Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 hi all, today when i took jacob to school a teacher there saw our magic walkaton stuff and think her granddaughter has RSS she is 4 and is 34 in. tall and her weight is 23lb she just came off a g-tube and has seen a lot of doctors and when she goes they alway ask her if she has a syndrome. she went to thew magic site right away and was asking what would i tell her to do . i told her about our group but is ther andthing you all can think i should tell her. cara mom to jacob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Cara - The child's parents should read the RSS pamphlet from MAGIC (MAGIC will mail one right away). If they want to become members, they can order H-43, which is Dr. Harbison's letter to parents. But they should contact their nearest Children's Hospital and make an appt with a geneticist. I strongly recommend that it be a Children's Hospital. MAGIC can assist with some recommendations depending on location. 1-800-3MAGIC3. > > hi all, > today when i took jacob to school a teacher there saw our magic > walkaton stuff and think her granddaughter has RSS she is 4 and is > 34 in. tall and her weight is 23lb she just came off a g-tube and > has seen a lot of doctors and when she goes they alway ask her if > she has a syndrome. she went to thew magic site right away and was > asking what would i tell her to do . i told her about our group but > is ther andthing you all can think i should tell her. > cara mom to jacob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 hey cara!! you may want to tell her to mention the rss possiblity to her ped. and see if she can get an appt with an endo. jodie c. > > hi all, > today when i took jacob to school a teacher there saw our magic > walkaton stuff and think her granddaughter has RSS she is 4 and is > 34 in. tall and her weight is 23lb she just came off a g-tube and > has seen a lot of doctors and when she goes they alway ask her if > she has a syndrome. she went to thew magic site right away and was > asking what would i tell her to do . i told her about our group but > is ther andthing you all can think i should tell her. > cara mom to jacob Quote Link to comment Share on other sites More sharing options...
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