Re: Day 55 of GFCF - England

[Guest guest]

Hi Janet,

Be sure to start slowly with the Nystatin. Our doctor suggested a yeast free

diet for one week, followed by 1/4 dose of Nystatin for a week, then 1/2 dose

Nystatin for a week, then the full dose. In this way, you can reduce die-off

reactions. Be sure to use a probiotic also - perhaps before beginning Nystatin.

Phase it in as well.

Dr. Semon's site may have info on a yeast protocol -

www.nutritioninstitite.com - and his book is excellent. His yeast free diet is

different than some others. Most diets limit yeasty foods and simple sugars.

Nystatin has really helped my daughter! Introducing supplements slowly -

sometimes just a pinch per day for a week or two - has allowed us to get many

supplements in that others have trouble with. It appears to be easier on the

body as it detoxes.

My daughter did poorly on the super nu thera, but it wasn't the hypoallergenic

kind. Never tried the good stuff.

Good luck, K. (Illinois)

[Guest guest]

You are doing so well! It sounds like your daughter could be an early

responder...really helped by the diet. Keep us posted! WE are pretty new

to the diet, so I don't have a lot of advice for you. Take care, H,

mommy to 3.5 yrs, PDD; and 2 yrs, NT. 11 weeks gfcf

Day 55 of GFCF - England

> We started our precious daughter Nicola, who is two and a half, on the

GFCF diet 55 days ago. It

> has been very up and down process. It is very complicated to try and

understand all the information on

> food intolerances, phenols, foods that are known to cause difficulties for

affected children..etc. Plus

> she is a very picky eater and we are presently at the stage where she is

only accepting carbohydrates.

>

> Sugar and refined sugars have also presented a problem. We are just about

to commence a course of

> Nystatin, which is being supervised by the one and only doctor we have

come across so far in England who

> has been prepared to support us.

>

> The good news is that, after a truly horrendous withdrawal period of 14

days she is slowly improving... eye

> contact is the one thing that we have mainly noticed, she is not screaming

at night any more, she is doing

> one or two poohs a day (previously constipated ) we have also used

lactulose 2.5 mls to assist and on

> some days she has done three or four really big poohs! She is not jumping

up and down flapping her arms,

> giggly and then crying for no apparent reason. She used to also go upto

our bedroom and jump up and down

> in front of our bedroom wall with a hazy flowery print on the wall paper,

giggling and flapping her arms. She

> no longer does this. The red blotchy marks on her legs are clearing up

and she is beginning to follow some

> very basic instructions. Nicola is also coming in and out of the house

without major tandrums.

>

> She is still very much in a world of her own most of the time. She still

needs to stand on every drain going

> down the street she still empties toys in and out of buckets and she still

inspects toys... but we are changing lots

> of things in her physical environment to reduce these things and she is

coping well with this. She has even

> started dancing to Tom ... with eye contact!!

>

> Just reading all your messages has been so inspiring and it has really

helped to not feel so alone. Even if

> all of you do seem to be in America (any one in England doing this??).

Also is there any dads out there who

> can offer a few words of support and encouragement to my wonderful husband

who has worked so

> hard to get any response from his precious baby girl.. So far three hugs

in the past year. It does seem to be

> mums all the time and I wonder some times what the dads feel and how they

cope.

>

> Anyway we start the nystatin next week which we have some reservations

about but really believe she has

> a fungal problem (big time). We are also thinking about rotation diet

(difficult to rotate what she eats at the

> moment.. but who knows). and I am also interested in

supplements/probiotics but we will introduce these

> gradually as we did try her on a product called Super Nu thera liquid

which knocked her for six...

>

> Any advice or thoughts welcome. Thank you. Janet

>

>

>

[Guest guest]

Hi

We are a U.K. family who have been working with our little guy .

We have pursued the diet from day one,especially with his history of ear

infections and e-coli.

We have also done one year ABA but although it was good we had problems with

supervisors.

We now have him at a private normal school,he is behind in langauge but

miles ahead in reading and inteliigence.

We suppliment Priobotics and other vits such a b vits etc and now have a

good variety of foods .

There are a list if you need them e-mail me privately.

The encouragement I can give your husband is keep everything fun,alot of

sensory issues with our cjildren are related to over stimuli and our kids

can get very anxious,get down to your daughters level,Hanen is a great

way of tearching kids through there own play,simple things like copying her

will get her attention and make her feel like she is leading,a great factor

in feeling successful.

A big problem with alot of children is fear of failure and we find Harry

comes to doing things in his own time.

Once we reduced the gut roblems we had a much more contented little guy.

If you have any questions e-mqil me,we rae away for a few days,but back on

Wednesday,or alternatively give us a ring on 01484 718568 work.

Edmund Kingaton Dad to Harry and charlotte.

Re: Day 55 of GFCF - England

>You are doing so well! It sounds like your daughter could be an early

>responder...really helped by the diet. Keep us posted! WE are pretty new

>to the diet, so I don't have a lot of advice for you. Take care, H,

>mommy to 3.5 yrs, PDD; and 2 yrs, NT. 11 weeks gfcf

>

>

>

> Day 55 of GFCF - England

>

>

>> We started our precious daughter Nicola, who is two and a half, on

the

>GFCF diet 55 days ago. It

>> has been very up and down process. It is very complicated to try and

>understand all the information on

>> food intolerances, phenols, foods that are known to cause difficulties

for

>affected children..etc. Plus

>> she is a very picky eater and we are presently at the stage where she is

>only accepting carbohydrates.

>>

>> Sugar and refined sugars have also presented a problem. We are just

about

>to commence a course of

>> Nystatin, which is being supervised by the one and only doctor we have

>come across so far in England who

>> has been prepared to support us.

>>

>> The good news is that, after a truly horrendous withdrawal period of 14

>days she is slowly improving... eye

>> contact is the one thing that we have mainly noticed, she is not

screaming

>at night any more, she is doing

>> one or two poohs a day (previously constipated ) we have also used

>lactulose 2.5 mls to assist and on

>> some days she has done three or four really big poohs! She is not

jumping

>up and down flapping her arms,

>> giggly and then crying for no apparent reason. She used to also go upto

>our bedroom and jump up and down

>> in front of our bedroom wall with a hazy flowery print on the wall

paper,

>giggling and flapping her arms. She

>> no longer does this. The red blotchy marks on her legs are clearing up

>and she is beginning to follow some

>> very basic instructions. Nicola is also coming in and out of the house

>without major tandrums.

>>

>> She is still very much in a world of her own most of the time. She still

>needs to stand on every drain going

>> down the street she still empties toys in and out of buckets and she

still

>inspects toys... but we are changing lots

>> of things in her physical environment to reduce these things and she is

>coping well with this. She has even

>> started dancing to Tom ... with eye contact!!

>>

>> Just reading all your messages has been so inspiring and it has really

>helped to not feel so alone. Even if

>> all of you do seem to be in America (any one in England doing this??).

>Also is there any dads out there who

>> can offer a few words of support and encouragement to my wonderful

husband

> who has worked so

>> hard to get any response from his precious baby girl.. So far three hugs

>in the past year. It does seem to be

>> mums all the time and I wonder some times what the dads feel and how they

>cope.

>>

>> Anyway we start the nystatin next week which we have some reservations

>about but really believe she has

>> a fungal problem (big time). We are also thinking about rotation diet

>(difficult to rotate what she eats at the

>> moment.. but who knows). and I am also interested in

>supplements/probiotics but we will introduce these

>> gradually as we did try her on a product called Super Nu thera liquid

>which knocked her for six...

>>

>> Any advice or thoughts welcome. Thank you. Janet

>>

>>

>>