Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I agree. We need our energy, why spend it on a closed mind. However...if the topic arises again, since she claims Karyn's son simply had a food allergy (and was - she believes - misdiagnosed with ASD) how does she know for sure that her son isn't also misdiagnosed unless she has him testeed with the IgG food panel, etc.??? Speaking of mainstream, there is more and more medical literature available on gluten and casein issues impacting on the central nervous system. One just needs a doctor who reads it! My bet is that when there a pill is patented for treating ASD, word will hit the news big time. > As we all know, implementing this diet takes extreme > perseverance, ridgidity, and dedication. If you > cannot commit to it fully, you will not see the > results. With your friend's preconceived ideas about > the whole subject, I would be wary. I can see how > someone who is not open-minded from the beginning > could half-heartedly try this diet and not see any > results simply because they are not following the > rules and avoiding infractions. This would only prove > her point. My opinion is that I would not try to > convince her anything about the diet until she comes > to you asking about it. Eventually, all of this > research and all of these results will come to the > attention of the mainstream. Maybe then she will be > ready to give it a whole-hearted try and work toward > results. > Just my take on it, > in Missouri > > ===== > Visit www.open-invitation.net/andrea to shop the newest product line from House of Lloyd! > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Trish Some folks just don't listen and you have already tried with your friend .... There really is only so much one can do .. Its too bad some of your relatives think your son is a freak... Sounds like you could use some understanding folks to be around.....We can't convince everybody, you know . thank god your son has a mom like you... There really is so much hope for our kids now.. Don't you think.. You are a terrific mom.. Don't let anybody make you think otherwise..... kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Don't you think there will always be resistance to change? When there is such a " pill, " there will be just as much resistance as there is currently to " the diet. " This is human nature. There is a known trend about new technologies. You have a small group of pioneering people who will take the early risk, a larger group of " early adopters " who start once it is reasonably proven, then the bulk of the masses once it is established, then a smaller group of " resistors " which are very reluctant and rather dragged along, and then another even smaller group which doesn't want to change because they just don't want to change. It follows the Bell Curve. Any such pill will probably go through the same bashing and challenging and skepticism and proving ground as the diet and other therapies, from all sides. . > > As we all know, implementing this diet takes extreme > > perseverance, ridgidity, and dedication. If you > > cannot commit to it fully, you will not see the > > results. With your friend's preconceived ideas about > > the whole subject, I would be wary. I can see how > > someone who is not open-minded from the beginning > > could half-heartedly try this diet and not see any > > results simply because they are not following the > > rules and avoiding infractions. This would only prove > > her point. My opinion is that I would not try to > > convince her anything about the diet until she comes > > to you asking about it. Eventually, all of this > > research and all of these results will come to the > > attention of the mainstream. Maybe then she will be > > ready to give it a whole-hearted try and work toward > > results. > > Just my take on it, > > in Missouri > > > > ===== > > Visit www.open-invitation.net/andrea to shop the newest product > line from House of Lloyd! > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 At 09:18 pm 6/13/01 -0700, you wrote: >Eventually, all of this research and all of these results will come to the >attention of the mainstream. Maybe then my kids' pediatrician won't deny all knowledge of the diet! I'm really curious how long all of this can go on. You can tell I'm running out of steam here, and it's only been half a year for our son, about five weeks for me on the diet and lately I've been cheating alot. Of course only my wife knows about it so the main reason... to keep my son company is still intact. He hasn't cheated in a couple of weeks now. Yesterday evening my wife and 10 yr old went to a support group at our son's pre-school, and my son and 6 yr old and I went to a playground in the neighborhood. My son just got a tricycle from a neighbor after learning to ride in school. He went the whole distance... I'll guess 1/4 mile+ round trip! Marty (proud Dad) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Get her the book, " Is This Your Child " by Dr. Doris Rapp. It does not lead you to the connection between autism and GFCF diet. It does talk about individual symptoms and how they might be diet related. Perhaps a book versus your discussing this with her again might be best for her? > Hi Everyone: > > I mostly lurk here, post only when I have something relevant to add or have a > question. My son has been on the diet since 9/28/00 with questionable > success. He tested positive for anti-gliadin antibodies and that is the > primary reason we have him on the diet today (Crohn's and colitis runs in > DH's family). He has the dx of Developmental Language Disorder. > > Even though I cannot attribute any of his successes to the diet, I cannot say > that being on this diet has NOT helped him or prevented his language delays > from becoming more severe...so we stick with it. > > My question concerns recommending the diet to a dear friend of mine. Her son > has Asperger's Syndrome (not dx until he was 6 or so). He is currently 9 > years of age. He is an absolutely adorable boy...very bright and engaging > but has the obsessions, tantrums and social issues that one associates with > AS. I have noticed on many occasions that his pupils are dilated so much > that his eyes appear almost black. I have hesitated discussing the diet with > my friend because the one time I brought it up (in a general way) she told me > that there was a big difference between a food allergy and autism and she > didn't believe that Karyn's son ever really had autism...just an undiagnosed > food allergy....and if there were a cure for autism it would be on the news. > That said, I really feel her son might benefit from the diet, given the > amount of dairy he consumes, his constipation issues, extremely skinny body > type...etc. > > Does anyone have any ideas on how I can bring this subject up to her? I > don't want to stick my nose where it doesn't belong, but I feel like I am > keeping something from her but not sharing my knowledge of the diet. I have > relatives who feel I am making my own son more of a " freak " (not my words, > theirs) by keeping him on the diet...so that in addition to poor verbal > skills he also eats strange food. I think there may be some of that thinking > at work with my friend. > > Anyway, what would you do? Thanks for your help. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi, I agree that it is difficult to convince someone who's mind is already made up. All I say to people who question me about the diet is that Graham has made significant gains, he is eating healthier than before, and has gained 6 lbs ( he, too, is painfully skinny, due to malabsorption discovered in blood test). My former boss (now retired) always used to talk to folks skeptical about interventions in these terms --can't hurt, might help. That's sort of the attitude I started with, but I have become a believer through what I have experienced. Just my .02--I hope things continue to go well for you and your child. I think you are a great mom...I have ceased to care what others think about this diet. I know it has helped Graham and that's all I care about. The food he eats isn't so different, just all homemade, the way my mom used to fix us. Good luck with everything. Fondly, J--mom to Graham (7 yrs, probable Asperger's syndrome) and Hayley (11 yrs, mild ADD) Quote Link to comment Share on other sites More sharing options...
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