Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Alison! Welcome aboard! My name is Sharon and I'm a 38y/o adult with RSS. I live in Orlando Florida, near Disneyworld. There are at least 2 families on this list who live in Australia and I'm sure one or both of them will be contacting you as soon as they see your message. -Sharon- Just an RSS kid who grew up > Hi there > I am very new to this - my 14 mth old son Charlie was diagnosed with > RSS a few weeks ago. We live in Sydney Australia and I notice that > most members are in the US. Is there anyone out there in Australia > who I could chat to re Aust. resources ie doctors, therapists, > clothing etc. Having read some of the messages though, am very > comforted to know we are not alone with this, it seems very > overwhelming at present! Thanks, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Alison, Welcome to our group. I hope we can answer all your questions. There are at least a couple of people on the list from Australia -- Jody and ne. Hopefully they will respond soon but often people don't check in for weeks. Things just get too busy etc. Again, welcome to our group. Ken M > Hi there > I am very new to this - my 14 mth old son Charlie was diagnosed with > RSS a few weeks ago. We live in Sydney Australia and I notice that > most members are in the US. Is there anyone out there in Australia > who I could chat to re Aust. resources ie doctors, therapists, > clothing etc. Having read some of the messages though, am very > comforted to know we are not alone with this, it seems very > overwhelming at present! Thanks, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2004 Report Share Posted September 13, 2004 Hi Alison, My name is and I live in New Zealand - so not too far away from you!! I'm sure Jodie will contact you soon - she lives in or near Sydney (I think!) If you are in Sydney are you under the team at Westmead? We contacted Cowell there recently regarding our son - perhaps he is the Dr you are under. If not, I can tell you he is very highly regarded within NZ and Aus. Our favourite dietician also relocated to Sydney a year ago - she now works at Westmead too - maybe you will come across her - Barbara Dennison. My son, Finlay, is 4yrs 10mths he was diagnosed with RSS officially last year at the convention in Chicago. We are under a fantastic endocrinologist here in Wellington and have found that despite being at the other side of the world the RSS experts are very accessible. Our endo has been in email contact with Dr Harbison in New York and Dr Stanhope in London. You will find a lot of information on this list serve. I have found being a member of this list very empowering...I have been able to take all the information I learn here to the team in Wellington and as a result I really believe Finlay is receiving the best care available. I do look forward to hearing more about you and Charlie. All the best > Hi there > I am very new to this - my 14 mth old son Charlie was diagnosed with > RSS a few weeks ago. We live in Sydney Australia and I notice that > most members are in the US. Is there anyone out there in Australia > who I could chat to re Aust. resources ie doctors, therapists, > clothing etc. Having read some of the messages though, am very > comforted to know we are not alone with this, it seems very > overwhelming at present! Thanks, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Hi Alison My names jody, we live in Australia, not far from Sydney. My son Liam is 3 and has RSS. I just wrote to your private email with my phone number, hope we can speak soon, or if you prefer, let me know and Ill write down all about Liam. cant wait to hear all about your son jody > Hi there > I am very new to this - my 14 mth old son Charlie was diagnosed with > RSS a few weeks ago. We live in Sydney Australia and I notice that > most members are in the US. Is there anyone out there in Australia > who I could chat to re Aust. resources ie doctors, therapists, > clothing etc. Having read some of the messages though, am very > comforted to know we are not alone with this, it seems very > overwhelming at present! Thanks, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Alison, Welcome to the group. I live near Batemans Bay, NSW. My son is 17 now and use to attend Westmead Children's Hospital. has been seen by both Dr's Cowell and over the years. Do you go to Westmead or Randwick? Feel free to email me at ade01@... ne > Hi there > I am very new to this - my 14 mth old son Charlie was diagnosed with > RSS a few weeks ago. We live in Sydney Australia and I notice that > most members are in the US. Is there anyone out there in Australia > who I could chat to re Aust. resources ie doctors, therapists, > clothing etc. Having read some of the messages though, am very > comforted to know we are not alone with this, it seems very > overwhelming at present! Thanks, Alison Quote Link to comment Share on other sites More sharing options...
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