Re: Oh, HELP. And bother.

[Guest guest]

Sharlene:

I would continue the full gfcf diet, because I was told the gluten

doesn't always show up until they are older and since he has been gluten free

that could pose a problem with the results being low.

My son is highly allergic to corn and corn derivitives: sorbitol and

manitol are in alot of medications; tylenol, benadryl, etc. You must know

all the derivitives of corn and be careful with many ingredients.

It seems difficult at first, but after a month or so you will be a

pro. We check and double check all products and special order or make foods

from scratch.

LOL,

Sharon

[Guest guest]

We just got the 92 allergen test done on T for Great Plains ($200 out

of pocket). We are waiting the results. We had been following the

Strict Carbohydrate Diet (minus the cheese) until yesterday when we

decided to take away all nuts, eggs and citrus and put back in rice,

potatoes, and buckwheat (We have been GF for 8 weeks and CF(and

really, grain free) for almost 3 weeks. So, being grain free, we

have been corn free and will continue to be corn free until the test

comes back.

I have found it difficult to be both corn and gluten free. However,

I would still put your son on a GFCF corn-free diet until you have

more data. My son has only had one firm stool since we started this

diet. However, when we went GF 8 weeks ago he went from having a

frothy, yellow, liquid poop once a day to having a liquid, dark brown

poop once every 2-3 days.

Personally, I would wait until your son has firm stools for a month

before throwing a food challenge at him with wheat and seeing if you

have a change.

JMO,

> We took our son, Milo, to get blood drawn for allergy testing.

We'd

> been gluten and casein free for a few months and there were still a

> lot of bowel issues, so we thought we would bite the bullet and

find

> out what else is wrong.

>

> Well, according to the doctor's office, the preliminary IGE (?)

test

> score was 228, normal being 18. They then tested wheat, milk,

> cheese, tomatoes, soy, eggs, bananas, apples and oranges. The only

> thing that showed up as an allergy was cheese mold as a level two

> allergy. We also had them check rice and corn and bingo! He's

also

> got a level 2 allergy to corn. We have to draw more blood for

> further testing (which is SO much fun with a nonverbal 5 year old

who

> is 40 pounds of muscle), so we're going to test beef, pork and

> chicken. In the meantime, we've got to get rid of corn.

>

> What does this have to do with gfcfkids? Well, I wanted to shout

out

> to any other parents who have gone corn free to see if they had any

> wisdom they wanted to share, and I also wanted to ask if I should

> necessarily continue the gfcf portion of the diet. Is it

worthwhile

> to continue avoiding wheat when his blood didn't show any allergy

to

> it? I'm not going to resume dairy, since he did show a reaction to

> cheese, and I have reacted to dairy when I've had it.

>

> Thank you for any and all help.

>

> --Sharlene

>

> PS Is Vance's Dari-Free okay in terms of corn? And if it isn't

does

> someone want to buy a few boxes?

[Guest guest]

Hi, just reading your post about the allergy tests you are doing with food

and wondering...are they drawing blood each time they 'test' for a few

things? My son is a pretty strong 4 year old and it takes about 7 people to

hold him and get a blood sample. We save up tests and try to get as many as

possible in one needle stick and then be done with it for a while. The emla

cream helps. My point in all this is that our food allergy testing sounds

much easier. It was done through great plains lab, and it had 96 food

results. Donna in Kingwood, TX