Two seperate questions - agranulocytosis and weight

[Guest guest]

In a message dated 9/6/2003 10:40:38 AM Eastern Daylight Time,

getdawnrose@... writes:

> " . I am

> fat and I look very middle aged at 37, I was fit and 33 when all this began!

>

Oh sister you're singing my song! I hate what has become of my body since I

took RAI, 2 years ago today. Happy freakin' anniversary to me.

I went from the 130 range to the 175 range. This past spring I managed to

lose 15 pounds that I have miraculously kept off by cutting carbs. So far, that

is the only thing that I have found that helps me. My biggest problem is I

am so lazy and I love bread and pasta. I will exercize religiously for a

month, and then get totally sick of it. I wish I could become addicted to

exercize! But no..............

Here, see for yourself what I used to look like and what I have become! It

ain't pretty! I wish you success in finding what works best for you!

God bless,

<A

HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://ho\

metown.aol.com/lisareynolds64/myhomepage/personal.html</A>

[Guest guest]

On the lighter side of the weight issue, pun intended......

Some of you know that my user name at Mediboard is Hiroshima. Let me explain

why.

I was very hypo upon diagnosis...and packed on some pounds. My husband could

not remember the name Hashimoto's. So he used word association...he called

it Hiroshima's disease because I blew up!!!!! lol

Then I took RAI, and the Hiroshima thing had a double meaning!

I am just happy that my husband still thinks I am the bomb!

God bless,

[Guest guest]

Hi,

I missed the original question. But agranulocytosis is extremely rare. Now

that it's known to be related to inappropriately high ATD doses, it's seldom

seen. I've not met anyone who had it from ATDs. In the lab, we see

agranulocytosis often in patients on chemotherapeutic agents used in cancer

therapy.

Agranulocytosis is not considered irreversible any longer with the advent of

colony stimulating factor meds. Take care, Elaine

[Guest guest]

Hi Dawn Rose,

it's nice to hear from you. I can give you an answer for your second question

and a " nonanswer " for the first.

>1) Has any member of this group actually developed >agranulocytosis as a

>direct result of being on ATDs?

Aileen had a different rare reaction, vasculitis, which was believed to be

caused by PTU.

>2) More importantly (joke!) has any member of this >group who has had

>Grave's, then bunged on a stack of weight when they >were on ATDs (in my

>case about 50lbs) - has anyone managed to loose that >weight?

I'm 49 and had not gained a pound since age 15, no matter what I ate. When I

went hypo on PTU last fall I gained 35 pounds in 3 weeks (10 of which replaced

loss while hyper). When I got my levels really euthyroid this summer (100 mg PTU

and 50 mcg Synthroid) I slowly started to lose weight and now am only about 7

lbs more than my former weight. (Losing weight did make me unnecessarily nervous

about getting hyper again.)

I've tried to be active and mostly tried to eat healthy (but then there's all

that chocolate . . .). Beyond that, though, I imagine metabolic rates vary and

it may take some people longer than others.

Best wishes,

ADVERTISEMENT

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list do not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

--------------------------------------------------------------------------------\

------