Re: Thinking about going GFCF

[Guest guest]

Casein and gluten can be listed by other names. If your milk and

cheese comes from a cow it has casein in it and casein is not the

only thing in milk that can be an issue in our kids. The best shot at

results on this diet is rotation of whole foods, little or no

packages, no artificials and an eye toward keeping starches and

sugars on the low end. It stinks at first but early on you will know

if it is for you and your child. Soy is not a great substitute,

filled with estrogen and other nonsense not great for our kids. Rice

milk is constipating and has no nutritional value per our GI. The

diet, if done right and if you replace all necessary vitamins and

minerals, can help you spot other problematic foods.

Currently the FDA allows the packaged food that claims to be GFCF to

have up to 2% of the offending items in it. That is due to change in

either 2009, or 2011 but I doubt the labeling will be much easier to

figure out as there willlikely still be euphemisms for what we are

avoiding or trying to.

Special Diets for Special Kids and GFCF for Dummies may help you.

I would encourage you to try a diet. The reason is simple: it is a

good way to find allergens that are not easily found by the tests and

it may help you prevent your child from growing into a harsher

diagnosis if nothing else. I started the dietary journey as someone

who did not like to eat or cook. It is a pain, I am still not good at

it, but we are better off in the end.

>

> We've been toying with the idea of going CF and maybe GFCF but not

sure how

> it would impact us, if at all. I love to research things before

jumping in

> and failing because I don't know what I don't know. So, are any of

you or

> your families CF or GFCF?I did a quick glance through our pantry

and fridge

> and see almost nothing that has casein in it, including our milk

and cheese.

> Am I missing something when I am looking at the ingredients list?

Without

> spending money for a 'packet', are there any online resources that

list

> hints and food guides for someone who is just looking into it. We

keep

> hearing that CF or GFCF is great for kids with autism symptoms and

Trysten

> has severe Apraxia which can exhibit similar symptoms to autism, at

least

> from what we see with him. He's been tested for Aspergers and so

far no

> diagnose for it.

>

> | TTFN,

> | Angi

> | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | http://www.timandangi.com http://www.designsbyangi.com

> | http://www.cierragroup.com http://www.lelahosting.com

> | YIM: amboutwe AIM: amboutwe22

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | My wish, for you, is that this life becomes all that you want it

to,

> | your dreams stay big, your worries stay small,

> | You never need to carry more than you can hold,

> | and while you're out there getting where you're getting to,

> | I hope you know somebody loves you, and wants the same things too,

> | Yeah, this, is my wish.

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

>

>

>

[Guest guest]

_http://web.mit.edu/kevles/www/nomilk.html#badingredients_

(http://web.mit.edu/kevles/www/nomilk.html#badingredients) is a link to the

different ways

casein can be found in foods . . .

The best place for a beginner to GFCF is _www.gfcfdiet.com_

(http://www.gfcfdiet.com) and there is also a great but busy group

called GFCFKids that

you might want to join.

Also try to find a local parent mentor at _www.autismndi.com_

(http://www.autismndi.com) as you begin the diet.

-BJ

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

How do you start this diet journey? We don't eat many prepackaged box foods

but we do use prepackaged . We used to be boxed food central but my mother

in law moved in with us and she does the cooking. Most of the stuff we cook,

is semi-homemade now. Does going GFCF mean making everything from scratch

and never buying prepackaged stuff. Are there prepackaged stuff that is safe

and a sorta middle line between all prepackaged and no prepackaged that we

could do? This is why I am researching it so I can find a good balance.

On Jan 8, 2008 11:37 AM, ilizzy03 <lizlaw@...> wrote:

> I would encourage you to try a diet. The reason is simple: it is a

> good way to find allergens that are not easily found by the tests and

> it may help you prevent your child from growing into a harsher

> diagnosis if nothing else. I started the dietary journey as someone

> who did not like to eat or cook. It is a pain, I am still not good at

> it, but we are better off in the end.

>

| TTFN,

| Angi

| Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -

| http://www.timandangi.com http://www.designsbyangi.com

| http://www.cierragroup.com http://www.lelahosting.com

| YIM: amboutwe AIM: amboutwe22

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -

| My wish, for you, is that this life becomes all that you want it to,

| your dreams stay big, your worries stay small,

| You never need to carry more than you can hold,

| and while you're out there getting where you're getting to,

| I hope you know somebody loves you, and wants the same things too,

| Yeah, this, is my wish.

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -

[Guest guest]

I can only tell you our experience:

We have found the GFCF flours from bobs red mill to be the base for a

lot of stuff. In the beginning I looked up food sources for every

vitamin and mineral and snick those things in pancakes and meatloaf.

Those two items were our staples. We have a fluoride issue so we

changed cookware and while we used some packaged stuff, potato chips,

gfcf pretzels, mostly don't except special occasions. Chips are not

great for healing guts and the soy in those delicious gfcf sans

gluten pretzels did not work well for us. Chocolate seemed to be an

issue but we still have it from time to time. GFCF mixes have

aluminum in them (some). We use the Whole foods white cake mix in a

pinch and cook on medium heat on stove and not above 270 degrees in

the oven with coconut oil which has been good to us. It is a pain but

the changes in my child make it worth every bit.

>

> > I would encourage you to try a diet. The reason is simple: it is a

> > good way to find allergens that are not easily found by the tests

and

> > it may help you prevent your child from growing into a harsher

> > diagnosis if nothing else. I started the dietary journey as

someone

> > who did not like to eat or cook. It is a pain, I am still not

good at

> > it, but we are better off in the end.

> >

>

> | TTFN,

> | Angi

> | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | http://www.timandangi.com http://www.designsbyangi.com

> | http://www.cierragroup.com http://www.lelahosting.com

> | YIM: amboutwe AIM: amboutwe22

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | My wish, for you, is that this life becomes all that you want it

to,

> | your dreams stay big, your worries stay small,

> | You never need to carry more than you can hold,

> | and while you're out there getting where you're getting to,

> | I hope you know somebody loves you, and wants the same things too,

> | Yeah, this, is my wish.

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

>

>

>

[Guest guest]

Hi Angi:

Here is the link to the link section for this group. There is a

folder for GFCF filled with links for you to browse through and

provide you with more information.

/links

special diets to check for allergens--here is a link that talks about

allergies and elmination diet.

http://borntoexplore.org/allergies.htm

Here is another link that you might be interested in reading about

allergies and behavior-

http://addadhdadvances.com/foodallergy1.html

Hope one of these links are helpful-

Tina

>

> > I would encourage you to try a diet. The reason is simple: it is a

> > good way to find allergens that are not easily found by the tests

and

> > it may help you prevent your child from growing into a harsher

> > diagnosis if nothing else. I started the dietary journey as

someone

> > who did not like to eat or cook. It is a pain, I am still not

good at

> > it, but we are better off in the end.

> >

>

> | TTFN,

> | Angi

> | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | http://www.timandangi.com http://www.designsbyangi.com

> | http://www.cierragroup.com http://www.lelahosting.com

> | YIM: amboutwe AIM: amboutwe22

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | My wish, for you, is that this life becomes all that you want it

to,

> | your dreams stay big, your worries stay small,

> | You never need to carry more than you can hold,

> | and while you're out there getting where you're getting to,

> | I hope you know somebody loves you, and wants the same things too,

> | Yeah, this, is my wish.

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

>

>

>

[Guest guest]

TACA has a good secton on their website for different ways to

implement this diet. You can wean down to it. It is something to

consider. It will help you rule in or out allergy and metal (along

with tests) and can be helpful with genetic stuff.

Whether you do the diet or not I sure hope you find good answers and

interventions for your child.

Also, some good places to look for nutrition info are:

Weston Price Foundation

http://www.westonaprice.org/splash_2.htm

Linus ing

http://lpi.oregonstate.edu/infocenter/

Some find raw milk to be OK.

Honestly, trial and erroe seem to be a big part of all of this,

including supplements.

>

> > I would encourage you to try a diet. The reason is simple: it is a

> > good way to find allergens that are not easily found by the tests

and

> > it may help you prevent your child from growing into a harsher

> > diagnosis if nothing else. I started the dietary journey as

someone

> > who did not like to eat or cook. It is a pain, I am still not

good at

> > it, but we are better off in the end.

> >

>

> | TTFN,

> | Angi

> | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | http://www.timandangi.com http://www.designsbyangi.com

> | http://www.cierragroup.com http://www.lelahosting.com

> | YIM: amboutwe AIM: amboutwe22

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

> | My wish, for you, is that this life becomes all that you want it

to,

> | your dreams stay big, your worries stay small,

> | You never need to carry more than you can hold,

> | and while you're out there getting where you're getting to,

> | I hope you know somebody loves you, and wants the same things too,

> | Yeah, this, is my wish.

> | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - -

> - - - - - - - - - - - - - - - - - -

>

>

>

[Guest guest]

Unrefined coconut oil. We all got sick from the refined stuff.

> >

> > > I would encourage you to try a diet. The reason is simple: it

is a

> > > good way to find allergens that are not easily found by the

tests

> and

> > > it may help you prevent your child from growing into a harsher

> > > diagnosis if nothing else. I started the dietary journey as

> someone

> > > who did not like to eat or cook. It is a pain, I am still not

> good at

> > > it, but we are better off in the end.

> > >

> >

> > | TTFN,

> > | Angi

> > | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to

Tim

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

-

> - - - -

> > - - - - - - - - - - - - - - - - - -

> > | http://www.timandangi.com http://www.designsbyangi.com

> > | http://www.cierragroup.com http://www.lelahosting.com

> > | YIM: amboutwe AIM: amboutwe22

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

-

> - - - -

> > - - - - - - - - - - - - - - - - - -

> > | My wish, for you, is that this life becomes all that you want

it

> to,

> > | your dreams stay big, your worries stay small,

> > | You never need to carry more than you can hold,

> > | and while you're out there getting where you're getting to,

> > | I hope you know somebody loves you, and wants the same things

too,

> > | Yeah, this, is my wish.

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

-

> - - - -

> > - - - - - - - - - - - - - - - - - -

> >

> >

> >

[Guest guest]

Thank you. I have bookmarked them and will look at them soon.

On Jan 8, 2008 2:54 PM, trmckenna1 <trmckenna1@...> wrote:

> Hi Angi:

> Here is the link to the link section for this group. There is a

> folder for GFCF filled with links for you to browse through and

> provide you with more information.

> /links

>

> special diets to check for allergens--here is a link that talks about

> allergies and elmination diet.

> http://borntoexplore.org/allergies.htm

>

> Here is another link that you might be interested in reading about

> allergies and behavior-

> http://addadhdadvances.com/foodallergy1.html

>

> Hope one of these links are helpful-

> Tina

>

>

>

> >

> > > I would encourage you to try a diet. The reason is simple: it is a

> > > good way to find allergens that are not easily found by the tests

> and

> > > it may help you prevent your child from growing into a harsher

> > > diagnosis if nothing else. I started the dietary journey as

> someone

> > > who did not like to eat or cook. It is a pain, I am still not

> good at

> > > it, but we are better off in the end.

> > >

> >

> > | TTFN,

> > | Angi

> > | Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

> - - - -

> > - - - - - - - - - - - - - - - - - -

> > | http://www.timandangi.com http://www.designsbyangi.com

> > | http://www.cierragroup.com http://www.lelahosting.com

> > | YIM: amboutwe AIM: amboutwe22

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

> - - - -

> > - - - - - - - - - - - - - - - - - -

> > | My wish, for you, is that this life becomes all that you want it

> to,

> > | your dreams stay big, your worries stay small,

> > | You never need to carry more than you can hold,

> > | and while you're out there getting where you're getting to,

> > | I hope you know somebody loves you, and wants the same things too,

> > | Yeah, this, is my wish.

> > | - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

> - - - -

> > - - - - - - - - - - - - - - - - - -

> >

> >

> >

[Guest guest]

Thank you I bookmarked them for review later.

I am really interested in the parent mentor thing.

On Jan 8, 2008 5:09 PM, <BJBlackler@...> wrote:

> _http://web.mit.edu/kevles/www/nomilk.html#badingredients_

> (http://web.mit.edu/kevles/www/nomilk.html#badingredients) is a link to

> the different ways

> casein can be found in foods . . .

>

> The best place for a beginner to GFCF is _www.gfcfdiet.com_

> (http://www.gfcfdiet.com) and there is also a great but busy group

> called GFCFKids that

> you might want to join.

>

> Also try to find a local parent mentor at _www.autismndi.com_

> (http://www.autismndi.com) as you begin the diet.

>

> -BJ

>

>

>

> **************Start the year off right. Easy ways to stay in shape.

> http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

>

>

>

[Guest guest]

Thank you to everyone who responded. I have a lot of resources and am now

researching to see if it would help Trysten. We're gunna do a 1-2 week trial

over spring break and see if it helps. We picked spring break because 1)

it'll be after my surgery so I can be involved and 2) Trysten won't be in

school so we can completely control his food.

On Jan 8, 2008 11:12 AM, Angi <amboutwe@...> wrote:

> We've been toying with the idea of going CF and maybe GFCF but not sure

> how it would impact us, if at all. I love to research things before jumping

> in and failing because I don't know what I don't know. So, are any of you or

> your families CF or GFCF?I did a quick glance through our pantry and fridge

> and see almost nothing that has casein in it, including our milk and cheese.

> Am I missing something when I am looking at the ingredients list? Without

> spending money for a 'packet', are there any online resources that list

> hints and food guides for someone who is just looking into it. We keep

> hearing that CF or GFCF is great for kids with autism symptoms and Trysten

> has severe Apraxia which can exhibit similar symptoms to autism, at least

> from what we see with him. He's been tested for Aspergers and so far no

> diagnose for it.

>

| TTFN,

| Angi

| Mommy to Trysten (5/03) Mommy to Devlyn (8/04) Wife to Tim

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -

| http://www.timandangi.com http://www.designsbyangi.com

| http://www.cierragroup.com http://www.lelahosting.com

| YIM: amboutwe AIM: amboutwe22

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -

| My wish, for you, is that this life becomes all that you want it to,

| your dreams stay big, your worries stay small,

| You never need to carry more than you can hold,

| and while you're out there getting where you're getting to,

| I hope you know somebody loves you, and wants the same things too,

| Yeah, this, is my wish.

| - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

- - - - - - - - - - - - - - - - - -