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Re: Liang - NGDF Board

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In a message dated 10/23/2003 1:46:08 PM Eastern Daylight Time,

leon_lz@... writes:

> That is too pro-RAI. I was there a few times.

>

What I am suggesting to you is to read over there how many people write in

with problems with TED after RAI.

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wrote:

> I would suggest you go to the NGDF, where RAI is recommended as a safe

> treatment option for Graves Disease. Do some reading there, and see how

many posts

> you read about TED.

FWIW, about a year ago, I was on that list and saw a posting from someone

who said something like, " Hi, I was just diagnosed with Graves and my doctor

says I should have RAI. Should I? " I posted back that she should stop and

research all of her treatment options and consider whether she wanted to try

ATD's first - nothing shrill. My post was removed from the board in a matter

of hours. I suspect that that board routinely removes cautionary or negative

comments about RAI.

-Jill

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That is too pro-RAI. I was there a few times.

Liang

> > I would suggest you go to the NGDF, where RAI is recommended as

a safe

> > treatment option for Graves Disease. Do some reading there, and

see how

> many posts

> > you read about TED.

>

> FWIW, about a year ago, I was on that list and saw a posting from

someone

> who said something like, " Hi, I was just diagnosed with Graves and

my doctor

> says I should have RAI. Should I? " I posted back that she should

stop and

> research all of her treatment options and consider whether she

wanted to try

> ATD's first - nothing shrill. My post was removed from the board

in a matter

> of hours. I suspect that that board routinely removes cautionary

or negative

> comments about RAI.

> -Jill

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