Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hi - Welcome aboard! My name is Sharon and I'm an RSS adult too (I'm 38). There are several of us here on the parents' board and a handful more on the Adult RSS board (it's called " RSS People " and can be found in the Yahoo Groups listing...let me know if you need any help in finding it). The 2 boards are very different...whereas here we give advice in the form of " Been there, done that, had the big head, stuffed the food in the cheek and then bought the T- shirt, " (or just give some insight on what it was like to be an RSS kid), on the Adult board we talk about what's happening in our lives as adults living with RSS (and when we're not doing that, we're teasing each other about something or other <wink>). Over 125 RSS families just came back from the MAGIC convention, which is held every year in Chicago...MAGIC is a foundation specifically for children (and adults) who have varying, rare growth disorders. 7 RSS adults came and it was a LOT of fun...not only did I get to see a bunch of cute little kids who looked just like me when I was young <G>, but I got to share experiences with people who are living through the exact same situations as I am (i.e. dealing with stares, weight gain, being called cute <G>, etc.). I hope you don't mind my asking where do you live, how tall are you, did you get treatment for your RSS etc? I live in Orlando FL with my husband (though we're both originally from the NY/NJ area). I wasn't diagnosed until I was 15 years so by the time we found out what I had, it was too late to do anything about it...so I've had no treatment. Nice to meet you and I hope to see you here and perhaps the RSS Adults' board too! -Sharon- Just an RSS kid who grew up 38Y, 4'6.75 " , 94# Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 hi amanda!! welcome to this great group of caring people!! and thanks for offering to answere our questions!! as you will see there are some rss adults that belong to this site and there is also anothere list of just adults (maybe someone can give you the address). welcome once again!! jodie(one of 4 on this list) (nicholas-6 nonrss, christopher-3 1/2 rss 25lbs 1oz 34 3/4 " periactin (just upped at convention), ght genotropin (still on hold 3 more months), ADHD (possible), assmentry(left side 1cm), johnathon-1yr nonrss) > Hi everyone, > > I'm new to the group. I'm from Houston and am 27 with RSS. I > haven't seen any adults with RSS, so if there are any, please email > me. Otherwise, I will field questions from all of you parents out > there with children who have RSS. > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Jodie- 3 things. 1. Your pictures are AWESOME 2. has 'found' us on the RSS-People board 3. Your boys are adorable <G>. -Sharon- Just an RSS kid who grew up > > Hi everyone, > > > > I'm new to the group. I'm from Houston and am 27 with > RSS. I > > haven't seen any adults with RSS, so if there are any, please > email > > me. Otherwise, I will field questions from all of you parents out > > there with children who have RSS. > > > > Thanks! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 hey sharon!! 1.THANKS!! 2.OK THATS GREAT!!! SHE WILL GET ALOT FROM SUCH A GREAT GROUP OF ADULTS!! 3.THANKS AGAIN!!! WE LOVED MEETING YOU!!! jodie > > > Hi everyone, > > > > > > I'm new to the group. I'm from Houston and am 27 with > > RSS. I > > > haven't seen any adults with RSS, so if there are any, please > > email > > > me. Otherwise, I will field questions from all of you parents > out > > > there with children who have RSS. > > > > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hi :-) Welcome. There is a list serve RSS people for adults and some of them post here from time to time giving us their advice and a lot of parents have gathered strength from their posts. We hope to continue seeing you here at least from time to time. J > > Reply-To: RSS-Support > Date: Tue, 27 Jul 2004 03:17:21 -0000 > To: RSS-Support > Subject: Adult RSS > > Hi everyone, > > I'm new to the group. I'm from Houston and am 27 with RSS. I > haven't seen any adults with RSS, so if there are any, please email > me. Otherwise, I will field questions from all of you parents out > there with children who have RSS. > > Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.