A view on medical treatment of Graves and this group

[Guest guest]

In a message dated 11/19/2003 1:30:33 PM Eastern Standard Time,

msolomonchik@... writes:

Don't ask me not to discuss or have an opinion on RAI, however, as I have a

strong and well-researched one.

very best wishes and hope for all

M. Solomon

If you'd like to email me privately, I'd like to know why RAI isn't a good

choice of treatment. I've been told it can effect nerves in the eye, and for

patients with eye problems from GD, it's not a good choice, but what if you

don't have eye problems?

I went for a radiation treatment back in August and never felt anything from

it. Since I had stopped taking my PTU before as requested, I didn't start to

take the PTU afterwards, and it's why my levels are out of wack again.

I want my thyroid to be " normal " again so I can have some surgery in the

future, and I want to feel better too. What else can I do? My Dr says I may have

to have another radiation treatment in a few months if I don't improve.

Sincerely,

Elise**

[Guest guest]

To the moderator:

Thank you so much for your service to us. I have been on this wonderful and

helpful grouplist for 3 years now.

The reason many of us get " emotional " when RAI is discussed is we have been

put through literal hell with it being forced upon us as a cure, when it is

presented as the " only thing " and the the huge potential down side is

ignored. This is one of the only places in the *world* where this truth is

explored and discussed.This treatment is not done as a matter of course in

Europe and Japan and thus there are less people with eye disease and

permanent hypo as a result. RAI as practiced curently in North AMerica is an

imperfect and hastily rushed into treatment at best. Many people I know who

have had surgery even, do better than post RAI patients in the long term,

taking overallhealth into account. Elaine has explained why many times.

I look at this current Medical Establishment Graves treatment situation as

analagous to the maternity ward in the fifties where women were on an

assmemly-line of no-choice-anesthetic, one-siz-e-fits-all delivery and no

fatherly participation. Also Overuse of C-Sections. This only changed

through discussikon and agitation, and the system and its doctors, etc. were

dragged into the next century quite unwillingly. However, humane and

educated childbirth has become standard practice.

I will always be civil to everyone, and ignore trollers. I am sympathetic

as can be with those who have had good faith in the prevailing mode of hasty

permanent treatment and now find themselves feeling unwell, TED and other

eye-disease ridden, bloated, exhausted and under-treated post RAI. Then they

are told to shape up and seen once a year without being given the proper

replacement. This scenario is repeated again and again and is only going to

be fixed and amelitorated when the light of knowledge and experience shine

on the whole prevailing system, and alternatives, such as intelligent

long-tem use of ATD's, etc, are made known and patients are empowered. Just

like I was by the existence of this wonderful group. Many of us (not me)

*are *post RAI and have found life-altering and valuable information from

this group.

Don't ask me not to discuss or have an opinion on RAI, however, as I have a

strong and well-researched one.

very best wishes and hope for all

M. Solomon

_________________________________________________________________

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[Guest guest]

I have a

> strong and well-researched one.

> very best wishes and hope for all

> M. Solomon

i would like to receive your well researched information as well.

email me at leon_lz@... please.

Much appreciated.

Liang

> To the moderator:

>

> Thank you so much for your service to us. I have been on this

wonderful and

> helpful grouplist for 3 years now.

>

> The reason many of us get " emotional " when RAI is discussed is we

have been

> put through literal hell with it being forced upon us as a cure,

when it is

> presented as the " only thing " and the the huge potential down side

is

> ignored. This is one of the only places in the *world* where this

truth is

> explored and discussed.This treatment is not done as a matter of

course in

> Europe and Japan and thus there are less people with eye disease

and

> permanent hypo as a result. RAI as practiced curently in North

AMerica is an

> imperfect and hastily rushed into treatment at best. Many people I

know who

> have had surgery even, do better than post RAI patients in the

long term,

> taking overallhealth into account. Elaine has explained why many

times.

>

> I look at this current Medical Establishment Graves treatment

situation as

> analagous to the maternity ward in the fifties where women were on

an

> assmemly-line of no-choice-anesthetic, one-siz-e-fits-all delivery

and no

> fatherly participation. Also Overuse of C-Sections. This only

changed

> through discussikon and agitation, and the system and its doctors,

etc. were

> dragged into the next century quite unwillingly. However, humane

and

> educated childbirth has become standard practice.

>

> I will always be civil to everyone, and ignore trollers. I am

sympathetic

> as can be with those who have had good faith in the prevailing

mode of hasty

> permanent treatment and now find themselves feeling unwell, TED

and other

> eye-disease ridden, bloated, exhausted and under-treated post RAI.

Then they

> are told to shape up and seen once a year without being given the

proper

> replacement. This scenario is repeated again and again and is only

going to

> be fixed and amelitorated when the light of knowledge and

experience shine

> on the whole prevailing system, and alternatives, such as

intelligent

> long-tem use of ATD's, etc, are made known and patients are

empowered. Just

> like I was by the existence of this wonderful group. Many of us

(not me)

> *are *post RAI and have found life-altering and valuable

information from

> this group.

>

> Don't ask me not to discuss or have an opinion on RAI, however, as

I have a

> strong and well-researched one.

> very best wishes and hope for all

> M. Solomon

>

> _________________________________________________________________

> Add photos to your e-mail with MSN 8. Get 2 months FREE*.

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