High Antibodies - help Elaine or Pam

[Guest guest]

It's been awhile since I had some bloodwork done. My last endo was

very obnoxious. He actually made me laugh. He determined that it

was time for RAI. I refused it. He then informed me that " I was

the only person on the east coast that hadn't done this with this

problem ... " . I told him then he needed to get out more often since

many informed people are opting out of this. I simply refuse to

tolerate these ridiculous scare tactics. I don't view any doctor as

god and what they suggest is not a command. I make the final

decision and their " opinion " is just that - an opinion.<br>

Anyway I did get my PTU perscription but knew I had to find

another doctor. I could go on and on about this idiot doctor - dated

testing etc.. The only reason I went back to him was to get the PTU

perscription. The endo before that did the right testing BUT I was

not able to spend hours at her office plus they were totally

paranoid with giving you the results. No kidding, my last

appointment with her was at 6PM. I didn't get in to see her till

9PM. I couldn't deal with that. I had a two children with me -

nearly 2year old and a four year. Also they'd call me about the

results and make a big deal of making sure I was the patient over

the phone and then

telling me to make an appointment - which I already had anyway.

They had my test results in

front of them which is where they got my number yet refused to give

the results over the phone, fax or through the mail. I just

couldn't deal with such irrational paranoia nor the ridiculous wait

time.

So I went to a Internal medicine D.O.. Over the phone I was told

he handled thyroids too. He opted to go the allopathic route and

recommended I see an Endo and get RAI. Huge sigh. He did request

the

right testing and here are the results:

TSH .019 (.350 - 5.50)

T4 Free 1.40 (.61 - 1.76)

TPO AB 1002 (0-34)

Thyroid Antithyroglobin AB 891 (0-40)

T3 Free 4.1 (2.3 -4.2)

I'm used to different ranges but what shocked me is the antibody

levels. I had had this test done before but the results were

something like TPO >70 with no exact number.

I've been on PTU. Of late I started takeing three 50 mg a day.

Does the PTU lower the antibody level? Will this high level be

affecting my eyes? Will I get a goiter if I remain on PTU?

I also have M.S. and on no medication. Will the antibodies speed

up the mylin (sp) sheath deterioration? I've heard this. I've also

heard that with M.S. a thyroid problem happens - hyper or hypo.

It's been over two years since I had an MRI and a spinal tap

which confirmed M.S.. I refused medication since all I have is

occassional tiredness and a once in awhile my right leg gets stiff.

I don't consider that a big deal.

I've also discovered Osteo Bi-Flex with glucosimine (1500 mg),

Chrondroitin (1200 mg) and MSM (1000 mg) to solve the leg stiffness

problem. DHEA, 25MG solves my tiredness problem. So overall I'm not

concerned about the M.S. but will propably seek out a Neurologist to

do another MRI.

The M.S. and Graves' did not affect my pregnancy. In fact,

without using ANY fertility drugs I had my daughter at age 45. All I

can say is vitamin/minerals, a nutritious diet and exercise made all

the difference in the world for me. That's a story in and of

itself.

So what I am wondering is what's going on with these levels? ANy

suggestions on alternative apporaches would be welcome as well. I'm

sort of curious on NMT (NeuroModulation Technique). I don't

understand what it is but heard it was helpful. Since I don't find

the allopathic or as I like to call them the allopathetic crowd

helpful I'd like to explore other options.

This destroying of a perfectly good thyroid reminds me of the

good old days where as a child I often had a strept throat and the

solution at that time was to remove the toncils. I refused that as

well. Now they acknowledge that we need our toncils and that this

is not a sound " opinion " .

Since RAI isn't the ONLY option out there isn't there an

Endocrinology society or something where they might discuss that RAI

isn't the only option and that taking ATD's won't kill you? I see

little difference in taking a maintence dose of PTU or Tap instead

of Synthroid. It seems to me that if they can't solve the problem

(which is typical - ignore the root cause) then the next best thing

is if the organ is removable or destroyable - then do that and

create a problem that they can control. I believe it is all about

control and $$$.

In any event I hope you can shed some light on this. I also

called it to the attention of Pam too since I believe she engages in

alternatives and pays attention to nutrition. If I am wrong, do

accept my aplogies. Also I recall a wonderful woman, Jody. I don't

see her name here. She too is a wonderful person. Is she still

participating here?

Best Regards,

P.S. Please pardon typos. I wrote this very quickly.