Guest guest Posted July 6, 2001 Report Share Posted July 6, 2001 Someone who sees Dr. Holmes please feel free to correct me if I am wrong, but I had heard some time back that her son was able to go off the diet after extensive chealation and remains off the diet today. We discuss chealation on here every day, we are now discussing mattresses as a form of poisoning, and we discuss all kinds of other treatments. My point is that it has been through extensive research on the Internet that I have found every treatment that has helped my daughter to recover and I personally do NOT want any treatment option blocked from discussion in any way. We do need to all remember that there are new people on here every day and that for those of that the diet has had such a tremendous impact we really need to emphasize the 100% thing. But we also need to be aware that not everyone is going to stick with the diet, and for some it does not even help. If those people find another option that works better for them here than this is good. I personally have ordered 3 different kinds of enzymes and have found one I am thrilled with! Enzymes were recommended to us early on, of course we still stuck with the diet. But my daughter is almost 8 and she has been sneaking every chance she gets for the last couple of months! We were on a downward spiral there for a while, then we started this new enzyme and although we can still tell when she gets ahold of something it is not near as bad a reaction and does not last nearly as long. For us this is a huge relief, and how did I find out about this enzyme? Here on this board! I personally do not recommend going off the diet for any reason but do hold out hope that either through chealation like Dr. Holmes son, or some other means that this diet will not require a life long commitment! I personally have to remain open minded about all options for my child's sake. ) > I have been GFCF for almost 4 years now, and those who have read my posts > know my son has responsed very, very well. He is not autistic by any means, > then for a while I wondered about ADHD. He is definitely not ADHD, > according to his Dr, who says I should look at him as a normal little boy. > On his worst day, he may seem nervous or whiny, but that is about the worst > of it now. He will be 8 in October and still has a little bit of fine motor > discoordination and gross motor clumsiness. We bought a house with a pool > this summer, he learned to swim and that has helped with his gross motor > skills a lot. I homeschool him and his brother(, age 12, NT even > gifted). I have been a bit relaxed with the handwriting issues, but plan to > work with him extensively this next school year. I think he will be ready > by then. Anyway, I just wanted to say that I feel we should be able to > discuss enzymes, unless it seems someone is plugging an organization, > doctor, whatever. That seemed the case to me a few weeks ago. It is > possible that an enzyme type product, as they become more advanced, might be > something that could help our lives be a bit more normal. I would never > recommend that anyone starting this diet not go 100%. I believe that is > what saved 's life, but I may start trying enzymes like once a month > or so for an occasional outing. I am not recommending this. When > has an occasional slip-up, which isn't very often, it does not seem to > affect him like it used to. I just would like to hear about enzymes on this > message board because I feel it important to keep informed of any new > possible help/treatment and how it does/does not help. It is fairly easy to > see when someone is plugging something though, and that should not be > allowed....This is all just my opinion...Thanks for listening... > > Smiles, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Hi friends, I think Jan's last post hits the nail on the head: > <<But with enzymes (and with other topics at times) I see very similar > messages, often reading like promos although not always, appearing on > multiple boards related to autism at about the same time and often > being repeated over and over again with minor variations. Ad nauseum. >> > > We are keeping an open mind here as far as the enzyme options go for now, not ready to commit yet due to costs involved. One of our dear friends is trying this for her son and having spectacular results, so I am encouraged. But, yes, it seems to be true that all posts regarding enzymes from one person in particular do seem to smack of ad copy. And yes, these posts do read like promos most of the time, and they are all over the autism boards to the point of being very annoying (to myself, at least). I don't mind reading the occasional enzyme message. I can just hit delete when I want to skip over something. Perhaps the list moderators could append their welcome files to reference the enzymesandautism list so the need for repetitive posts would be less? Or perhaps the person who posts the messages would consider a once-a-week " reminder " post which could serve to direct those interested in the enzyme intervention to the other list? That way the newbies would be aware of the issue . . . yet those listers who do not wish to be bombarded with enzyme messages/debates wouldn't have to be? Just some suggestions. This list has truly been our saving grace with our son, and continues to be the best source of info on the GFCF diet regimen anywhere! -BJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2001 Report Share Posted July 7, 2001 Amen to that. I agree with your post BJ and hope the moderators are viewing the messages. Sharon Quote Link to comment Share on other sites More sharing options...
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