Re: Marcy and Dr. H

[Guest guest]

Beth and Jodi,

I'm sold!! I had Jack's three-year checkup yesterday and told our

pediatrician that we really wanted to see Dr. H and didn't want to

wait for the geneticist to send us her referral to a ped. endo in

Hartford. Our pediatrician was all for our seeing Dr. H and even had

us go to get Jack's x-ray for bone age yesterday in case we needed

it asap.

I called Dr. H's office and I guess I need to send all of Jack's

tests (blood, urine, x-ray, endoscopy, etc.), height charts and

weight charts from birth to 3 yrs. and have them reviewed by her

office before they will call me back to make an appointment. Is this

pretty standard? I hope we get " in " ! I feel like we're hoping to get

backstage to meet a favorite celebrity or something! Hee.

Thanks!!

marcy

> > Marcy,

> >

> > I just have to jump in here and say Hi, I am sure will

be

> > answering your questions. But you gave me a chuckle this am!

Dr.

> H

> > is a pediatric endocrinologist, and yes, she looks at

the " whole "

> > child. And the " whole " family, and the " whole " everything. SHe

is

> > the expert in RSS/SGA kids in the states and she knows

everything.

> > The only snag you'll hear from any of us, she is very opiniated

and

> > will tell you exactly what you and your local doctors should

do.

> > SOmetimes that is both hard to hear, and hard to implement!

> >

> > If you can see her, GO. You won't be disappointed and for all

of

> > her directness - she loves these kids and is so dedicated to all

of

> > our families.

> >

> > Beth H.

> >

> >

[Guest guest]

Marcy,

I am so glad that you made that step. I know you want to get the

best treatment for Jack, and you will get it from her. She is VERY

thorough. I don't know about them having to review the records and

stuff just to see if you will get in. In my experience, I had

emailed with Dr H. before our appointment, and based on the info I

was giving her, she became VERY concerned about and wanted to

see him immediately. So much so, that we went from a January 2004

appoinment to a October appointment that only gave me two weeks to

get 's records together. I had to hand carry the records

because she wouldn't have gotten them on time had I mailed them. So,

she does like to review and look at the child's records before she

sees them. I don't think it is whether you will get " in " or not. It

is a matter of getting to know the child......on paper first, I

think. That would be my guess. It may take a while before you get a

phone call from them since she is so busy, but you will get to see

her I am sure. Just do your part in getting the info to her quickly,

because the quicker you get her the info, the quicker you will get an

appointment. And, if after some time goes by and you don't hear from

her office, call them back. ) Can you tell I have been through

all of this before!? Lol! ) Persistence pays off......most of

the time. )

Take care,

Jodi R.

, 28 months old today and weighing in at a whopping 19 lbs!

> > > Marcy,

> > >

> > > I just have to jump in here and say Hi, I am sure will

> be

> > > answering your questions. But you gave me a chuckle this am!

> Dr.

> > H

> > > is a pediatric endocrinologist, and yes, she looks at

> the " whole "

> > > child. And the " whole " family, and the " whole " everything.

SHe

> is

> > > the expert in RSS/SGA kids in the states and she knows

> everything.

> > > The only snag you'll hear from any of us, she is very opiniated

> and

> > > will tell you exactly what you and your local doctors should

> do.

> > > SOmetimes that is both hard to hear, and hard to implement!

> > >

> > > If you can see her, GO. You won't be disappointed and for all

> of

> > > her directness - she loves these kids and is so dedicated to

all

> of

> > > our families.

> > >

> > > Beth H.

> > >

> > >