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Wilm's tomours

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Hi Liz:-)

RSS children are not at risk for Wilm's tumors. The doctors originally

thought so because they saw them in asymmetrical children. What they found

is that these tumors were prevalent in children when he small side was the

" normal " side. In RSS children the large side is the normal side. Somehow

this made a difference is susceptibility to these tumors.

J

PS I am having fun meeting everyone at the convention. Maybe next year.

Saundra, Meribeth Holec is moving to Seattle today. I do not have her new

address but I will. She has an RSS boy and I think she is going to be be

looking at Children's in Seattle. It would be great if you could get in

touch with her somehow and give her the " scoop " on the doctors before she

gets started on consultations. They may already be listed out there since

her husband Tom has already been living there and working. Meribeth is a

wonderful person and you will enjoy getting to know her. I will miss her.

>

> Reply-To: RSS-Support

> Date: Sat, 24 Jul 2004 00:11:49 -0000

> To: RSS-Support

> Subject: Re: misinformed, I hope

>

>

>>>

>>

> ,

>>> We are home. We have been out of town for a while. WebMD

> Health

>>> lists " and/or abnormalities of the kidney and urinary tract " in

>> the

>>> list of characteristics. Medline Plus Med Encyclopedia

>> says, " there

>>> may be an increased risk for tumors of the liver " . I hope this

> is

>>> wrong. It just scared me when I read it. Please let me know

> what

>>> you know about this. Liz

>

>

>

>

>

>

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