Re: Some news from Great Plains Lab/BUTTER OK???

[Guest guest]

In a message dated 6/24/01 8:18:15 AM Eastern Daylight Time,

epickwick@... writes:

<< Does anyone on the list allow butter on the diet or tried it out??

>>

I'm going to try it out as soon as I can get to the HFS and get some organic

butter. We have given Hunter the Butter Shortbread cookies from Pamela's

before and he had no reaction. I'll let you know how it goes.

Jo (South Carolina)

[Guest guest]

At 08:31 am 6/24/01 -0400, you wrote:

>In a message dated 6/24/01 8:18:15 AM Eastern Daylight Time,

>epickwick@... writes:

>

><< Does anyone on the list allow butter on the diet or tried it out??

> >>

>

>I'm going to try it out as soon as I can get to the HFS and get some organic

>butter. We have given Hunter the Butter Shortbread cookies from Pamela's

>before and he had no reaction. I'll let you know how it goes.

You know what would be really handy to have?

1) a tube of pink liquid that turns blue when you put a drop on something

that contains gluten or casein

2) urine test strips to test our kids every week ourselves, inexpensively

Marty

[Guest guest]

On Sun, 24 Jun 2001 08:16:55 -0700 epickwick@... writes:

> Does anyone on the list allow butter on the diet or tried it out??

>

> Evelyn

>

>

*

No, I won't. There are so many substitutes, so why even do it? Butter

isn't a major GOTTA HAVE thing.

*

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[Guest guest]

Does anyone on the list allow butter on the diet or tried it out??

Evelyn

Some news from Great Plains Lab

> Hello, listmates! I had a consultation yesterday with

> Pam, a nurse at the Great Plains Laboratory. She shed

> some light on some issues that I thought I should

> share.

>

> Pam stated that their peptide test detects cow casein

> and some goat casein, but that human casein is

> distinct and their tests do not detect it. If a

> nusing child's mother is consuming gluten or casein,

> however, it will be passed through the breastmilk and

> will register as such.

>

> In Dr. Shaw's opinion, butter is safe to use. Pam

> said that butter does not contain milk protein, only

> fat, so it's okay. She said that if you have any

> qualms about it, clarify it and make it into ghee. I

> asked if they thought it was safe to use butter even

> if the child has a true milk allergy, and she said

> yes, she wouldn't hesitate to give it to a child who

> is allergic to milk for the same reasons as stated

> before.

>

> Pam also had some very interesting information. She

> said that not all cows produce this harmful casein.

> It has a genetic factor, and there are cows whose milk

> is safe for our children to consume. She said that

> there has been some talk with local dairy farmers

> about starting a dairy using only specially tested

> cows that don't produce the harmful casein. I know

> someone will ask, so I'll say it right now--I think

> these cows still produce casein, just not the kind

> that produces the opiate-like effect. I was on my

> cell phone driving down the road and didn't think to

> clarify that. So, ARE THERE ANY DAIRY FARMERS ON THIS

> LIST???? Speak up, we need you!! Start shipping the

> milk in to be tested!!! Seriously!

>

>

> Pam also said that there is some speculation as to

> whether the pasteurization processes that the milk is

> subjected to has anything to do with these peptides.

> Might make sense that there is this steady incline in

> autism since good ole Louis Pasteur.

>

>

> Just in case anyone doesn't know, when you have

> testing done at the Great Plains Lab, the fees include

> a phone consultation with Pam. Just call and they

> will set up an appointment for you to speak with her.

> She's very nice and will answer all your questions to

> the best of her knowledge.

>

> in Missouri

>

> =====

> Visit www.open-invitation.net/andrea to shop the newest product line from

House of Lloyd!

>

> __________________________________________________

>

[Guest guest]

That would be wonderful if we could use butter even in sparing amounts; I

like butter myself much better than margarine, and nobody around

here--even our health foods store--seems to carry an acceptable margarine.

Of course, not all the news from Great Plains was helpful; it sounds from

another post like soy should be totally eliminated and I'm afraid that

with us using Kinnekinneck breads that isn't completely possible at the

moment. I remember several weeks ago somebody on this list posted that

they were having butter for dinner and somebody else wrote back and said:

" How can you have butter and be gfcf? " but I don't think that question was

ever answered. As we explore new possibilities, we have to remember that

casein and gluten aren't in and of themselves bad; it's our children's

bodies that don't function properly and results in the need for

elimination. So if we could know that we were getting milk without the

harmful caseinates, and if it didn't cost an armor a leg, I think that

would be wonderful too. By the way, I don't agree that this diet isn't

harder than any other special diet; the combination of gluten and casein

elimination, plus the other things many have found the need to eliminate,

often makes replacements hard to find an/or expensive. And there's allway

the thing we thought was safe and suddenly hear is not and have to

research all over again; it never stops. And there isn't a simple test,

other than reactions--which can also be caused by other factors, to tell

you how you're doing. It would be great if there was a simple test to

give on the run to monitor as for diabetes. I'm not griping and I'm not

saying it's impossible, but depending on your income and your time and

your baking skills and the area you live in, this diet can certainly be a

challenge, though certainly worth it if it helps.

Cheryl

[Guest guest]

At 10:27 am 6/24/01 -0400, you wrote:

> > Does anyone on the list allow butter on the diet or tried it out??

>No, I won't. There are so many substitutes, so why even do it?

OTOH Mi-Del makes gluten free arrowroot cookies we stopped giving our son

because they have butter. So I wonder if he can have them again? And a

local chocolate maker/retailer makes great, inexpensive dark chocolate with

no milk, but it does contain butter fat.

We went to the chocolate place last weekend w/o realizing that there was

butter in the dark choc. So my son, who's 4 1/2 and getting used to all

this agreed to get salt water taffy as his treat while his sisters had

chocolate. I know he'd have preferred the chocolate.

I have two more things to say. One, my point is that butter is important

because it allows for more prepared foods in our kids' diets if it's ok.

And second, I think our kids are developing a maturity beyond their years

putting up with this strict regimen we've imposed on them.

I'm sure my son isn't the only one showing this understanding and

willingness to work with us on sticking with the diet. Anyone else want to

add to this?

Marty

[Guest guest]

In a message dated 6/24/01 4:41:17 PM Eastern Daylight Time,

efranucci1@... writes:

<< How would organic butter be different? >>

The only reason I would start with the Organic butter is because it

contains no growth hormones or other bad stuff. We have used Ghee before with

no problem and I might go with this again. We stopped because we never got a

straight answer whether it was okay or not on the GF/CF diet. I have always

used butter because I've always taken the natural approach to food. I just

don't like the fake substitutes. It would be nice to get a little more fat

in my son with the butter also.

Jo (South Carolina)

[Guest guest]

That is a wonderful idea Marty!!!!

> You know what would be really handy to have?

>

> 1) a tube of pink liquid that turns blue when you put a drop on something

> that contains gluten or casein

>

> 2) urine test strips to test our kids every week ourselves, inexpensively

>

> Marty

[Guest guest]

Remind me what's wrong with butter?? Doesn't real butter NOT have

casein, so it would be ok? Why do some people use clarified, or Ghee?

How do you clarify it yourself? How would organic butter be different?

Beth R.

On Sun, 24 Jun 2001 10:27:25 -0400 alwaysaway1@... writes:

>

> On Sun, 24 Jun 2001 08:16:55 -0700 epickwick@... writes:

> > Does anyone on the list allow butter on the diet or tried it out??

> No, I won't. There are so many substitutes, so why even do it?

[Guest guest]

inexpensive dark

> chocolate with

> no milk, but it does contain butter fat.

experts out there...so is this ok??????????

> salt water taffy as his treat

no gluten in this? that's surprising.......

please advise!

[Guest guest]

Well, margarine is said to be worse for us than butter and I have been

wondering what I am going to do to replace the Nucoa and Crisco. My DH

prefers butter and I prefer the taste of margarine. It is a matter of what

we were raised on. Dr. Semon has a diet that seems to be more strict than

the gfcf diet and it can also include the gfcf diet except that he says

butter is ok. I have not tried it purposely but Evan has eaten some things

with butter and it did not seem to faze him. I am going to try butter again

and see if there is any difference in Evan. But right now he is on an

increase in his Risperdal and we are wanting to see what that does so the

butter will have to wait a bit.

Betty

----- Original Message ----- >

> I LOVE butter. I truly DISLIKE margarine. Our home is almost completely

> gfcf -- if I could put butter back in the fridge, I'd be thrilled.

>

> I am really tempted to give it a try.

>

> Evelyn

> Mom to Austin (recovered from pdd) and (nt)

> 5 yr old twins