Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 I want to let everyone know that i wish that i could have be able to get with you all before, when all this started. Everyone seem's to be wonderful to each other! I don't know how to thank you! Have a happy, Randa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 My name is Tosha and I'm a mother of a 9 year old girl named who has Graves Disease and has just been diagnosed after her great grandmother noticed her thyroid was very large and swollen. I have never known anyone with or heard of this disease before and I am expected to make a decision by this Friday on whether or not to treat her condition with the RAI or to put her on some kinds of medicines. I would appreciate any and ALL responses and I hope to get many different opinions on this as soon as I can. I am not really sure what the " best " route to take is considering there are overwhelming amounts of information and I'm not sure what to think or believe anymore. I WAS leaning toward the RAI because the doctors at Riley's Children's Hospital are saying that is what they think I should do. They say she will have to go to the hospital with every sore throat. Is this true? Or just when she has a fever? What should I expect things to be like for us now? PLEASE respond to this email, as I am really confused and unsure of what to do and don't have much time to make my decision. & Thank you and God bless all who take the time to respond. So Great! I want to let everyone know that i wish that i could have be able to get with you all before, when all this started. Everyone seem's to be wonderful to each other! I don't know how to thank you! Have a happy, Randa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 DO NOT let them give your 9 year old RAI, or pressure you into making a decision " by Friday " !!!!! Do NOT make medical decisions because of doctor's convenience. do NOT condemn your daughter to a life of potential problems because some doctor wants to do the easy thing! I've just posted off-group to another person considering RAI, and I'm pooped at this point. At this point I just have to say it is your JOB as a mother to do ALL the research. Nothing about GD requires immediate drastic intervention! No child should be given RAI. I'm going to start screaming if I don't get off here, sometimes I feel like the medical community is a total farce. I'll let others take up the baton now...but do go to the group home page and look at the 'top 20 reasons not to have RAI' for starters. Terry > > Reply-To: graves_support > Date: Mon, 11 Aug 2003 17:21:10 -0500 > To: <graves_support > > Subject: Re: So Great! > > My name is Tosha and I'm a mother of a 9 year old girl named who has > Graves Disease and has just been diagnosed after her great grandmother noticed > her thyroid was very large and swollen. I have never known anyone with or > heard of this disease before and I am expected to make a decision by this > Friday on whether or not to treat her condition with the RAI or to put her on > some kinds of medicines. I would appreciate any and ALL responses and I hope > to get many different opinions on this as soon as I can. I am not really sure > what the " best " route to take is considering there are overwhelming amounts of > information and I'm not sure what to think or believe anymore. I WAS leaning > toward the RAI because the doctors at Riley's Children's Hospital are saying > that is what they think I should do. They say she will have to go to the > hospital with every sore throat. Is this true? Or just when she has a fever? > What should I expect things to be like for us now? PLEASE resp! > ond to this email, as I am really confused and unsure of what to do and don't > have much time to make my decision. > & Thank you and God bless all who take the time to respond. > So Great! > > > I want to let everyone know that i wish that i could have be able to > get with you all before, when all this started. Everyone seem's to > be wonderful to each other! I don't know how to thank you! Have a > happy, Randa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 Hi tasha, My brother had gd as a child. The first choice was medication. He is currently in the milletary, and is fine. What is the doctor thinking of? Wouldn't ri effect your daughter in so many ways. Since she is so young. I'm glad that you found this group. It has been very helpfull to me. Since my diagnosis last september. I hope that the same will be for you and your daughter. R. Green ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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