Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 megan, you and me both on the asymmetry thing. i had talk to another mom at the convention that had suggested the scandishakes and she said if you go to the web site and get the phone number they will send you a sample cara(mom)jacob 71/2 SGA/RSS??? 32 lb 3 " 7' zertec prevacid peraction (maybe ADD) breena 4 ethan 2 mbdonnell wrote: Hi, I too was at the convention (my first) with my daughter Emerence who was diagnosed SGA but with asymmetry (although I thought that was only for RSS) but go figure. Anyway, THANK YOU to EVERYONE there - you were ALL so helpful and friendly. I was also just talking to a friend of mine who has Cystic Fibrosis, made it through med school but had to drop out of her residency to get a double lung transplant on 1/3/03. She mentioned she was prescribed Scandishakes to help with nutrition and calories (she said it tasted better than Ensure to her). Anyone heard of these? By the way, she is doing REALLY well though her adopted brother died of CF just about 1 month ago (her parents adopted him because he had been abandoned as a baby b/c he had CF). , 4.5, Emerence SGA but now 17lb 7 oz and 29 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 I had Liam at his local dentist yeaterday and he said he has asymmetry of his Jaw and face. So I am really confused right now. According to the Magic website RSS section assyetry is unique to RSS. Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04 and Jed (11 years old) Tourettes, CAPD,SVT. SW Orlando FL **Push for Bush 'cause Kerry is scary** Check out my group: http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 You did meet me. The last day we got a picture with Oliva, Chistopher and Jaccob and Liam..... Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04 and Jed (11 years old) Tourettes, CAPD,SVT. SW Orlando FL **Push for Bush 'cause Kerry is scary** Check out my group: http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728 Quote Link to comment Share on other sites More sharing options...
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