Starting Synthroid with PTU!

[Guest guest]

Well, I had another set of labs last week and this time I made a

follow-up appointment with my doctor. I am not feeling well at

all... Increased anxiety, mild depression, lots of headaches, very

achy, tired all the time... I guess I feel a lot like I do when I am

hyper except without the trembling hands, sweating and accelerated

heart rate. So I wanted to talk to my doctor about this...

As it turns out my FT3/4 are still sliding down. I am now on the

looooowww end of normal. And, for the first time since I was

diagnosed in October, I actually had a READABLE level of TSH! I've

been at <.05 for forever. But this time my TSH was actually at .1!!

Now I know my TSH is still low (.3 being the low end of normal), but

I'm wondering if even this tiny rise coupled with my lowering FT3/4

could be an indication that I am/was on my way to being hypo and

that's why I feel so awful...

Anyway, because the values are coming along and I'm not feeling well

my doctor thought it would be a good time to throw Synthroid in the

mix to see if it improves how I feel and to get us into BRT.

So, as of tomorrow I will be on my regular 150mg of PTU per day

plus .025g (or maybe mg??? So hard to read the doctor's writing!) of

Synthroid. God willing I will feel better and shed some of these

extra pounds that PTU put on me (my doctor said it would help... I

gained 25lbs. on PTU and nothing would prevent it or take it off!)

and be on my way to feeling better.

Sooo... Any insight that you might have as to how I may feel on

Synthroid as well or what the side effects are would be greatly

appreciated! Also, if anyone can shed some light as to why I feel so

icky lately (even with a hyper TSH reading and normal FT3/4 readings

could I be going hypo) I would be grateful!

Thanks so much for all your help.

Clair

Diagnosed with Graves in 1995

BRT remission 1997

Relapse diagnosed 10/02

150mg PTU (50mg 3x day) since 11/02

Adding .025g Synthroid as of tomorrow!

[Guest guest]

Hi Clair -

Hopefully the Synthroid will make you feel a bit better, and it's good that

they're starting out with a little bit at a time. I suspect the reason

you're feeling lousy is the TSH coming back. My FT4 and FT3 firts came back

to normal and then several months later I had my first measurable TSH. I

remember when the TSH first came back up, I felt MISERABLE! I went for labs

and FT4 was low end normal, and the TSH was only .91. But it was the first

time I'd had a measurable TSH in about 9 months. For me anyway, when that

TSH first starts coming up, it really hits hard. I suspect it from the body

being so used to not having the TSH (or having it be so low as to be

ummeasurable) that it's a shock when it hits the system so to speak. Elaine

has said that we can feel hyper or hypo when we change levels because of how

it feels to the body. If you're going from the low level TSH to a higher

level TSH, your body interprets that like a change from a hyper state to a

hypo state (or maybe a less hyper state). So to the body, it " feels " like

it's hypo even if your lab results are completely in the normal range. That

pretty much describes what happened to me. My levels were completely normal,

but I felt awful! Once the body got used to the TSH being there again, it

did get better. But hopefully the Synthroid will do a better job of that for

you. Don't be surprised if you still feel lousy for a while longer, but once

your body gets used to the new changes, you should start feeling better -

and once the Synthroid starts kicking in!

Good luck, hope you feel better soon!

Starting Synthroid with PTU!

> Well, I had another set of labs last week and this time I made a

> follow-up appointment with my doctor. I am not feeling well at

> all... Increased anxiety, mild depression, lots of headaches, very

> achy, tired all the time... I guess I feel a lot like I do when I am

> hyper except without the trembling hands, sweating and accelerated

> heart rate. So I wanted to talk to my doctor about this...

>

> As it turns out my FT3/4 are still sliding down. I am now on the

> looooowww end of normal. And, for the first time since I was

> diagnosed in October, I actually had a READABLE level of TSH! I've

> been at <.05 for forever. But this time my TSH was actually at .1!!

> Now I know my TSH is still low (.3 being the low end of normal), but

> I'm wondering if even this tiny rise coupled with my lowering FT3/4

> could be an indication that I am/was on my way to being hypo and

> that's why I feel so awful...

>

> Anyway, because the values are coming along and I'm not feeling well

> my doctor thought it would be a good time to throw Synthroid in the

> mix to see if it improves how I feel and to get us into BRT.

>

> So, as of tomorrow I will be on my regular 150mg of PTU per day

> plus .025g (or maybe mg??? So hard to read the doctor's writing!) of

> Synthroid. God willing I will feel better and shed some of these

> extra pounds that PTU put on me (my doctor said it would help... I

> gained 25lbs. on PTU and nothing would prevent it or take it off!)

> and be on my way to feeling better.

>

> Sooo... Any insight that you might have as to how I may feel on

> Synthroid as well or what the side effects are would be greatly

> appreciated! Also, if anyone can shed some light as to why I feel so

> icky lately (even with a hyper TSH reading and normal FT3/4 readings

> could I be going hypo) I would be grateful!

>

> Thanks so much for all your help.

>

> Clair

> Diagnosed with Graves in 1995

> BRT remission 1997

> Relapse diagnosed 10/02

> 150mg PTU (50mg 3x day) since 11/02

> Adding .025g Synthroid as of tomorrow!

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement

of

> the listowner. I have no input as to what ads are attached to emails.

> --------------------------------------------------------------------------

------------

>

>

[Guest guest]

Thanks so much . I understand how the subtle changes can

make you feel awful. But explaining to someone else that you feel

terrible when your labs are normal in one area and still too low

(TSH) in another kinda makes people look at you funny =)

Anyway, I don't feel anything noticable yet (it's only been 3 doses

of Synthroid). I suspect it will take some time just as it did when

I first started PTU. But with enough luck, I'll have some energy

back and some relief from the constant headaches soon. In the 8

months since I started treatment, I had about 3 really GREAT months,

so I know it is possible for me to feel good. But getting there can

be tricky.

Thanks for the input and advice!

Clair

> Hi Clair -

>

> Hopefully the Synthroid will make you feel a bit better, and it's

good that

> they're starting out with a little bit at a time. I suspect the

reason

> you're feeling lousy is the TSH coming back. My FT4 and FT3 firts

came back

> to normal and then several months later I had my first measurable

TSH. I

> remember when the TSH first came back up, I felt MISERABLE! I went

for labs

> and FT4 was low end normal, and the TSH was only .91. But it was

the first

> time I'd had a measurable TSH in about 9 months. For me anyway,

when that

> TSH first starts coming up, it really hits hard. I suspect it from

the body

> being so used to not having the TSH (or having it be so low as to be

> ummeasurable) that it's a shock when it hits the system so to

speak. Elaine

> has said that we can feel hyper or hypo when we change levels

because of how

> it feels to the body. If you're going from the low level TSH to a

higher

> level TSH, your body interprets that like a change from a hyper

state to a

> hypo state (or maybe a less hyper state). So to the body,

it " feels " like

> it's hypo even if your lab results are completely in the normal

range. That

> pretty much describes what happened to me. My levels were

completely normal,

> but I felt awful! Once the body got used to the TSH being there

again, it

> did get better. But hopefully the Synthroid will do a better job of

that for

> you. Don't be surprised if you still feel lousy for a while longer,

but once

> your body gets used to the new changes, you should start feeling

better -

> and once the Synthroid starts kicking in!

>

> Good luck, hope you feel better soon!

>

>

> Starting Synthroid with PTU!

>

>

> > Well, I had another set of labs last week and this time I made a

> > follow-up appointment with my doctor. I am not feeling well at

> > all... Increased anxiety, mild depression, lots of headaches, very

> > achy, tired all the time... I guess I feel a lot like I do when I

am

> > hyper except without the trembling hands, sweating and accelerated

> > heart rate. So I wanted to talk to my doctor about this...

> >

> > As it turns out my FT3/4 are still sliding down. I am now on the

> > looooowww end of normal. And, for the first time since I was

> > diagnosed in October, I actually had a READABLE level of TSH!

I've

> > been at <.05 for forever. But this time my TSH was actually

at .1!!

> > Now I know my TSH is still low (.3 being the low end of normal),

but

> > I'm wondering if even this tiny rise coupled with my lowering

FT3/4

> > could be an indication that I am/was on my way to being hypo and

> > that's why I feel so awful...

> >

> > Anyway, because the values are coming along and I'm not feeling

well

> > my doctor thought it would be a good time to throw Synthroid in

the

> > mix to see if it improves how I feel and to get us into BRT.

> >

> > So, as of tomorrow I will be on my regular 150mg of PTU per day

> > plus .025g (or maybe mg??? So hard to read the doctor's

writing!) of

> > Synthroid. God willing I will feel better and shed some of these

> > extra pounds that PTU put on me (my doctor said it would help... I

> > gained 25lbs. on PTU and nothing would prevent it or take it off!)

> > and be on my way to feeling better.

> >

> > Sooo... Any insight that you might have as to how I may feel on

> > Synthroid as well or what the side effects are would be greatly

> > appreciated! Also, if anyone can shed some light as to why I

feel so

> > icky lately (even with a hyper TSH reading and normal FT3/4

readings

> > could I be going hypo) I would be grateful!

> >

> > Thanks so much for all your help.

> >

> > Clair

> > Diagnosed with Graves in 1995

> > BRT remission 1997

> > Relapse diagnosed 10/02

> > 150mg PTU (50mg 3x day) since 11/02

> > Adding .025g Synthroid as of tomorrow!

> >

> >

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and

is not

> intended to replace expert medical care.

> > Please consult your doctor before changing or trying new

treatments.

> > ----------------------------------------

> > DISCLAIMER

> >

> > Advertisments placed on this yahoo groups list do not have the

endorsement

> of

> > the listowner. I have no input as to what ads are attached to

emails.

> > ------------------------------------------------------------------

--------

> ------------

> >

> >