Re: Or first visit with Dr. H was awesome!!

[Guest guest]

Hi,

I'm so happy you had a great first visit with Dr. H.!!! It was so

nice to meet you and your family at the RSS GAthering (sorry I showed

up so late!). I have to say, Dr. H. deserves a round of applause for

her " investment " (she went to a lot of garage sales!) in that big

basket of toys. It seems to be the winning ice breaker for the

kids. Am very glad that Kedhar was comfortable with her, and am even

happier that you are now getting good treatment options. (my son,

, also had silent reflux. He was on Zantac for several years.

Katy

Katy Frissora

RSS Division Co-Consultant MAGIC Foundation

>

> We had our first visit with Dr. H yesterday. Our appt was at 10 am

> but she saw us only at 11.45.

>

> She befriended Kedhar (who hates doctors) immediately with her box

> of toys. Then she and I were chatting (ie giving our bachground

> etc). She examined Kedhar. We were with her for 3.5 hours (yes,

> three and a half!). She even examined me and told me to go to an

> endocrinologist.

>

> The result: He is SGA not RSS. So, all treatment options will be

> the same. She put him on zantac. prilosec for reflux. She

suspects

> he has silent reflux. Then she will put him on periactin and later

> GH.

>

> She was very glad that I had already met many of the RSS/SGA

> parents. It was amazing how she knew each one of the kids I

> mentioned.

>

> Thanks for all your support. It was great meeting the NY/NJ

folks.

> Thanks JodiZ, JodieC & B for organizing everything.

>

> -Malathi

[Guest guest]

Malathi,

I'm glad you had a good experience with Dr. H. She can be so caring

and engaging! Kedhar is an adorable boy and I'm so happy that he

bonded with Dr. H.

As for the SGA vs. RSS diagnosis, you are correct - the treatment is

the same. It's wonderful that you were able to join us last

Saturday and you have met other kids and parents in your shoes. It

must feel so good knowing that you have this huge family to share

your experiences with and to ask for advice and support.

Your family is lovely. My husband really enjoyed speaking to

yours. I was surprised at how many husbands/fathers that were

there. It's great that they want to be involved. My husband, for

years, would not talk to others about Max and RSS and would never

consider going to the convention. Now, after meeting so many dads

last week, he wants to go in July. Hopefully you will be there,

too, and our husbands can talk again.

Jodi Z.

[Guest guest]

hey malathi!!!

i am so glad to hear your appt went so well, after you finally got

in!!! did you leave and come back, we left at 10:30 and i know

there was another patient after us and before you? did you miss

your other appt? i am glad you finally have a definite dx and a

treatment plan!!! if you dont mind me asking (and you can email

your answere) why does she want you to go to an endo? take care and

talk to you soon!!!

jodie c.

>

> We had our first visit with Dr. H yesterday. Our appt was at 10

am

> but she saw us only at 11.45.

>

> She befriended Kedhar (who hates doctors) immediately with her box

> of toys. Then she and I were chatting (ie giving our bachground

> etc). She examined Kedhar. We were with her for 3.5 hours (yes,

> three and a half!). She even examined me and told me to go to an

> endocrinologist.

>

> The result: He is SGA not RSS. So, all treatment options will be

> the same. She put him on zantac. prilosec for reflux. She

suspects

> he has silent reflux. Then she will put him on periactin and

later

> GH.

>

> She was very glad that I had already met many of the RSS/SGA

> parents. It was amazing how she knew each one of the kids I

> mentioned.

>

> Thanks for all your support. It was great meeting the NY/NJ

folks.

> Thanks JodiZ, JodieC & B for organizing everything.

>

> -Malathi