Re: i just got my uptake results

[Guest guest]

Hi Yvonne,

The Free T4 and Free T3 tests are important, as well as getting tested for

autoimmune antibodies (especially TSI antibodies). I am a newbie, so I

hesitate to give any specific info, but it does sound like Graves'. Is

there any way you can get to a good doctor (one who is experienced with

anti-thyroid medications and doesn't just push RAI) before August? I don't

think I would wait that long (even if I had to travel far). If it is

Graves', read all you can so that you will be informed about treatment

choices and how to take care of yourself.

At 04:38 PM 6/27/2003 +0000, you wrote:

>im looking for some insight on my test results. My tsh was .o2 in

>the begining of may-- my dr gave me an uptake scan and there were no

>hot or cold nodules and the 29 hour uptake was 29%

>

>can anyone help me decipher this and would it seem i have graves

>disease-- my dr is sending me to an endo but i can get there until

>aug and im getting impatient and worried about the wait.

>

>i had lost about 50 lbs quite rapidly -- have the shakes very

>frequently and my heart beats fast and hard even just lying down

>sometimes-- my eyes get red and swollen from time to time and cant

>wear my contacts very often anymore.

>

>Please someone who can explain it to me better than my dr.

>

>Yvonne

[Guest guest]

Hi Yvonne, did your doctor put you on any beta blockers to help with your

shakiness and fast heart rate? From the sounds of it August is TOO long to

wait for an endo visit - If I were you I would insist my doctor call and

make a case that I bee seen much earlier - or that he run the proper tests

and get me on ATDs right away. 50 pounds is a huge amount of weight loss and

your eyes are a very good sign that this is in fact graves disease.

You have a lot of research to do right now. A really good place to start is

on the Mediboard in a thread called THYROID AWARENESS 101

http://www.mediboard.com/ubb/ultimatebb.php?ubb=forum;f=1

Hope this helps and hope you get proper care very very soon,

Pam B.

[Guest guest]

-Hi allison--

well my problem is i live in a very rural area-it is 2 hours to any

half way decent dr-- and im going on a trip that i cant reschedule in

the middle of july for 2 weeks. so im kinda stuck

My dr wants me to see an endo because she has no clue.

Yvonne

-- In graves_support , Conner <aconner@a...>

wrote:

> Hi Yvonne,

> The Free T4 and Free T3 tests are important, as well as getting

tested for

> autoimmune antibodies (especially TSI antibodies). I am a newbie,

so I

> hesitate to give any specific info, but it does sound like Graves'.

Is

> there any way you can get to a good doctor (one who is experienced

with

> anti-thyroid medications and doesn't just push RAI) before August?

I don't

> think I would wait that long (even if I had to travel far). If it

is

> Graves', read all you can so that you will be informed about

treatment

> choices and how to take care of yourself.

>

>

> At 04:38 PM 6/27/2003 +0000, you wrote:

> >im looking for some insight on my test results. My tsh was .o2 in

> >the begining of may-- my dr gave me an uptake scan and there were

no

> >hot or cold nodules and the 29 hour uptake was 29%

> >

> >can anyone help me decipher this and would it seem i have graves

> >disease-- my dr is sending me to an endo but i can get there until

> >aug and im getting impatient and worried about the wait.

> >

> >i had lost about 50 lbs quite rapidly -- have the shakes very

> >frequently and my heart beats fast and hard even just lying down

> >sometimes-- my eyes get red and swollen from time to time and cant

> >wear my contacts very often anymore.

> >

> >Please someone who can explain it to me better than my dr.

> >

> >Yvonne

>

>

>

[Guest guest]

--thank you pam-- but i am kinda stuck waiting-- my dr doesnt know

much about it and she didnt put me on any meds. i cant get into the

dr which is a 2 hr drive anyway before then-- i am leaving for 2

weeks in july.

Im trying to do some research that is why i am here but i am very

confused about the whole thing.

Im trying to sort out everything but when i spend time trying to look

into things it just depresses me.

Could anyone tell me anything about any alternative meds or herbs i

can get my hands on in the mean time.

Yvonne

- In graves_support , " Pam B " <PamB@w...> wrote:

>

> Hi Yvonne, did your doctor put you on any beta blockers to help

with your

> shakiness and fast heart rate? From the sounds of it August is TOO

long to

> wait for an endo visit - If I were you I would insist my doctor

call and

> make a case that I bee seen much earlier - or that he run the

proper tests

> and get me on ATDs right away. 50 pounds is a huge amount of weight

loss and

> your eyes are a very good sign that this is in fact graves disease.

>

> You have a lot of research to do right now. A really good place to

start is

> on the Mediboard in a thread called THYROID AWARENESS 101

>

> http://www.mediboard.com/ubb/ultimatebb.php?ubb=forum;f=1

>

> Hope this helps and hope you get proper care very very soon,

>

> Pam B.

[Guest guest]

Well i am going to be in alaska and i dont think there is anyplace to

go do that there. i already take a mega multi- vitamin from gnc--

it had lots of b vitamins but unfortunately it also has iodine. i

have to see what i can do about that. i feel tons better when i take

them regularly. just gives me much more energy -- but i have been

taking these for about 2 years now-- i was having female problems and

always bleeding-- 3 out of 4 weeks so i started taking vitamins

then. i had been on a strong dose of bc to correct that problem--

for just over a year and then i started to have high blood pressure

all of a sudden and that is when i started to lose weight fast for no

reason at all. I am going to try to get my dr to put me on a beta

blocker -- i have been having fast heart beats and pounds hard and

just the last few days i have been having pains. To me that is the

scariest part.

Thanks for the info and you guys are great im really glad to have

found you.

Best wishes to all that have this problem--

Yvonne

> >

> > Hi Yvonne, did your doctor put you on any beta blockers to help

> with your

> > shakiness and fast heart rate? From the sounds of it August is

TOO

> long to

> > wait for an endo visit - If I were you I would insist my doctor

> call and

> > make a case that I bee seen much earlier - or that he run the

> proper tests

> > and get me on ATDs right away. 50 pounds is a huge amount of

weight

> loss and

> > your eyes are a very good sign that this is in fact graves

disease.

> >

> > You have a lot of research to do right now. A really good place

to

> start is

> > on the Mediboard in a thread called THYROID AWARENESS 101

> >

> > http://www.mediboard.com/ubb/ultimatebb.php?ubb=forum;f=1

> >

> > Hope this helps and hope you get proper care very very soon,

> >

> > Pam B.

>

>

>

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[Guest guest]

Okay -- well you guys have talked me into it-- i called my dr -- no

way to get into see her before week after next she is on vacation all

of next week-- but she told me to go to the emergency room and get it

checked.

Im glad i talked to you guys--i would have just not done anything i

think. i mean the pains are there-- and annoying-- but not major--

seem to come and go-- but it is scary none the less.

Yvonne

>

> Just don't want to be misunderstood - deep breathing is NO

SUBSTITUTE for

> proper medical care - you NEED to get your doctor to give you the

beta

> blockers at a minimum - or you need to see a new doctor asap.

>

> Pam B.

>

> -- Re: Re: i just got my uptake results

>

> Yes, that was the scariest part for me too and what got me in to

see a

> doctor - you can do permanent damage to your heart if it's not

treated. And

> also, until you get your thryoid levels in normal ranges, you do

not want to

> do any exercise at all - nothing that will cause your heart extra

stress -

> it's already pumping at full capacity.

>

> Deep breathing or meditation are good tools to use when it's

getting out of

> control and you need to calm down... yoga can be good too, but you

will have

> to avoid any of the strenuous posses until you are doing better.

>

> Good luck,

> Pam B.

[Guest guest]

Hi Yvonne,

The uptake test is not a very good diagnostic procedure. Because of the high

iodine content in the American diet (iodine lowers uptake results) the results

can be misleading. Also, if you have T3 thyrotoxicosis (more T3 produced

relative to T4) the uptake can be normal in Graves' disease.

Your results are normal but can not rule out Graves' disease. It's better to

have the blood test for TSI. TSI are the antibodies that cause hyperthryoidism

in GD and this is a specific diagnostic test, whereas the uptake can only

suggest that you may have GD. Take care, Elaine