Re: PTU

[Guest guest]

Hi Gail

When I started taking Methimaloze (sp?) I was very itchy too. I was

warned from my endo that that might happen.

So I am sure that it is just a side effect with PTU also.

Deanna

> I'm being treated with PTU for Graves Disease. Does anyone know if

> PTU contains sulfa? I'm allergic to sulfa, and have been really

> itchy lately and was wondering if the PTU was the cause, or if its

> just part of Graves? Thanks for your help.

[Guest guest]

Thanks for your response. Can you tell me how long the itchiness

will last, I'm going nuts. I itch from head to toe.

Gail

> > I'm being treated with PTU for Graves Disease. Does anyone know

if

> > PTU contains sulfa? I'm allergic to sulfa, and have been really

> > itchy lately and was wondering if the PTU was the cause, or if

its

> > just part of Graves? Thanks for your help.

[Guest guest]

> I'm being treated with PTU for Graves Disease. Does anyone know if

> PTU contains sulfa? I'm allergic to sulfa, and have been really

> itchy lately and was wondering if the PTU was the cause, or if its

> just part of Graves? Thanks for your help.

It can be either/or. I was itchy throughout active Graves, including before

I went on PTU. I am now in remission for Graves, off of PTU again, and may

have Hashimoto's. I'm still itchy.

-Jill

[Guest guest]

Boy that's depressing. Not only feeling like crap from all the other

Graves symptoms, now I have to live with the itching too. This

disease sucks. Ha!

> > I'm being treated with PTU for Graves Disease. Does anyone know

if

> > PTU contains sulfa? I'm allergic to sulfa, and have been really

> > itchy lately and was wondering if the PTU was the cause, or if its

> > just part of Graves? Thanks for your help.

>

> It can be either/or. I was itchy throughout active Graves,

including before

> I went on PTU. I am now in remission for Graves, off of PTU again,

and may

> have Hashimoto's. I'm still itchy.

> -Jill

[Guest guest]

I don't know what my ranges are. I am with a HMO and the Endo told

me my levels are severely high (her words). I currently take 150 mg

3 times a day of PTU with 100mg Atenolol. My first blood test is on

Oct 17th. I had itching with a mild rash before I was diagnosed, but

now its only itching all over. Thanks.

Gail

> Hi Gail,

>

> Often the itching goes away after a while on the PTU. Sometimes

it's caused by being on too high a dose, however. It would help if

you posted your dosage and recent lab work, with the ranges.

Sometimes doctors don't realize they need to start decreasing your

dose.

>

> best wishes,

>

>

>

> From: gail_salcedo

> To: graves_support

> Sent: Wednesday, October 08, 2003 10:01 AM

> Subject: PTU

>

>

> I'm being treated with PTU for Graves Disease. Does anyone know if

> PTU contains sulfa? I'm allergic to sulfa, and have been really

> itchy lately and was wondering if the PTU was the cause, or if its

> just part of Graves? Thanks for your help.

>

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[Guest guest]

This coming Thurs will be 3 weeks

Gail

> Gail,

> How long have you been on the PTU ?

>

> -Pam L-

>

>

[Guest guest]

Thanks everybody for your advice. You'll be happy to know that I

started reading this group before I even saw the Endo. I told her my

first visit that I didn't want RAI. Based on everything you all

said, I will go this Friday and get my blood tested to see whats

going on.

I do wonder now if my PTU is too high, because not only am I itchy

but my legs are so weak and hurt so bad. I also have another

autoimmune disease which is Crohn's Disease (an inflammatory bowel

disease) and I worry that the Graves will trigger the Crohn's because

of the frequent bathroom visits. I hope I start feeling better soon.

Thanks again for your advice.

Gail