Re: G-tube info

[Guest guest]

hey amy!!

my christopher is now 25lbs 13oz and 36.3 " tall all from catch up

growth from staring periactin in april(he will be 4 in dec.). he

was only 23lbs and 33.3 " tall in april when we started this!!! we

were also on ght in april and dr h. discontinued it at that time

(since he needed to do caloric catch up growth first to be able to

have a good response while on the ght) we just saw dr h on mon and

she was very impressed by how well his catch up growth is going. we

had to up his caloric intake, an extra 100cal. a week will help them

to gain 1lb after 5weeks (right jodi z?) this might be the route to

take since she does eat, a g-tube may not be nessasary!! good

luck!!!

Jodie c.

In RSS-Support , " nickolfamily " <nickolfamily@y...>

wrote:

>

> Hello everyone! I need some advice. Abby is 4 yrs. old, weighs

> 21.2 pounds and is 34 inches tall. I believe we are underweight.

> However, prior to the diagnosis of RSS Abby's GI doctor said a g-

> tube was not necessary because she proportionate with height and

> weight. Now with the diagnosis I feel like Abby is underweight

and

> needs some catch-up growth and to make this possible might be the

g-

> tube. What do you all think?? Abby has been on growth hormones

for

> almost three years with a low response to them. This low response

> could be due to the lack of cath-up growth. I have moved all of

> Abby's doctor appointments up to next week from January to address

> all of this now that we have a diagnosis.

>

> Thanks to all of you for all the advice over the last six days.

My

> husband and I are at peace with your help knowing that Abby is

going

> to be okay.

>

> --Amy (mom to Abby 4yrs w/ RSS & Tyler 2 3/4 yrs)