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Hi all,

First, thanks for all the ideas regarding getting Becca to take

medicine. Last night we tried a different brand and flavor and that

seemed to do the trick (let's hope it lasts).

A funny story...

When we saw Dr H last week she was very upset that (RSS age 4

1/2) was not potty trained. We had been trying off and on and

getting nowhere so we had given up.

After the appointment we decided to start trying again. So, off

with the pull-ups and on with the underwear. Well, really was

not into this. He would get upset if he wet himself, but wouldn't

try for the potty unless he was in the mood for M & M's (our standard

potty bribe - I don't know, it worked with his sister lol). Anway,

the children are home right now between camp and school. Steve was

home with them yesterday. Steve and are both two stubborn

individuals.

After peed in his underwear and laughed about it, he

discovered a new order in life. Where mommy says " if you use the

potty you get a reward, " daddy says, " if you don't use the potty you

go in your bed. " Well, after spending half the day in his bed, and

taking a long nap, has decided that it is much more fun to

actually be big boy and use the potty. Amazing how fast they can

learn when motivated!

Anyway, we are definitely on the road to no more pull-ups. How in

the world do you train for nighttime when they are on a pump

overnight?

Judith, Steve, (RSS) and (non RSS) 4 1/2 year old twins

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Liam is basically on an all liquid diet (not tube though) and he wears pull

ups at night.....

His older brother wet the bed till age 9 and I wet the bed till age 13.....

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

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Judith,

Glad to hear is on track for potty training. As far as the

night goes, we haven't even bothered trying to train Jake at night.

There is no way he could hold in the nighttime continuous feeds and so

the other option is us getting out of bed two or three times a night

when he has to go and unhook him and rehook him up. No way! I just

couldn't go back to that " newborn " stage again of getting up all

night. Putting a diaper on at night easier. I remember asking a mom

of an older RSS child and she said when her son got older and just

couldn't do a diaper anymore, they gave him a urine bucket (like they

use in the hospital) and he kept it on his night stand. He would use

that during the night, rather than having himself unhook and hook

himself back up to the machine (because he would always " forget " to

hook himself back up and the whole bed would get wet.

For now I am just thankful he is only four and a diaper is still OK.

Alison

> Hi all,

>

> First, thanks for all the ideas regarding getting Becca to take

> medicine. Last night we tried a different brand and flavor and that

> seemed to do the trick (let's hope it lasts).

>

> A funny story...

>

> When we saw Dr H last week she was very upset that (RSS age 4

> 1/2) was not potty trained. We had been trying off and on and

> getting nowhere so we had given up.

>

> After the appointment we decided to start trying again. So, off

> with the pull-ups and on with the underwear. Well, really was

> not into this. He would get upset if he wet himself, but wouldn't

> try for the potty unless he was in the mood for M & M's (our standard

> potty bribe - I don't know, it worked with his sister lol). Anway,

> the children are home right now between camp and school. Steve was

> home with them yesterday. Steve and are both two stubborn

> individuals.

>

> After peed in his underwear and laughed about it, he

> discovered a new order in life. Where mommy says " if you use the

> potty you get a reward, " daddy says, " if you don't use the potty you

> go in your bed. " Well, after spending half the day in his bed, and

> taking a long nap, has decided that it is much more fun to

> actually be big boy and use the potty. Amazing how fast they can

> learn when motivated!

>

> Anyway, we are definitely on the road to no more pull-ups. How in

> the world do you train for nighttime when they are on a pump

> overnight?

>

> Judith, Steve, (RSS) and (non RSS) 4 1/2 year old twins

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--Hi, this is , mom to , now 5 we had gone to the

convention and Dr. H was also this way with me towards the potty

training ! She got real upset that he was in pullups to! She told

him " you may be small but you are 4 yrs old and 4 year olds

wear underwear, " I was a little taken back, because we had been

trying for a long time, He had just gone through his second surgery

on his " willie " and was still hurting from this and the catheder, I

know this isn't an excuse but he just had no interest. Well while

their she told him she wanted to see him in underwear the next time

she saw him,He said underwear hurts we were trying. Pattie took my

mom to the store their in Chicago and bought him a couple pairs and

we tried it, he didn't like the feeling of the underwear touching

him!He said it hurt which I guess his Willie was still sensitive,

but he went in the potty in the hotel and that was that . He was

trained, I couldn't believe it!! In one day, he was so excited that

he couldn't wait to see her(Dr. H)When he did he ran up to her and

pulled his pants down to show him his new underwear!! I let him try

them at night and he wet a little but not much, I gave all the

pullup's to a family there and he has been trained ever since, I was

so proud, he does have acccidents at night but he trys, he sleeps so

hard. I don't get mad it is alot of sheet changing but I don't want

to get him worried believe me he has been through enough, my thing

to like you said about the night feedings is different, he is going

to have another surgery ugh ,and have to be back in diapers he is

not going to like that to well!! Well I just thought this was neat

how we had the same potty experience,just my two cents good

luck!! Hugs to you 5 28pounds 38 inches

Growth Hormones and

prevacid

- In RSS-Support , " Sidny27 "

<heraldjcb@a...> wrote:

> Hi all,

>

> First, thanks for all the ideas regarding getting Becca to take

> medicine. Last night we tried a different brand and flavor and

that

> seemed to do the trick (let's hope it lasts).

>

> A funny story...

>

> When we saw Dr H last week she was very upset that (RSS age

4

> 1/2) was not potty trained. We had been trying off and on and

> getting nowhere so we had given up.

>

> After the appointment we decided to start trying again. So, off

> with the pull-ups and on with the underwear. Well, really

was

> not into this. He would get upset if he wet himself, but wouldn't

> try for the potty unless he was in the mood for M & M's (our

standard

> potty bribe - I don't know, it worked with his sister lol).

Anway,

> the children are home right now between camp and school. Steve

was

> home with them yesterday. Steve and are both two stubborn

> individuals.

>

> After peed in his underwear and laughed about it, he

> discovered a new order in life. Where mommy says " if you use the

> potty you get a reward, " daddy says, " if you don't use the potty

you

> go in your bed. " Well, after spending half the day in his bed,

and

> taking a long nap, has decided that it is much more fun to

> actually be big boy and use the potty. Amazing how fast they can

> learn when motivated!

>

> Anyway, we are definitely on the road to no more pull-ups. How in

> the world do you train for nighttime when they are on a pump

> overnight?

>

> Judith, Steve, (RSS) and (non RSS) 4 1/2 year old

twins

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Hi Judith,

Great story. Jordan is pretty much potty trained now. We'll have a few

accidents here and there but for the most part he tells us we he has to go and

we

leave him in underwear all day. At night it's a different story though. We

still put on pull ups at night. I don't know how you potty train a child while

on the pump all night. Jordan is such a strong sleeper I don't think he would

wake up at all to use the potty even if he wasn't on the pump. Something

interesting happened one night. I forgot to take off Jordan's underwear once and

he was hooked up to the pump all night. Do you know when I woke up in the

morning he was as dry as a bone. He hadn't peed in his underwear. Go figure.

I

am afraid to try that again though.

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