Introduction

[Guest guest]

Hello Everyone,

I just wanted to introduce myself. I am Danita's mother and the

grandmother of Deianira. Danita and I were fortunate enough to

attend the convention this year with Deianira. What an awesome

weekend. I wish we could have had better news from our visit with

Dr. H., but at least we have a much better understanding of what

Daya is facing in her life and treatment plan.

On the way home from Chicago Daya was talking about how much fun she

had. She said she sure had a lot of memories to take home with her

and the best part of memories is that they last forever.

Thank you to everyone who gave us advice on how to cope with aspects

of RSS treatment and ways to help Daya handle things.

I once saw a placard on a desk somewhere ( I can't remember where)

that said " No man ever stood so tall as when he stooped to help a

child " . That certainly applies to all the wonderful people at Magic

and the doctors who spend so much of their time to help these kids.

God Bless all of you and all of the children---Joyce