Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Hi Liz:-) RSS children are not at risk for Wilm's tumors. The doctors originally thought so because they saw them in asymmetrical children. What they found is that these tumors were prevalent in children when he small side was the " normal " side. In RSS children the large side is the normal side. Somehow this made a difference is susceptibility to these tumors. J PS I am having fun meeting everyone at the convention. Maybe next year. Saundra, Meribeth Holec is moving to Seattle today. I do not have her new address but I will. She has an RSS boy and I think she is going to be be looking at Children's in Seattle. It would be great if you could get in touch with her somehow and give her the " scoop " on the doctors before she gets started on consultations. They may already be listed out there since her husband Tom has already been living there and working. Meribeth is a wonderful person and you will enjoy getting to know her. I will miss her. > > Reply-To: RSS-Support > Date: Sat, 24 Jul 2004 00:11:49 -0000 > To: RSS-Support > Subject: Re: misinformed, I hope > > >>> >> > , >>> We are home. We have been out of town for a while. WebMD > Health >>> lists " and/or abnormalities of the kidney and urinary tract " in >> the >>> list of characteristics. Medline Plus Med Encyclopedia >> says, " there >>> may be an increased risk for tumors of the liver " . I hope this > is >>> wrong. It just scared me when I read it. Please let me know > what >>> you know about this. Liz > > > > > > Quote Link to comment Share on other sites More sharing options...
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