Re: Taz needs to vent and a teething question- long

August 16, 2004

Just an add to the late bloomer discussion on the teeth discussion... Hannah

got her first tooth when she was sixteen months old (most came after her

second birthday). She is three now and is still waiting on some of the side

teeth

to come in! Every doctor we had from six months up until that point blamed

every illness on teething (including her low height and weight). They all said

she was just teething and she just didn't feel like eating!

August 16, 2004

Ah, these are the days when we wish we COULD be the taz and blow up -

for once! Sorry about Isaac! My daughter's 2nd blood draw at

Children's here in Boston was horrible (that person will never touch

my kid again!) and for months after she would vomit at the sight of a

nurse or dr - or just a photo lab tech in a white coat! Some

suggestions - call the lab ahead of time and ask who will be on a

certain day and if they are experts with kids - tell them your child

needs an IV nurse quality phlebotomist. Ask if they can prepare the

area/vein ahead of time (with my daughter I think they used warm

clothes to help bring out her veins). I think if he is hydrated too

that helps. And, once you find a great blood - drawer - " stick "

with her/him! ( sorry trying humor here)

BTW, I have NO idea how to make a cat pee on a phonebook - but you

made me laugh as my day wasn't the best either!!!!

GOOD LUCK!

> Hi all-

>

> Just need to vent and ask a question..but first the vent part!

>

> We are in the process of selling our home and looking for a new

> place to live which is sooo stressful and I am now workin 3, 8 hour

> days per week.And on my days " off " we have endocrine appts,

> pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

> they have to check his TSH levels every other month which means

that

> have to draw blood. I drive about 30 minutes to take him to the

> children's hospital in Ft. Worth because they only deal with

> kids..so you would think they would be able to do it. This last

time

> they poked him in each arm and couldn't get a vein so they cut his

> heel and squeezed a full tube out..It took 30 minutes and he

> screamed like you wouldn't believe. This is the 2nd time in a row

> they have done this. When he had his OT appt. this last week she

> noticed that he is still not wanting to bear any weight on his

legs.

> In fact if you touch his feet he curls his toes and turns them

> outward. She thinks that the heel poking is causing a sensory

> problem and that he is resisting anything to do with his feet

> because he associates them with pain. So not only do I worry about

> his developmental delays due to the RSS but this is something that

> is affecting him that shouldn't.

>

> On top of all that, my cat has been peeing out side of the litter

> box so I took her to the vet because that usually means a urinary

> tract infection and they told me to get a urine sample!! They gave

> me a little squeezy thing and a container and told me that it would

> be void if it was refrigerated longer than 12 hours!

>

> Driving home from the vet I just laughed as I thought about all of

> the insanity that we go through...I had to laugh because if I

didn't

> the overwhelming feeling would make me cry. I feel like the

> Tazmanian devil about 98% of the time..anyone feel the same way?

>

> Well if you don't maybe you can tell me how the heck am I supposed

> to lean a catbox on some phone books and have her pee there so I

can

> squeeze it up and make sure to keep in the fridge no longer than 12

> hours!!!

>

> Enough of that...now my question-

>

> I thought I read somewhere on a previous message that RSS babies

> teeth don't come in at the " usual " places sometimes. Usually

babies

> get their " front teeth " on their lower jaw first. Maybe I was just

> dreaming..Isaac is teething but I can't tell which tooth is trying

> to " come out " . I am assuming it's teething because he will be 7 mos

> on Thursday and he is drooling like you wouldn't believe! Betcha I

> could fill up a bucket....to bad the vet won't take a drool

> sample!!

>

> Thanks for listening!

>

> Mimi

> (Mom to Isaac, RSS, Hypothyroidism)

August 16, 2004

hi mimi!!

feel free to vent anytime, hopefully it helped you to feel a little

better getting somethings off your chest!! ((HUGS)) to you!!

now as far as the teething, christopher didnt get his first tooth

until he was 8 or 9 months old and he got his bottom front teeth in

first instead of the normal top teeth first!!! so i know how you

feel we never knew which tooth was coming!!?!?! very hard to use

teething gel when you dont know where to put it!!! and i feel you

pain my 1yr old is now teething and has been having a rough time

with the pain, advil seems to help him the best!!

good luck with your cat, unfortunatly i have no words of wisdom on

how you are going to collect pee, maybe put some cotton balls in the

box and hope you get a hit!!!?!?! take care and take a deep

breath!! ((HUGS))!!

jodie c. (CAN'T WAIT FOR SCHOOL TO START!!!!)

(nicholas-6 nonrss, christopher-3 1/2 rss 25lbs 1oz 34 3/4 "

periactin, ght genotropin(on hold 3m), ADHD (possible), assmentry

(left side 1cm), johnathon-1yr nonrss)

> Hi all-

>

> Just need to vent and ask a question..but first the vent part!

>

> We are in the process of selling our home and looking for a new

> place to live which is sooo stressful and I am now workin 3, 8

hour

> days per week.And on my days " off " we have endocrine appts,

> pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

> they have to check his TSH levels every other month which means

that

> have to draw blood. I drive about 30 minutes to take him to the

> children's hospital in Ft. Worth because they only deal with

> kids..so you would think they would be able to do it. This last

time

> they poked him in each arm and couldn't get a vein so they cut his

> heel and squeezed a full tube out..It took 30 minutes and he

> screamed like you wouldn't believe. This is the 2nd time in a row

> they have done this. When he had his OT appt. this last week she

> noticed that he is still not wanting to bear any weight on his

legs.

> In fact if you touch his feet he curls his toes and turns them

> outward. She thinks that the heel poking is causing a sensory

> problem and that he is resisting anything to do with his feet

> because he associates them with pain. So not only do I worry

about

> his developmental delays due to the RSS but this is something that

> is affecting him that shouldn't.

>

> On top of all that, my cat has been peeing out side of the litter

> box so I took her to the vet because that usually means a urinary

> tract infection and they told me to get a urine sample!! They gave

> me a little squeezy thing and a container and told me that it

would

> be void if it was refrigerated longer than 12 hours!

>

> Driving home from the vet I just laughed as I thought about all of

> the insanity that we go through...I had to laugh because if I

didn't

> the overwhelming feeling would make me cry. I feel like the

> Tazmanian devil about 98% of the time..anyone feel the same way?

>

> Well if you don't maybe you can tell me how the heck am I supposed

> to lean a catbox on some phone books and have her pee there so I

can

> squeeze it up and make sure to keep in the fridge no longer than

12

> hours!!!

>

> Enough of that...now my question-

>

> I thought I read somewhere on a previous message that RSS babies

> teeth don't come in at the " usual " places sometimes. Usually

babies

> get their " front teeth " on their lower jaw first. Maybe I was just

> dreaming..Isaac is teething but I can't tell which tooth is trying

> to " come out " . I am assuming it's teething because he will be 7

mos

> on Thursday and he is drooling like you wouldn't believe! Betcha I

> could fill up a bucket....to bad the vet won't take a drool

> sample!!

>

> Thanks for listening!

>

> Mimi

> (Mom to Isaac, RSS, Hypothyroidism)

August 16, 2004

Mimi

Here are my limited thoughts! ha first the cat...........well I won't go

there..........when my started to do that, I ended up having to put him

down. My kids think he's gone to a farm where he can pee outside all day

long. UGH!

Now for the teeth. 7 months is early even for non RSS kids. That being

said...........all kids drool LIKE CRAZY for months before the tooth pops

through. My daughter (non RSS was 9 months old when her first tooth came

through, but I recall the diaper rashes, red cheeks, drooling from 6 months

onwards). Adam's teeth finally came through a few days after his first

birthday. His teeth DID come in in the right order......the bottom 2 centre

teeth first, then the upper and then the neighbours on each side of that;

upper and lower as time goes on.

I am interested to read if anyone else had the teeth come in at different

times. Oh just to add to that, Adam has his adult front 4 teeth (same order)

and he's 11 1/2 now, the rest are coming in the right order, but they are

erupting all over his mouth! The dentist just loves us..........I think he's

planning his retirement on Adam's mouth alone!

Debby

Taz needs to vent and a teething question- long

> Hi all-

>

> Just need to vent and ask a question..but first the vent part!

>

> We are in the process of selling our home and looking for a new

> place to live which is sooo stressful and I am now workin 3, 8 hour

> days per week.And on my days " off " we have endocrine appts,

> pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

> they have to check his TSH levels every other month which means that

> have to draw blood. I drive about 30 minutes to take him to the

> children's hospital in Ft. Worth because they only deal with

> kids..so you would think they would be able to do it. This last time

> they poked him in each arm and couldn't get a vein so they cut his

> heel and squeezed a full tube out..It took 30 minutes and he

> screamed like you wouldn't believe. This is the 2nd time in a row

> they have done this. When he had his OT appt. this last week she

> noticed that he is still not wanting to bear any weight on his legs.

> In fact if you touch his feet he curls his toes and turns them

> outward. She thinks that the heel poking is causing a sensory

> problem and that he is resisting anything to do with his feet

> because he associates them with pain. So not only do I worry about

> his developmental delays due to the RSS but this is something that

> is affecting him that shouldn't.

>

> On top of all that, my cat has been peeing out side of the litter

> box so I took her to the vet because that usually means a urinary

> tract infection and they told me to get a urine sample!! They gave

> me a little squeezy thing and a container and told me that it would

> be void if it was refrigerated longer than 12 hours!

>

> Driving home from the vet I just laughed as I thought about all of

> the insanity that we go through...I had to laugh because if I didn't

> the overwhelming feeling would make me cry. I feel like the

> Tazmanian devil about 98% of the time..anyone feel the same way?

>

> Well if you don't maybe you can tell me how the heck am I supposed

> to lean a catbox on some phone books and have her pee there so I can

> squeeze it up and make sure to keep in the fridge no longer than 12

> hours!!!

>

> Enough of that...now my question-

>

> I thought I read somewhere on a previous message that RSS babies

> teeth don't come in at the " usual " places sometimes. Usually babies

> get their " front teeth " on their lower jaw first. Maybe I was just

> dreaming..Isaac is teething but I can't tell which tooth is trying

> to " come out " . I am assuming it's teething because he will be 7 mos

> on Thursday and he is drooling like you wouldn't believe! Betcha I

> could fill up a bucket....to bad the vet won't take a drool

> sample!!

>

> Thanks for listening!

>

> Mimi

> (Mom to Isaac, RSS, Hypothyroidism)

>

August 16, 2004

Jodie........it is normal for the bottom two to come in first. Oh

wait......OK now I'm confused, I'm going to get out the baby book........Ok

I checked my book " what to expect in the first year " and it says the first

tooth BOTTOM ( I thought so) erupts somewhere around 7 months. Of course

that is an estimate (for the average baby).

Debby

Re: Taz needs to vent and a teething question- long

> hi mimi!!

> feel free to vent anytime, hopefully it helped you to feel a little

> better getting somethings off your chest!! ((HUGS)) to you!!

>

> now as far as the teething, christopher didnt get his first tooth

> until he was 8 or 9 months old and he got his bottom front teeth in

> first instead of the normal top teeth first!!! so i know how you

> feel we never knew which tooth was coming!!?!?! very hard to use

> teething gel when you dont know where to put it!!! and i feel you

> pain my 1yr old is now teething and has been having a rough time

> with the pain, advil seems to help him the best!!

>

> good luck with your cat, unfortunatly i have no words of wisdom on

> how you are going to collect pee, maybe put some cotton balls in the

> box and hope you get a hit!!!?!?! take care and take a deep

> breath!! ((HUGS))!!

> jodie c. (CAN'T WAIT FOR SCHOOL TO START!!!!)

> (nicholas-6 nonrss, christopher-3 1/2 rss 25lbs 1oz 34 3/4 "

> periactin, ght genotropin(on hold 3m), ADHD (possible), assmentry

> (left side 1cm), johnathon-1yr nonrss)

>

> > Hi all-

> >

> > Just need to vent and ask a question..but first the vent part!

> >

> > We are in the process of selling our home and looking for a new

> > place to live which is sooo stressful and I am now workin 3, 8

> hour

> > days per week.And on my days " off " we have endocrine appts,

> > pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

> > they have to check his TSH levels every other month which means

> that

> > have to draw blood. I drive about 30 minutes to take him to the

> > children's hospital in Ft. Worth because they only deal with

> > kids..so you would think they would be able to do it. This last

> time

> > they poked him in each arm and couldn't get a vein so they cut his

> > heel and squeezed a full tube out..It took 30 minutes and he

> > screamed like you wouldn't believe. This is the 2nd time in a row

> > they have done this. When he had his OT appt. this last week she

> > noticed that he is still not wanting to bear any weight on his

> legs.

> > In fact if you touch his feet he curls his toes and turns them

> > outward. She thinks that the heel poking is causing a sensory

> > problem and that he is resisting anything to do with his feet

> > because he associates them with pain. So not only do I worry

> about

> > his developmental delays due to the RSS but this is something that

> > is affecting him that shouldn't.

> >

> > On top of all that, my cat has been peeing out side of the litter

> > box so I took her to the vet because that usually means a urinary

> > tract infection and they told me to get a urine sample!! They gave

> > me a little squeezy thing and a container and told me that it

> would

> > be void if it was refrigerated longer than 12 hours!

> >

> > Driving home from the vet I just laughed as I thought about all of

> > the insanity that we go through...I had to laugh because if I

> didn't

> > the overwhelming feeling would make me cry. I feel like the

> > Tazmanian devil about 98% of the time..anyone feel the same way?

> >

> > Well if you don't maybe you can tell me how the heck am I supposed

> > to lean a catbox on some phone books and have her pee there so I

> can

> > squeeze it up and make sure to keep in the fridge no longer than

> 12

> > hours!!!

> >

> > Enough of that...now my question-

> >

> > I thought I read somewhere on a previous message that RSS babies

> > teeth don't come in at the " usual " places sometimes. Usually

> babies

> > get their " front teeth " on their lower jaw first. Maybe I was just

> > dreaming..Isaac is teething but I can't tell which tooth is trying

> > to " come out " . I am assuming it's teething because he will be 7

> mos

> > on Thursday and he is drooling like you wouldn't believe! Betcha I

> > could fill up a bucket....to bad the vet won't take a drool

> > sample!!

> >

> > Thanks for listening!

> >

> > Mimi

> > (Mom to Isaac, RSS, Hypothyroidism)

>

August 16, 2004

hi mimi,

sorry to hear you are having such a rough time with the blood drawing have

they used a butterfly neddle on him this the only way they can get jacob do to

his size and weight.and i aggree with the other mom find the one that does it

right and make sure he/she is there each time you go.

as his teeth i remember when jacob got his first (teeth) he was almost a year

they came in by twos and his bottem ones came first then the side top ones then

the middle top one and until alot of them were in them all came in by two's

as for the cat good luck find a liner and put it on the top of the litter and

hope she will use it.

hugs to you cara mom to jacob

fairiegirl98 wrote:

Hi all-

Just need to vent and ask a question..but first the vent part!

We are in the process of selling our home and looking for a new

place to live which is sooo stressful and I am now workin 3, 8 hour

days per week.And on my days " off " we have endocrine appts,

pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

they have to check his TSH levels every other month which means that

have to draw blood. I drive about 30 minutes to take him to the

children's hospital in Ft. Worth because they only deal with

kids..so you would think they would be able to do it. This last time

they poked him in each arm and couldn't get a vein so they cut his

heel and squeezed a full tube out..It took 30 minutes and he

screamed like you wouldn't believe. This is the 2nd time in a row

they have done this. When he had his OT appt. this last week she

noticed that he is still not wanting to bear any weight on his legs.

In fact if you touch his feet he curls his toes and turns them

outward. She thinks that the heel poking is causing a sensory

problem and that he is resisting anything to do with his feet

because he associates them with pain. So not only do I worry about

his developmental delays due to the RSS but this is something that

is affecting him that shouldn't.

On top of all that, my cat has been peeing out side of the litter

box so I took her to the vet because that usually means a urinary

tract infection and they told me to get a urine sample!! They gave

me a little squeezy thing and a container and told me that it would

be void if it was refrigerated longer than 12 hours!

Driving home from the vet I just laughed as I thought about all of

the insanity that we go through...I had to laugh because if I didn't

the overwhelming feeling would make me cry. I feel like the

Tazmanian devil about 98% of the time..anyone feel the same way?

Well if you don't maybe you can tell me how the heck am I supposed

to lean a catbox on some phone books and have her pee there so I can

squeeze it up and make sure to keep in the fridge no longer than 12

hours!!!

Enough of that...now my question-

I thought I read somewhere on a previous message that RSS babies

teeth don't come in at the " usual " places sometimes. Usually babies

get their " front teeth " on their lower jaw first. Maybe I was just

dreaming..Isaac is teething but I can't tell which tooth is trying

to " come out " . I am assuming it's teething because he will be 7 mos

on Thursday and he is drooling like you wouldn't believe! Betcha I

could fill up a bucket....to bad the vet won't take a drool

sample!!

Thanks for listening!

Mimi

(Mom to Isaac, RSS, Hypothyroidism)

August 16, 2004

Mimi,

Are they trying to take the blood at Dr. Willcutts office, or at the

lab? We had a problem with the nurses in the doctors office trying to

put in an IV (8 tries!). They finally gave up. At the lab, they get a

veign the first time every time! (Over at the hospital too!) You can

ask for an anasthesiologist or specialist, and they do a better job!

Cutting his feet is rediculous! They could try a veign behind his

knee first!! (Not as precious a spot!) I would be furious too! Sorry

lady! Sometime they are great, and sometimes they drive me nuts!!!

(Our appointment is Thursday!) I am so frustrated for you!

Good luck with your cat! (I can't imagine!)

Carmen

August 16, 2004

Hi Mimi,

I can relate to your frustration over the bloods. Olivia had to

have bloods done when she was 11 months and I'd just had my heart

surgery so I couldn't go with them... to make a long story short, my

husband has little to no experience with the medical profession and

the stuck her 8 times before calling in the Dr. to do a neck stick!

I was quite furious since she struggled so hard that she pulled both

ham strings! I now tell who ever is doing her stick that she has

only ONE try and then the Dr is being called in to do it.

I'm not much help with the teething, both of my kids teethed very

early. got her bottom 2 teeth at 3months and 5 days...

needless to say that was the day that I stopped nursing her! then

she got 2 a month until they were all in, even her 2 year molars

came in at 16months. Olivia got her first 2 teeth at 5 months old

but she was a preemie so her adjusted age was 3 months. I think

that it's partially genetic because when my parents adopted me at 14

months old I had all of my teeth including my 2 year molars... just

my 2 cents there!

As for the cat... hmmmm, I have no idea!!! We had a cat that

liked to sleep in Olivia's crib during the day (never when Olivia

was in the crib though!!!) and when we took the crib down she peed

on Olivia's big girl bed 5 times in 2 days!!! The vet said that she

was very mad and was acting out, there was no infection, so maybe

it's to do with your move???? Any way our cat went to my parents

farm and she's still there doing great.

I'm glad that you feel safe to vent here, it sure helps to get a

load off and we know what you're going through too!

Take care!

Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS, OI

> Hi all-

>

> Just need to vent and ask a question..but first the vent part!

>

> We are in the process of selling our home and looking for a new

> place to live which is sooo stressful and I am now workin 3, 8

hour

> days per week.And on my days " off " we have endocrine appts,

> pediatric weight checks, etc, etc. Since Isaac has hypothyroidism

> they have to check his TSH levels every other month which means

that

> have to draw blood. I drive about 30 minutes to take him to the

> children's hospital in Ft. Worth because they only deal with

> kids..so you would think they would be able to do it. This last

time

> they poked him in each arm and couldn't get a vein so they cut his

> heel and squeezed a full tube out..It took 30 minutes and he

> screamed like you wouldn't believe. This is the 2nd time in a row

> they have done this. When he had his OT appt. this last week she

> noticed that he is still not wanting to bear any weight on his

legs.

> In fact if you touch his feet he curls his toes and turns them

> outward. She thinks that the heel poking is causing a sensory

> problem and that he is resisting anything to do with his feet

> because he associates them with pain. So not only do I worry

about

> his developmental delays due to the RSS but this is something that

> is affecting him that shouldn't.

>

> On top of all that, my cat has been peeing out side of the litter

> box so I took her to the vet because that usually means a urinary

> tract infection and they told me to get a urine sample!! They gave

> me a little squeezy thing and a container and told me that it

would

> be void if it was refrigerated longer than 12 hours!

>

> Driving home from the vet I just laughed as I thought about all of

> the insanity that we go through...I had to laugh because if I

didn't

> the overwhelming feeling would make me cry. I feel like the

> Tazmanian devil about 98% of the time..anyone feel the same way?

>

> Well if you don't maybe you can tell me how the heck am I supposed

> to lean a catbox on some phone books and have her pee there so I

can

> squeeze it up and make sure to keep in the fridge no longer than

12

> hours!!!

>

> Enough of that...now my question-

>

> I thought I read somewhere on a previous message that RSS babies

> teeth don't come in at the " usual " places sometimes. Usually

babies

> get their " front teeth " on their lower jaw first. Maybe I was just

> dreaming..Isaac is teething but I can't tell which tooth is trying

> to " come out " . I am assuming it's teething because he will be 7

mos

> on Thursday and he is drooling like you wouldn't believe! Betcha I

> could fill up a bucket....to bad the vet won't take a drool

> sample!!

>

> Thanks for listening!

>

> Mimi

> (Mom to Isaac, RSS, Hypothyroidism)

August 17, 2004

Hi Mimi:

I know how you feel about them poking around. When was a few

months old I had to take her to the hospital lab for blood work and

the woman was taking her time and finally just about ready and oops

forgot to put her gloves on and so I had to try to calm again

and at that she couldn't get it. So I got mad and said forget we will

be back at another time. These people are dealing with young babies

and kids - BE READY!!! However, when was 14 months old at the

er for dehydration they actually sent me home because they couldn't an

IV in her because she was too small, needless to say I was back 5

hours later. The long and short after several tries that night they

finally called in a NICU nurse and it took her 2 tries. So my

suggestion is that you request they have a NICU nurse come in. They

have the equipment for small babies with small veins and they are good

at it. I would definitely stop the foot pricking. Before I even

read the part about the OT I was thinking " that poor baby " and

especially poor you because I would not have been able to listen to my

kid scream through that.

As far as the teething was 11 months old when she got her first

tooth on the bottom and it took a long time to even come up. It seems

to me that my kids drooled for a few months before the tooth even cut

the gum. In fact my 2 year old who is not RSS has this one tooth on

the bottom which literally is taken a month to cut the gum. To figure

out which tooth it is get one the Gerber rubber tooth cleaners and put

it on your finger and feel around. You will feel a little bump for

which one it is.

Now the cat, well like everyone else says good luck. It was bad

enough trying to get a urine sample from before she was 2 and

not potty trained so never mind a cat. I guess the vet didn't have

any suggestions huh? Sorry.

Again, definitely try and ask that they get a NICU nurse in for the

blood work!!!

B

Mom to 4 1/2 RSS and Kelli 2 NONRSS