Re: - Re: That look ??????

August 29, 2004

Sharon

That was a test Adam had done when he was 3 months old. (12 years ago). The

doctor was concerned that his head was so large compared to his body but it

came back normal and everyone just went on their merry way and not saying

there was anything else wrong with him for years.

I can't recall how they did the test exactly. Funny I can remember him lying

on a table, it was dark, the tech. saying " oh oh " (talk about dying inside!)

and then he clammed up and said nothing else. Adam didn't get shaved in

anyway. Seems to me it was like an ultrasound.

Debby

Carmen - Re: " That look " ??????

> > I also used to always say he looked similar to

> > an alien. (the ones that are green with big heads

> > and skinny little bodies!) I know, it sounds aweful,

> > but that is how he looked to me, even before I knew

> > about RSS!

>

> Carmen-

>

> When I was 5 or 6 months months old, I had an EEG done because the

> doctors thought I had hydrocephelus (remember, we didn't know I had

> RSS until I was 15, so I was " a little baby with a big head and no

> one knows why " for a LONG time). I don't know how they do it

> nowadays, but to complete the test in the summer of 1966, they

> shaved some of the hair off the front of my head. This just

> accentuated my high forehead. Until my hair grew back in, my

> father's nickname for me was " enstein. " <G>

>

> He didn't tell me this until I was old enough to appreciate that he

> said it with love <G>.

>

> -Sharon-

> Just an RSS kid who grew up

>

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