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Hi , welcome to the group!

I'm Leah and my 4.75 year old daughter has RSS. We love having

the RSS adults post and answer questions for us! There is an adult

RSS listserve here on Yahoo, I believe it's called " RSS People " .

They are a great group of people and will welcome you with open arms

also! We just had a convention in Chicago last weekend and 7 RSS

adults were able to attend, it was great!!!!

Looking forward to getting to know you better soon!

Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs, 33 " , RSS, OI,

lactulose, senokot, zantac, tums, Pamidronate IV infusions

> Hi everyone,

>

> I'm new to the group. I'm from Houston and am 27 with

RSS. I

> haven't seen any adults with RSS, so if there are any, please

email

> me. Otherwise, I will field questions from all of you parents out

> there with children who have RSS.

>

> Thanks!

>

>

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