Should I Be Doing Something?

[Guest guest]

Hi Everyone:

was diagnosed RSS late last year by a geneticist. She was seen

by her ped at her 4 year visit last December. She was seen by an endo

in February 2004 who said come back in 6 months and we will track her

in the mean time get her blood work done and if you like contact Dr.

Harbison. She is scheduled to see her endo in NJ in December and we

are waiting for a call from Dr. H's office as to when she will be

seeing new patients. In July 2004 she was seen by her ped and they did

a physical. was 29 pounds and just under 37 inches. She has

since had her blood work done. The pediatrician office called me and

said it was normal. When the blood work was done the endo was on

vacation and is now back but has not called me about it. OK enough

finally the question: I was wondering should I be taking to

her ped's office to have them track her weight and height or no I just

wait for my next endo appointment or the next time she is at the ped's

office? The week before last we were so lucky had a few days

of eating really well. In fact, I thought one day she was going to

get sick because for her she seemed to have been eating alot. Of

course, I just let her keep going. And of course this week she's

deciding to eat the very bare minimum. Every night at dinner this

week she's getting in a third of what she usually does and then tells

me her stomach hurts.

But I just don't know if I just wait for the next appointment or

should I be taking her to the peds office for weight checks?

Thanks everyone - you are all so great and helpful.

B

[Guest guest]

I don't have answer to your question, but I wanted to ask you what

your treatment is so far. Is on GHT yet? You go to Dr

Silverman. I go to Starkman, his colleague. Dr. Starkman wants to

start GHT for my son at our next visit in Oct. I am also waiting

for Dr. H to start taking new patients to get a " consult " . Looks

like your Dr S asked you to see Dr. H. My endo gave me a different

take on it. Will let you know by e-mail, privately. Why do you

have to wait until Dec to meet your endo?

-Malathi

> Hi Everyone:

>

> was diagnosed RSS late last year by a geneticist. She was

seen

> by her ped at her 4 year visit last December. She was seen by an

endo

> in February 2004 who said come back in 6 months and we will track

her

> in the mean time get her blood work done and if you like contact

Dr.

> Harbison. She is scheduled to see her endo in NJ in December and we

> are waiting for a call from Dr. H's office as to when she will be

> seeing new patients. In July 2004 she was seen by her ped and they

did

> a physical. was 29 pounds and just under 37 inches. She

has

> since had her blood work done. The pediatrician office called me

and

> said it was normal. When the blood work was done the endo was on

> vacation and is now back but has not called me about it. OK enough

> finally the question: I was wondering should I be taking to

> her ped's office to have them track her weight and height or no I

just

> wait for my next endo appointment or the next time she is at the

ped's

> office? The week before last we were so lucky had a few

days

> of eating really well. In fact, I thought one day she was going to

> get sick because for her she seemed to have been eating alot. Of

> course, I just let her keep going. And of course this week she's

> deciding to eat the very bare minimum. Every night at dinner this

> week she's getting in a third of what she usually does and then

tells

> me her stomach hurts.

>

> But I just don't know if I just wait for the next appointment or

> should I be taking her to the peds office for weight checks?

>

> Thanks everyone - you are all so great and helpful.

>

> B