hasn't gone about

about .25

> ever. So I have a totally different experience.

>

[Guest guest]

Hi ,

Your results seem absolutely wonderful. Your FT4 is fine! Your TSH is even

in range. Not sure what you're worried about, unless for some reason you're

not feeling good. But I'd say your levels are stabilizing and

normalizing--not the opposite.

Terry

>

> Reply-To: graves_support

> Date: Wed, 19 Nov 2003 10:19:51 +1100

> To: <graves_support >

> Subject: Re: Sittin on the fence: GONE BESERK

>

> Hi everyone

>

> Just got my blood results again. Don't know what the hell is going on in my

> body. Its gone beserk:

>

> FT4 19.8 (10-25)

> FT3 4.5 (2.5-6.0)

> TSH 0.88 (.35-5.0)

>

> TSI - retested and is 74. It was the same as way back in August when my FT4

> was 37.

>

> I've been on 1/4 neomercazole for 1 month now.

>

> If you look at the previous bloods on October 29, my FT4 was only 11.

>

> Should I go back on 1/2 neomercazole to stop the FT4 from rising???

>

> H e l p!!!!

>

> Please excuse me, but I'm a drama queen!

> =============================

> on

> liz.jameson@...

> Re: Sittin on the fence: TOO LOW now!

>>

>>

>> Hi ,

>>

>> I'd drop to 5 mg. immediately, as suggested. Your numbers are

> awfully

> hypo.

>> I suspect you'll end up dropping to 2.5 mg. a day within a week,

> but I

>> wouldn't go lower than that without giving your body time to

> adjust.

> You

>> could also try to schedule a TSI for those next labs, if you

> haven't

> had one

>> in a while--antibody levels are a great predictor of remission.

> You may

> want

>> to talk to your endo about testing for hashimotos as well. I've

> never

> been

>> there--so don't have any answers on that one, but your lab

> numbers make

> me

>> suspicious.

>>

>> I find at this point that 2.5 mg. a day is about right for me. If

> I

> edge

>> lower I notice a few symptoms. More and I'm miserably sluggish in

> every

> way.

>> I'm resigned to staying here long-term. But, I never, ever in my

> wildest

>> imagination could conceive of having numbers like yours. I stay

> at the

> top

>> of normal range for FT4 and FT3, and my TSH hasn't gone about

> about .25

>> ever. So I have a totally different experience.

>>

>

>

>

>

>

>

>

[Guest guest]

I agree. If it ain't broke...

At 07:45 PM 11/18/2003, you wrote:

>Hi ,

>

>Your results seem absolutely wonderful. Your FT4 is fine! Your TSH is even

>in range. Not sure what you're worried about, unless for some reason you're

>not feeling good. But I'd say your levels are stabilizing and

>normalizing--not the opposite.

>

>Terry

[Guest guest]

Hi

The TSH is supposed to be 0.08 not 0.88. I wrote it down wrong from my phone

message.

Spoke to the Endo and he said to up the neomercazole from 1/4 a tablet a day to

1/2 tablet a day.

I'm just a little spooked how it stayed stable (though low) for so long and then

it jumped up so quickly from 11 to 19 and the TSH dropped to suddently from 3.88

to 0.08 in such a short time.

Can you review the results with the 0.08 TSH.

Many thanks and cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: GONE BESERK

I agree. If it ain't broke...

At 07:45 PM 11/18/2003, you wrote:

>Hi ,

>

>Your results seem absolutely wonderful. Your FT4 is fine! Your TSH is even

>in range. Not sure what you're worried about, unless for some reason you're

>not feeling good. But I'd say your levels are stabilizing and

>normalizing--not the opposite.

>

>Terry

[Guest guest]

Terry

You won't believe this but I just sent a reply to your email to . This

is what happens when I panic about these results.

I made a mistake in taking down the TSH from the answering machine. The TSH is

0.08 which is not in range at all.

Can you tell what's going on now?

My endo has told me to up my dose of neomercazole by half. I'm on a 1/4 of 5mg

and so that will mean 1/2 5mg pill per day.

Can't believe what happened to my TSH AND FT4. It seemed stable, though low and

then POOF - off it all went!!

What do u think of the TSH now............ooh la la!

Many thanks

Cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

>>

>>

>> Hi ,

>>

>> I'd drop to 5 mg. immediately, as suggested. Your numbers are

> awfully

> hypo.

>> I suspect you'll end up dropping to 2.5 mg. a day within a week,

> but I

>> wouldn't go lower than that without giving your body time to

> adjust.

> You

>> could also try to schedule a TSI for those next labs, if you

> haven't

> had one

>> in a while--antibody levels are a great predictor of remission.

> You may

> want

>> to talk to your endo about testing for hashimotos as well. I've

> never

> been

>> there--so don't have any answers on that one, but your lab

> numbers make

> me

>> suspicious.

>>

>> I find at this point that 2.5 mg. a day is about right for me. If

> I

> edge

>> lower I notice a few symptoms. More and I'm miserably sluggish in

> every

> way.

>> I'm resigned to staying here long-term. But, I never, ever in my

> wildest

>> imagination could conceive of having numbers like yours. I stay

> at the

> top

>> of normal range for FT4 and FT3, and my TSH hasn't gone about

> about .25

>> ever. So I have a totally different experience.

>>

>

>

>

>

>

>

>

[Guest guest]

,

This is the place where we use our own judgement. I would be less concerned

about the TSH--TSH is not a good guide for determining ATD dosage, given

the presence of TSI. If you were above 3, then you were overmedicated. That

happened to me, when my TSH shot up to 5.27. Then, promptly after I

decreased my dose, the TSH plummeted. I lost 1/3 of my hair during that

roller coaster ride.

Your FT4 was towards the low end. Right now, it is looking better (most

people find it best if the FT4 is in the middle to high end of normal). How

do you feel? If you feel all right, then perhaps you should get re-tested

in 2-3 weeks, just to reassure yourself. You can always increase if you are

going too high. But if you feel it better to increase now, then you can try

it and probably ask for labs in 2-3 weeks to see how you're doing. I would

wait and see if I was feeling good and my pulse was normal.

At 01:28 AM 11/19/2003, you wrote:

>Hi

>

>The TSH is supposed to be 0.08 not 0.88. I wrote it down wrong from my

>phone message.

[Guest guest]

Hi ,

Well, your dose explains it all--in my experience, anyway, going below 1/2

of a 5 mg. pill a day I go hyper. Simple as that! I think the minimum

effective dose must simply be 1/2 pill a day. It take mine split into 2

quarters, morning and evening. I finally figured it out, that my body was

simply not ready to go into remission, and that I needed to stay at the 2.5

mg. a day dose forever probably. I go to the endo Friday, will have my labs

done tomorrow so I'll see what's up. I went a bit hyper a month ago, I think

I was simply not cutting the pills carefully enough, and got smallish

quarters a few too many times in a row. I'm more careful now, and I also, on

the occasional day that I feel a bit hyper, take another crumb of a quarter

mid-afternoon. There are a lot of crumbs, the Tap pills I have don't cut

well even with a single edged razor blade.

Hope this helps!

Terry

>

> Reply-To: graves_support

> Date: Wed, 19 Nov 2003 17:36:32 +1100

> To: <graves_support >

> Subject: Re: Sittin on the fence: GONE BESERK

>

> Terry

>

> You won't believe this but I just sent a reply to your email to . This

> is what happens when I panic about these results.

>

> I made a mistake in taking down the TSH from the answering machine. The TSH

> is 0.08 which is not in range at all.

>

> Can you tell what's going on now?

>

> My endo has told me to up my dose of neomercazole by half. I'm on a 1/4 of

> 5mg and so that will mean 1/2 5mg pill per day.

>

> Can't believe what happened to my TSH AND FT4. It seemed stable, though low

> and then POOF - off it all went!!

>

> What do u think of the TSH now............ooh la la!

>

> Many thanks

> Cheers

>

>

> =============================

> on

> liz.jameson@...

> Re: Sittin on the fence: TOO LOW now!

>>>

>>>

>>> Hi ,

>>>

>>> I'd drop to 5 mg. immediately, as suggested. Your numbers are

>> awfully

>> hypo.

>>> I suspect you'll end up dropping to 2.5 mg. a day within a week,

>> but I

>>> wouldn't go lower than that without giving your body time to

>> adjust.

>> You

>>> could also try to schedule a TSI for those next labs, if you

>> haven't

>> had one

>>> in a while--antibody levels are a great predictor of remission.

>> You may

>> want

>>> to talk to your endo about testing for hashimotos as well. I've

>> never

>> been

>>> there--so don't have any answers on that one, but your lab

>> numbers make

>> me

>>> suspicious.

>>>

>>> I find at this point that 2.5 mg. a day is about right for me. If

>> I

>> edge

>>> lower I notice a few symptoms. More and I'm miserably sluggish in

>> every

>> way.

>>> I'm resigned to staying here long-term. But, I never, ever in my

>> wildest

>>> imagination could conceive of having numbers like yours. I stay

>> at the

>> top

>>> of normal range for FT4 and FT3, and my TSH hasn't gone about

>> about .25

>>> ever. So I have a totally different experience.

>>>

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

> My endo has told me to up my dose of neomercazole by half. I'm on a 1/4

of 5mg and so that will mean 1/2 5mg pill per day.

Hi, ,

If your endo said to increase " by half " , that would mean the 1/4 you're on,

plus an additional 1/8th (!!) - what you're already on, plus one half again

as much. If you add another 1/4, you're doubling, not increasing by half.

Of course, others here are probably right anyway that you'll have to

increase by more than that.

-Jill

[Guest guest]

Hi

Thanks for last post. It was a welcome relief. I do admit that I have been

doiing a little panicking. I've never been in this place before.

Symptoms: My pulse is 67. I have been experiencing the worst sweating during

my waking phases in the night only over the last 2 weeks. During the day I have

sweats but not as bad. My weight is the same.

I don't think they are hormonal either. I'm guessing they are thyroid related.

Other than that, I feel myself.

Medication: I will double the dose of nemercazole (because of the sweating)

i.e. 2.5mg per day and ask for a blood test in a little less than 2 weeks.

Question: If T4 is just over normal top end, I presume dosing is adding a

quarter at a time? My worry is that my thyroid might take off again and I will

be back in la la land and cant think for myself!

My Endo: I have to keep reminding myself how useless these people are yet

again! That we have to keep watching the buggers all the time! I had my blood

test a week ago. I've been sittin here waiting for someone to ring me to tell

me that my thyroid is heading north. But no one ever rings! We have to be ever

vigilant! We must take the initiative and do most of the work of finding out

results constantly. My endo is a very personable man, but he's juggling too

many balls - teaching, conferences, trips overseas patients. You never know how

focussed he is on your health when you talk to him.

He is heading to Asia for a conference next week and will let me know whats new

in Chinesse herbal land. He has been overseas practically all the time I have

had my thyroid problem. So as you can tell " I'm lonesome " . Thank God for you

guys.

Cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: GONE BESERK

,

This is the place where we use our own judgement. I would be less concerned

about the TSH--TSH is not a good guide for determining ATD dosage, given

the presence of TSI. If you were above 3, then you were overmedicated. That

happened to me, when my TSH shot up to 5.27. Then, promptly after I

decreased my dose, the TSH plummeted. I lost 1/3 of my hair during that

roller coaster ride.

Your FT4 was towards the low end. Right now, it is looking better (most

people find it best if the FT4 is in the middle to high end of normal). How

do you feel? If you feel all right, then perhaps you should get re-tested

in 2-3 weeks, just to reassure yourself. You can always increase if you are

going too high. But if you feel it better to increase now, then you can try

it and probably ask for labs in 2-3 weeks to see how you're doing. I would

wait and see if I was feeling good and my pulse was normal.

At 01:28 AM 11/19/2003, you wrote:

>Hi

>

>The TSH is supposed to be 0.08 not 0.88. I wrote it down wrong from my

>phone message.

[Guest guest]

Hi Terry

Your story sounds like mine. I sat there one night slicing up all my pills wth

a razer too. When it came to taking my dose of 1.4 and I spilled the

ramshackled quarters into my palm, I always scramble for the extra crumbs

thinking I hadnt had enough for that day.

Cheers

=============================

on

liz.jameson@...

Re: Sittin on the fence: TOO LOW now!

>>>

>>>

>>> Hi ,

>>>

>>> I'd drop to 5 mg. immediately, as suggested. Your numbers are

>> awfully

>> hypo.

>>> I suspect you'll end up dropping to 2.5 mg. a day within a week,

>> but I

>>> wouldn't go lower than that without giving your body time to

>> adjust.

>> You

>>> could also try to schedule a TSI for those next labs, if you

>> haven't

>> had one

>>> in a while--antibody levels are a great predictor of remission.

>> You may

>> want

>>> to talk to your endo about testing for hashimotos as well. I've

>> never

>> been

>>> there--so don't have any answers on that one, but your lab

>> numbers make

>> me

>>> suspicious.

>>>

>>> I find at this point that 2.5 mg. a day is about right for me. If

>> I

>> edge

>>> lower I notice a few symptoms. More and I'm miserably sluggish in

>> every

>> way.

>>> I'm resigned to staying here long-term. But, I never, ever in my

>> wildest

>>> imagination could conceive of having numbers like yours. I stay

>> at the

>> top

>>> of normal range for FT4 and FT3, and my TSH hasn't gone about

>> about .25

>>> ever. So I have a totally different experience.

>>>

>>

>>

>>

>>

>>

>>

>>