Re: Our update and ??'s...

[Guest guest]

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,

Someone posted on here not too long ago that anytime we seem to question

actions and eating habits to ask ourselves if we would be questioning

these same things if it were a " normal developing " child doing these same

things. So I repeat this to myself when I question something - yes, I

feel that paronoia at times too.

I'm glad you're sticking with the diet and it was good to hear about

Josh's progress

and the happy huggy moments you two share.

Wish I knew some answers. I will say LJ goes through his wants of

certain items at times, but I just assumed he's developing his own style

of eating habits (sort of like when I sit down to eat 4 pastelles at once

(its a Spanish food I am hooked on that I eat when LJ isn't around)

on Long Island New York

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On Wed, 23 May 2001 15:20:15 EDT RT2@... writes:

> . I guess I " m just a little

> paranoid when

> I see him enjoying something too much.. LOL..

>

> Anyway, we're sticking with the diet, and praying that we'll

> see more

> improvements. Any hints, thoughts, or words of advice would be

> appreciated.

> Thanks!

>

>

> Married to Dan

> Mom to:

> Dana (3/4/98)

> 36 week preemie, now a spirited 3 y/o

> ~~~~~and~~~~~~

> (3/26/99)

> 33 week preemie, now a 2 y.o. growing boy!

> Hearing impaired/mild autism

> ~~~~~~~~~~~~~~~~~

> <A

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HREF= " http://www.butcherfamily.freeservers.com " >http://www.butcherfamily.

freeservers.com</A>

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[Guest guest]

In a message dated 05/24/2001 10:08:40 AM Eastern Daylight Time,

ceejays3@... writes:

> ! I was

> wondering if your son was taken DMG? Since I have been giving it to my son,

> he eats almost everything I give him and has gained 2 lbs. My son also

> loves

> potatos he also enjoys his waffles which are CF/GF/YF.

Not yet, I've been considering giving it to him but am still reading up.

We've only tried one other supplement,SNT, not long ago and quit because it

made him vomit. I'm not sure if we should try again to see if it was just a

fluke (I got the stomach flu a few days after that so maybe he had it too at

that point) or if it was a reaction to the SNT.. And I'm not sure if I should

get Kirkland's DMG with B-12 or the DMG at the store with B-15.. any thoughts

on that?

> Anyway I want to tell you I took a look at your web page and your children

> are beauiful!

> Best of luck

>

Thank you! I'm very proud of them both.

..

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

Hearing impaired/mild autism

~~~~~~~~~~~~~~~~~

<A

HREF= " http://www.butcherfamily.freeservers.com " >http://www.butcherfamily.freeser\

vers.com</A>

[Guest guest]

Hi

We put DD (aged 4) on TMG just last week. Immediately, she started trying to

say more, and is echoing much more consistently. It makes her a little more

hyper, but we're prepared to put up with that for the extra speech.

This week, we went from no consistent labels to four, (not often

spontaneous), she tells us when she's done eating, and is trying out

different ways of asking for things.

Margaret

[Guest guest]

In a message dated 05/24/2001 10:49:32 AM Eastern Daylight Time,

ceejays3@... writes:

> >I have never heard of SNT, I will have to look that up!

> Besides my son taken DMG he is also taken Super Nu Thera.

>

SNT is Super Nu Thera.. I'm considering giving it another go on a weekend

where we don't have anythign going on.. If he starts vomiting again, I don't

want to be out and about. If he doesn't I'll say that round one was a fluke

or the flu and hopefully we'll be able to continue with it.. We'll see..

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

Hearing impaired/mild autism

~~~~~~~~~~~~~~~~~

<A

HREF= " http://www.butcherfamily.freeservers.com " >http://www.butcherfamily.freeser\

vers.com</A>

[Guest guest]

Hi

I dont real have ant helpful tips, I am very new at this myself. We have

been CF for almost 2 months and GF for 6 weeks, although I put him back on

gluten for 2 days to see if there was a point! And there was! I was

wondering if your son was taken DMG? Since I have been giving it to my son,

he eats almost everything I give him and has gained 2 lbs. My son also loves

potatos he also enjoys his waffles which are CF/GF/YF.

Anyway I want to tell you I took a look at your web page and your children

are beauiful!

Best of luck.

a, Mother

to 2 y/o

HFA

>From: RT2@...

>Reply-To: GFCFKids

>To: GFCFKids

>Subject: Our update and ??'s...

>Date: Wed, 23 May 2001 15:20:15 EDT

>

> Just thought I'd send you all an update to 's progress.. We've

>been GF since 4-2-01 and CF since 4-23-01 (1 month today!).

>

> We seem to have levelled off in some areas. Josh's speech hasn't

>improved since he learned 'more' (verbal and sign) and 'momma'. He's

>babbling a little more, but no new words, and I haven't heard him say

>'dada'

>or 'ba' (with intent to mean 'ball' or 'bottle', not just babbling) in a

>long

>time. He is signing and saying 'more' A LOT, especially in terms of food

>or

>drink! LOL!

>

> We have made some improvements in terms of social things.. Sometimes

>if

>I crouch down and hold my arms open wide, he'll run to me and hug me..

>Sometimes when I'm holding him he'll take my face in his hands and kiss me

>on

>the lips. He is making a little more eye contact with me, a second or two

>instead of the split second thing he used to do. When I yell for him, a

>little over half the time he'll actually COME to me. He's beginning to

>understand the idea of mischief and right and wrong. He doesn't CARE that

>what he's doing is wrong, when I put him in time out or yell at him it

>doesn't phase him in the slightest.. Definitely doesn't stop him from doing

>it the next time.. But when I catch him doing it, he covers his eyes and

>runs

>away, so you know that he knows that he wasn't supposed to be doing what he

>was doing.. KWIM? He's starting to fight with his sister, which is an

>interaction, no matter how unpleasant to me it might be. Visual stimming

>is

>holding pretty constant, but headbanging has decreased to almost nothing.

>I

>haven't seen him flap his hands in a couple weeks, so that's good too.

>

> Also, I posted this yesterday but didn't get any replies, so I'll

>post

>again here.. Before, Josh gravitated towards the foods that gave him his

>fix.. brown, dry, and crunchy was his mantra.... After, he was eating

>everything in sight that I gave him.. Now, he's still eating in mass

>quantity, but he's limiting again.. He's refusing the GFCF chicken nuggets

>that he loved at the start, eating Hebrew National hot dogs instead.  He's

>refusing cereals and only wanting scrambled eggs..He's in LOVE with

>potatoes

>no matter what form they're in.  Is this just normal preferences coming out

>as he's discovering new foods or is he getting some kind of fix out of

>these

>foods and thus starting to limit to those?  I'm glad to see him eating so

>much, and glad to see him putting on a little weight for once, but dont'

>want

>him substituting one fix for another. I guess I " m just a little paranoid

>when

>I see him enjoying something too much.. LOL..

>

> Anyway, we're sticking with the diet, and praying that we'll see more

>improvements. Any hints, thoughts, or words of advice would be

>appreciated.

>Thanks!

>

>

>Married to Dan

>Mom to:

>Dana (3/4/98)

>36 week preemie, now a spirited 3 y/o

>~~~~~and~~~~~~

> (3/26/99)

>33 week preemie, now a 2 y.o. growing boy!

>Hearing impaired/mild autism

>~~~~~~~~~~~~~~~~~

><A

>HREF= " http://www.butcherfamily.freeservers.com " >http://www.butcherfamily.freese\

rvers.com</A>

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[Guest guest]

>From: RT2@...

>Reply-To: GFCFKids

>To: GFCFKids

>Subject: Re: Our update and ??'s...

>Date: Thu, 24 May 2001 10:14:22 EDT

>We've only tried one other supplement,SNT, not long ago and quit because it

>made him vomit. get Kirkland's DMG with B-12 or the DMG at the store with

>B-15.. any thoughts

>on that?

>

>I have never heard of SNT, I will have to look that up!

Besides my son taken DMG he is also taken Super Nu Thera.

Which has done wonders with eye contact and listening skills!

He now comes when I call for him and is understanding short

instructions...like Lets Go and Come here, Tata to mommy!

Although he is still not talking(he say the odd word but not often)

>I am thinking of starting him on a cranberry extract for yeast but Iam not

>sure he needs it. How do you know?

I have to do a little more reseaching myself. I live in Canada and if I ask

the Dr to run all these test. Iam sure they would tell me I am a drain on

Canadian Health Care!!

I am in wait to see a new Ped. and plan on speaking to her about

Diet, Vitamins ect. I hope she is not one of those Dr. who tell me there is

" NO PROOF THAT THESE THINGS HELP " Then I will be inseach for a new one

again.

I guess we will both have to read more!

Take care

a, Mother

to 2 o/y

HFA

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[Guest guest]

> Hi

>

> We put DD (aged 4) on TMG just last week. Immediately, she started

trying to

> say more, and is echoing much more consistently. It makes her a

little more

> hyper, but we're prepared to put up with that for the extra speech.

>

> This week, we went from no consistent labels to four, (not often

> spontaneous), she tells us when she's done eating, and is trying

out

> different ways of asking for things.

>

> Margaret

That's terrific! What's the difference between DMG and TMG?

Married to Dan

Mom to:

Dana (3/4/98)

36 week preemie, now a spirited 3 y/o

~~~~~and~~~~~~

(3/26/99)

33 week preemie, now a 2 y.o. growing boy!

Hearing impaired/mild autism

~~~~~~~~~~~~~~~~~

http://www.butcherfamily.freeservers.com

[Guest guest]

Hi Margaret,

Whats the diffirence between TMG and DMG?

Thanks a

Mother to

2 o/y

HFA

>From: MMacGregor@...

>Reply-To: GFCFKids

>To: GFCFKids

>Subject: Re: Our update and ??'s...

>Date: Thu, 24 May 2001 10:55:51 EDT

>

>Hi

>

>We put DD (aged 4) on TMG just last week. Immediately, she started trying

>to

>say more, and is echoing much more consistently. It makes her a little

>more

>hyper, but we're prepared to put up with that for the extra speech.

>

>This week, we went from no consistent labels to four, (not often

>spontaneous), she tells us when she's done eating, and is trying out

>different ways of asking for things.

>

>Margaret

>

>

>

[Guest guest]

>

>SNT is Super Nu Thera..

...

I never thought I am so use to long trem...I had to laugh when I read it!

Try starting with half a teaspoon and work up to a full one!

Thats what I did, however because my is only 23 lbs I wont go more

than that.

Good Luck

a Mother to

2 y/o

HFA

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