looking for Indiana people

[Guest guest]

My daughter was recently diagnosed with RSS and I am forming a

committee to start raising funds locally for the Magic Foundation

and RSS. If you live in Indianapolis or the surrounding area and

would like to help please contact me. I plan events for non-profit

organizations in Indianapolis and on the west side of Indy but I

know I need help to make this the best event in Indy. Thanks for

your help!!

--Amy

[Guest guest]

Hi Amy,

I'm le. We live in n, IN. Central part of Indiana...near

the Kokomo, , Muncie Areas. My son Coby was has rss and he

and his twin sister just turned 2 yesterday.

We are having a walk a thon tomorrow in n for MAGIC. I would

love to help in any way.

You can e-mail me at greyeyedcutie @yahoo.com (no space) I check

here on the boards but only when I can find the time. I always check

my e-mail though because of letters from the doctors.

le, mom to:

ShyeLynn 9, Brock 7, and Coby(rss) & Carlee NOW 2 YRS OLD...YEA!!!

[Guest guest]

Amy,

I live in Jeffersonville, IN and have a 7 year old daughter with RSS. If I

lived closer, I would love to help, but would be interested in events going on

in the Indy area.

,

Mom to Shelby age 7 RSS

[Guest guest]

Amy,

My son is one year old and has RSS, we live in , IN. and would be

glad to help with anything.

le

[Guest guest]

le,

We live in Avon so we are not too far away. My daughter is 4 years old and

just got her diagnosis 4 days ago. However, we have thought that the RSS

diagnosis was coming it just took time to finalize it.

I have so many ideas for fundraising. I am forming a committee to meet to start

the process of organizing an event. Through my father we have several contacts

with the Colts, Pacers, and the Indianapolis Motor Speeway. So I am hoping to

come up with a great event and involve families. Abby has several friends from

school and gymnastics that I am sure their families would want to be involved.

Would you want to be on this committee?

How is your son doing? Is he in First Steps? I am a Service Coordinator for

First Steps and Abby was in the program for 18 months.

Keep in touch!!

-- Amy (mom of Abby, 4 yrs w/ rss, humatrope, asymmetry)

princessgs84@... wrote:

Amy,

My son is one year old and has RSS, we live in , IN. and would be

glad to help with anything.

le