SV: SV: Re butter

[Guest guest]

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Fra: Beth A Ranucci

Dato: 27. juni 2001 20:02

>.....

>Wow...never would have guessed from all your intelligent and helpful

>posts that you have been on " this roller coaster " for so many years with

>your son! ......

We certainly have. During the first 4-5 years, we used the term " heavenly days "

about the best of the good periods. Once, they lasted for 3 weeks, I think. We

were totally at a loss to understand what caused these good periods and what

made all the difference, when he disappeared down that behavioural slide again.

We tried all kinds of extra eliminations, and have (for doubtful reasons) stayed

without soy, eggs and certain high phenol pigments. The things that seem to

have made the biggest difference were Nystatin and the realisation that even

" gluten free " products are not always gluten free in the technical sense. We

kept feeding our son up to 5 grams of gluten every week, in total ignorance. It

was when we realised this, and started using only naturally gluten free

products, that he quit bed-wetting. That was also the turning point for the

roller-coaster. The " heavenly days " became the rule, rather than the exception.

There were fewer " downs " and more constant " ups " . Today, the concept " heavenly

days " is only a museum piece for us: You don't use that kind of word for

something you take for granted in your everyday life.

>.......

>I had to laugh a bit on the " tidying up " thing. does exactly

>those things, and I usually find it cute, sometimes actually helpful.

>....

I've believed it a coincidence that our son chose a " tidying up " mania as his

type of obsessive-compulsive behaviour. It seems from the responses I've got to

this mail, that this phenomenon is quite common. How common ? Maybe we should

add that question to the survey ???

>Thank you so much for all your thoughtful input to this group.

Thank you for encouraging me to go on.

>I hope I can learn to live

In the mean time, follow our example, and do it by instinct. Life is terribly

unfair, and the realisation that most of it is working in our favour, is one of

the things that keeps us going. Our son's autism is just about the only thing

that I could complain about. But I don't want to complain. He's a beautiful,

strong, kind-hearted boy. There's absolutely no evil nor any falseness in him.

I can't say that unconditionally about my other three children. He needs our

love and our acceptance, not our regrets nor our sorrow. We're lucky, because

we've been able to solve half his problem. Let us rejoice in the glory of the

partial success, and not grieve too much about the partial failure.

Yours

n

[Guest guest]

At 09:01 am 6/28/01 +0200, you wrote:

>I've believed it a coincidence that our son chose a " tidying up " mania as

>his type of obsessive-compulsive behaviour. It seems from the responses

>I've got to this mail, that this phenomenon is quite common. How common

>? Maybe we should add that question to the survey ???

We noticed with our son who is now 4 1/2 that a couple of years ago he was

very inclined to keep his hands clean. This at a time that he /always threw

his plate of food on the floor when done eating.

Over the past year he will at times pee on the floor. He's now completely

toilet trained, with very very few accidents. But then he'll take the mop

himself at times to clean up his mess.

It's hard to say why. I think 's obsessive compulsive behaviors, like

his other symptoms are going away. Two years ago, he'd be flushing the

toilets endlessly if we let him. That's about ended, to where if we go to

the bathroom together some of the time he'll wait for me to pee too before

flushing.

It seems that in the week after a cheating episode he will get worse. It

also seems like he does stuff to get attention. It is very hard to know

what's really going on, but of course this is old news to everybody reading

this.

Marty