Re: misinformed, I hope

[Guest guest]

Hi Liz,

Many of the male RSS kids have hypospadiius and shawl scrotums that

can lead to urinary track infections. I can't speak for the female

RSS kids. Braeden will need hypospadius surgery in the near

future. We are waiting on weight gain and for his lungs to get

stronger. We just don't want to put him in the hospital for surgury

that can wait at the risk of picking up an infection.

If I remeber correctly RSS kids can be at risk for kidney tumours

when they have assymetry. I believe they are called " Wilms

tumours " . You can have an ultrasound done to check the kidneys.

Although, I beleive Salem posted a few weeks ago that they

have found RSS kids are " not " at a risk of wilms tumours.

Hopefully, she will have more info once the convention is over.

Saundra Mom to Braeden(RSS) and Delaney 21 month twins

>

,

> We are home. We have been out of town for a while. WebMD Health

> lists " and/or abnormalities of the kidney and urinary tract " in

the

> list of characteristics. Medline Plus Med Encyclopedia

says, " there

> may be an increased risk for tumors of the liver " . I hope this is

> wrong. It just scared me when I read it. Please let me know what

> you know about this. Liz

[Guest guest]

> >

>

,

> > We are home. We have been out of town for a while. WebMD

Health

> > lists " and/or abnormalities of the kidney and urinary tract " in

> the

> > list of characteristics. Medline Plus Med Encyclopedia

> says, " there

> > may be an increased risk for tumors of the liver " . I hope this

is

> > wrong. It just scared me when I read it. Please let me know

what

> > you know about this. Liz