Re: 's endoscopy and breath hydrogen test

November 11, 2004

Hi

First of all, you have to realise, what ever has been found from the

tests has just had, you are better off for knowing now. If

there is anything going on, better now than when other symptoms

start appearing.

YOU are the greatest advocate for ,and have been for alot of

our children.

I have just spent 2 nights in a hospital room with Liam, so know

that tired feeling, will save Liams story for tomorrow.

Thinking of you all, and the hampster

Jody ( Liam, Cameron and Damian)

>

> Hello everyone -

>

> First, I am going to post something but if any of you know

something

> BAD about what I am posting, please do NOT email me. We are

already

> nervous, and I really would rather be in denial....

>

> went into Children's Hospital Monday afternoon, and we had

> her put on the Rehab Floor, to avoid sick kids. VERY tough floor,

> though. Many tragedies. Her roommate was a 16-year girl who last

> winter, was a beautiful, happy go lucky girl who was a passenger

in

> a car hit head on.... now she can not do anything on her own, can

> not speak, and her family is shattered.

>

> had her IV put in that night so that she could be NPO for

> the endoscopy, scheduled for Tues at 9:30am. Well, this is why we

> always insist on IVs, even if a doctor says " well, we'll schedule

> her first so you really don't need an IV. " Cuz 9:30am slowly and

> painfully went on and on until 2:00pm!!!!! Endoscopy went awesome

> and easily -- and I was given the report at the end to read which

> had two numbered points about how the stomach looked great and

that

> there were " scattered duodenal lesions " or some spelling like

that.

> And that biopsies of places and the lesions were taken and sent

off.

>

> was able to eat from 5-8pm, before going NPO again all

> night. I was so tired, sleeping in a broken chair sharing a

room.

> Then this morning, the 4 hour breath hydrogen test -- easy as

pie.

> Drink some sugar water, and then every 30 minutes she blows into a

> straw and blows up a little balloon. During this time, a nurse

> comes in and is working on the discharge papers and she says

> something vague like " did the doctor explain the endoscopy

> results? " so I said the two things, stil not thinking anything

> bad. And she just had this look on her face... so the whole way

> home I'm pondering it and realizing, uh oh, this duodenal lesion

> thing, maybe this is something that could be nothing, could be

bad???

>

> I have gone on line for an hour, and gosh, so many links that tie

> these lesions to cancer. But there are other parts that tie them

to

> h.pylori, and I know a bunch of our kids have tested positive for

> that! So I finally got off the internet and decided that I would

> post here - to see if any of you have experience with

> these " lesions " . And to wait for the pathology results in a

couple

> days.

>

> The saddest news is that 's beloved hamster, Possible, die

> while she was at the hospital. She has been devastated.

Incredible

> what a tiny animal can mean to a child. A major funeral is

> planned....

>

> Salem

November 11, 2004

Jenn,

FIrst of all, I hope is ok, very sad to lose a pet.

And remember - you were on a rehab floor. The nurse may not be very

familiar with the terminology of the scope. A lesion to her may

mean cancer, but with the scope it means an area of redness,

swelling, etc. Take a deep breath!

There is no way a rehab nurse would have access to more medical

information or the inside track within hours. She probably saw the

word 'lesion' and went straight to cancer. I am confident that at

worse, it may be a small ulcer starting.

KEep us posted!

Beth