Re: Re: Height & Things

[Guest guest]

Okay Sharon What happened on your trip downtown???

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

Oh yeah.. I wish I could have that kinda nerve sometimes.. The closest I got

was when a man asked me how old Liam was (he was 1 at the time) and i said

12 months.. He said " are you sure? "

My reply was, " When I got him at the pound 9 months ago they said he was 3

months old.. So yeah, I'm sure " ...

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

<<What did he say?>.

Nothing he just looked at me shook his head and walked away..

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

We had an experience like this at the convention. Adam (my RSS 11 1/2 year

old) saw a baby in a stroller asleep. She had a mask on her face (for

oxygen) and my son was very interested as to why she had the mask etc. So

instead of us sitting there, staring and talking about it, I encouraged him

to go over and ask about it. He did and I think the mom (she was talking to

another mom but I didn't get either name) was a little taken back at first

and slightly protective of his questions. He came back to me and said yes it

was for oxygen. My automatic response was to ask him " did you say thank you

for explaining it to you? " and by the look on his face I knew he hadn't and

he immediately returned and said thank you. This time the mom seemed to be

more OK with his questions and proceeded to explain the beeping machine. The

little girl stirred then and her mask came off and Adam was very concerned

but the mom explained the machine would beep loudly if she wasn't getting

enough oxygen.

I think because Adam has to deal with questions/stares etc. due to his size

that I try to encourage him and teach and model for him the proper way to

" look " (if you know what I mean) when you see someone else who has things

different from ourselves. I guess I just hope that if he is always kind and

considerate others will be to him as well.

Debby

Re: Height & Things

> I think it is funny how different people are. My daughter was

> diagnosed SGA but my son, now 4.5, had pretty bad hypotonia and used

> a walker until he could walk on his own at 26 months and didn't crawl

> until age 23 months (he was a roller - did I see you were too in an

> earlier post?). People were never sure if they could look or not

> look, ask or not ask, and I think that comes from not knowing how

> people react. The first day he had his walker at daycare we were

> going down the hall, which as usual, was filled with parents waitng

> for the preschool. I think they were used to seeing walking

> holding both my hands so they wer almost silent! But, as soon as I

> called out that he didn't have a permit yet so BE CAREFUL! everyone

> laughed and it was okay. I think they felt like I gave them

> permission to look and acknowledge.

>

> My cousin was severely burned as a child but was a cheerleader in

> high school which exposed the large burn scar coverning half her

> leg. She always wanted people to ask rather than have the burn catch

> their eye and have them look away, uneasy. I tried to adopt that

> policy with my son and daughter and always was very open to anyone

> around so that they could learn.

>

> However, I try to be very sensitive to others because some

> people/parents react different with strangers comments or a simple

> hello. My son was enrolled in a special phys ed program on Saturdays

> at a nearby college and a woman had never told her daughter, age 12!,

> that she had cerebral palsy and that is why she was different. She

> was congnitive and probably just at a 10 year old comprehensive, way

> old (in my opinion) to not be told why she was different!

>

> But such is life. I would hate to be the one always stared at

> (although I am only 5'1 " I do have 5 " on you!!!!) so I hope

> Emerence can develop a good sense of humor. I think her brother will

> take it harder! He was watching Snow White and the 7 Dwarfs today

> and I was explaining to him how Emerence might not grow very big and

> he started to cry!! I told him she would be alright but just little

> probably. Oh, the poor kid sobbed for 5 minutes saying he wanted her

> to be big and strong.

>

> Just so you remember my daughter was the little one (okay, I guess I

> better be more specific here !) with the bob that kept running around

> the room and laughing with Kim.

>

>

>

>

>

>

> > > Okay Sharon What happened on your trip downtown???

> > >

> > > Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

> > > SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

> > > and Jed (11 years old) Tourettes, CAPD,SVT.

> > > SW Orlando FL

> > > **Push for Bush 'cause Kerry is scary**

> > > Check out my group:

> > > http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?

> > yguid=174302728

>

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