Guest guest Posted October 26, 2003 Report Share Posted October 26, 2003 Terry, That's not a bad idea. Of course, there's a description of hte group on the Yahoo home page, but it's general. We could add something to tweak the definition a bit, telling people that the group formed, in part, over our collective caution regarding RAI. I think anti-RAI would be too strong, because people who have had RAI and are now hypo because of it (I think U. and Elaine especially) have been adn continue to be strong participants on the list. I'll check in with Jean Crawford, list mom, who's been more or less out since her father died a couple of months ago. If someone wants to post the description of our group for all to see, that might be nice. Fine-tuning our announcement could nip some of these discussions about the flavor of the group in the bud. Best, Mission Statement Hi everyone, This recent series of posts has pointed to me the fact that we need to collectively work on a mission statement, something that can be posted on the home site and that we are all in agreement defines the purpose of this group. Someone recently posted that we should be calling ourselves the " anti RAI group " instead of Graves support. She had a point, perhaps! So, I'm asking for other opinions on my opinion here--is this just wheel-spinning on my part (don't be afraid to tell me if it is!) or do we need to do this work? Thanks for listening, Terry dx end of '94. Refused RAI when it was presented as " the " option to " cure me " , when I knew little about GD--but I was afraid of radiation. Mother had thyroid cancer before my birth. Terrified of being hypo (hypo, psychotic mother); my natural state is maybe a tad hyper. On ATD's pretty much the whole time since '95, after trying herbal meds only for the first 8 months or so. Now taking about 2.5 -3.75 mg. a day of Tap, in 2-3 doses, depending on symptoms de jour. Last labs showed very slightly hyper, when I was taking about 2 mg. a day only. Found this group when I was confused and befuddled. Value it immensely. Started the symptom list and to 20 reasons lists. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2003 Report Share Posted October 26, 2003 Hi , I did not in any way mean to exclude people who've had RAI, I think one of our main purposes (as well as helping new people dealing with the disease for the first time) is to be supportive and listen to those people and provide the kind of help that comes from the experiences of those of us here who have had RAI. My apologies if my statement neglected to say that, I probably shouldn't have sent the email when I was still steaming from things, but waited until my overtaxed brain and body caught up with themselves and I was more rational. Terry > > Reply-To: graves_support > Date: Sun, 26 Oct 2003 13:20:18 -0600 > To: <graves_support > > Subject: Re: Mission Statement > > Terry, > > That's not a bad idea. Of course, there's a description of hte group on the > Yahoo home page, but it's general. We could add something to tweak the > definition a bit, telling people that the group formed, in part, over our > collective caution regarding RAI. I think anti-RAI would be too strong, > because people who have had RAI and are now hypo because of it (I think > U. and Elaine especially) have been adn continue to be strong participants on > the list. > > I'll check in with Jean Crawford, list mom, who's been more or less out since > her father died a couple of months ago. > > If someone wants to post the description of our group for all to see, that > might be nice. Fine-tuning our announcement could nip some of these > discussions about the flavor of the group in the bud. > > Best, > > > Mission Statement > > > Hi everyone, > > This recent series of posts has pointed to me the fact that we need to > collectively work on a mission statement, something that can be posted on > the home site and that we are all in agreement defines the purpose of this > group. Someone recently posted that we should be calling ourselves the " anti > RAI group " instead of Graves support. She had a point, perhaps! > > So, I'm asking for other opinions on my opinion here--is this just > wheel-spinning on my part (don't be afraid to tell me if it is!) or do we > need to do this work? > > Thanks for listening, > > Terry > > dx end of '94. Refused RAI when it was presented as " the " option to " cure > me " , when I knew little about GD--but I was afraid of radiation. Mother had > thyroid cancer before my birth. Terrified of being hypo (hypo, psychotic > mother); my natural state is maybe a tad hyper. On ATD's pretty much the > whole time since '95, after trying herbal meds only for the first 8 months > or so. Now taking about 2.5 -3.75 mg. a day of Tap, in 2-3 doses, depending > on symptoms de jour. Last labs showed very slightly hyper, when I was taking > about 2 mg. a day only. > Found this group when I was confused and befuddled. Value it immensely. > Started the symptom list and to 20 reasons lists. > > > Quote Link to comment Share on other sites More sharing options...
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