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Re: UGH- Doctors - A Little Venting

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I am sorry this happened to you. Your pediatrician should have been

more careful and alert. The problem is that 99.5% of the kids are

normal or catch up after all these tests. So, pediatricians go by

the majority. They rarely think out of the box. If it is a busy

practice the oversight is even greater. Did you send everything in

to Dr. H?

See you on Saturday!

-Malathi

>

> I was just going through 's medical records to send to Dr. H

> when I came across the pediatric GI's report which I reread again

and

> this time I guess paying closer attention. It's a report to the

ped

> about his evaluation and what his plan was but interestingly he

states

> " I do question whether she has some syndromic features. " He then

goes

> on to state that they will perform a a 72 hour fecal fat study and

> looking into her caloric intake. He then says that " should both of

> these be reasonable, then we would have to think that is may be a

> genetic syndrome and genetic consultation may be in order. I

> certainly would like to be sure this is not syndromic before

embarking

> on any invasive GI evaluation. " Well her test came back normal and

> guess what no one ever mentioned to me about taking her to a

> geneticist. Ashely was 17 months old when she saw the GI and she

is

> now 4 3/4. She was 3 3/4 when her cardiologist took action and her

> seen by a geneticist.

>

> UGH-Doctors!!!! I'm sure some things may be a little different had

her

> pediatrician read the report and took action on it or at least

> informed me what it said and I could have pushed the issue!

>

> As always, thanks for listening

>

> B

> 4 3/4 RSS and Kelli 2 Non RSS

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