Re: Asymetry=Vision problems--HELP

November 7, 2004

Amy,

I can't help you with the assymetry and eye problems. But my son

Matt is 8 years old and is seeing a Behavioral Opthalmologist. HE

is great. Found problems with Matt's eyes that the Optometrist

missed. Matt has problems following objects when they are

close, 'convergence' and tracking from left to right, especially

over the midline.

Anyway, there is a website: www.pavevision.org in case you are

interested in learning more.

Beth

>

> Hi everyone! I am in search of other RSS kids with asymetry and

> vision problems. Abby has had glasses for 18 months now through

an

> optometrist. Her left eye turns in all the time and they thought

> with her vision problems that glasses would fix both. We went to

> the opthamologist this week and found out more info regarding the

> left eye. He believes that since Abby is asymetrical with the

> entire left side being smaller than the right that that has caused

> her left eye problems. Is anyone else experiencing this? There

is

> no research out there to help us with this and if there is I need

to

> know where I can find it. I am trying to determine whether this

is

> RSS related or something else.

>

> Thanks for your help!!!!

>

> Amy (mom to Abby, 4, RSS, periactin, GHT $ Tyler almost 3)

November 8, 2004

Amy - Unfortunately, I have read virtually every article on RSS kids

that has been published, with the exception of a bunch of genetics

articles that are way over my head. I have never read anything of

this. I am so sorry. I have never read of any vision problems

whatsoever, let alone something like that connected with asymmetry.

In trying to mull it over in my head, though, even with one side

being smaller, why would that make the eye pull inwards? Did he

say? Our next door neighbor's son has his left eye pull in, and he

just had surgery to correct it. He is 9 months old, though.

Keep us posted on what you hear!

>

> Hi everyone! I am in search of other RSS kids with asymetry and

> vision problems. Abby has had glasses for 18 months now through

an

> optometrist. Her left eye turns in all the time and they thought

> with her vision problems that glasses would fix both. We went to

> the opthamologist this week and found out more info regarding the

> left eye. He believes that since Abby is asymetrical with the

> entire left side being smaller than the right that that has caused

> her left eye problems. Is anyone else experiencing this? There

is

> no research out there to help us with this and if there is I need

to

> know where I can find it. I am trying to determine whether this

is

> RSS related or something else.

>

> Thanks for your help!!!!

>

> Amy (mom to Abby, 4, RSS, periactin, GHT $ Tyler almost 3)

November 8, 2004

Amy,

just saw an Opthomologist today as a matter of fact. He has

trouble with his left eye. His eye lid lags a great deal. So much,

that it resembles a lazy eye. They are saying he doesn't have a lazy

eye, but they are going to keep an eye on him to make sure his vision

isn't compromised by the lag in that it may not get the stimulation

it needs to work properly. So far, he is using both eyes equally,

but his lid will always lag this way unless we decide to have it

surgically lifted. Dr. H told us that has assymetery on the

left side of his face, so I am assuming that this problem is part of

that. The doc said his muscles in the left lid did not form

correctly and that is why it lags. Anyway, this could cause vision

problems, but so far has not.

Sorry this is rambling so much! )

Take care,

Jodi R.

, 29 1/2 months, 18 lbs. 5 oz, 30 3/4 "

>

> Hi everyone! I am in search of other RSS kids with asymetry and

> vision problems. Abby has had glasses for 18 months now through an

> optometrist. Her left eye turns in all the time and they thought

> with her vision problems that glasses would fix both. We went to

> the opthamologist this week and found out more info regarding the

> left eye. He believes that since Abby is asymetrical with the

> entire left side being smaller than the right that that has caused

> her left eye problems. Is anyone else experiencing this? There is

> no research out there to help us with this and if there is I need

to

> know where I can find it. I am trying to determine whether this is

> RSS related or something else.

>

> Thanks for your help!!!!

>

> Amy (mom to Abby, 4, RSS, periactin, GHT $ Tyler almost 3)

November 13, 2004

Amy,

We also have a daughter, Abby! She is a 6 year old twin and is

noticeably asymetric, at least if you know to look for it. I had to

point it out to her general practitioner for the first time, but it

was obvious to him then.

Her left eye has always been a little droopy and " lazy " . She has

tested fine on her vision tests though and it hasn't seemed to affect

her vision.

Sherri D. - Mom to 6 yr old twins, Abby (RSS) and Sam (nonRSS)