Re: Small 6 year old, any ideas?

[Guest guest]

,

My non-RSS son just turned 4 a few weeks ago, and he is also small. In fact,

some RSS

kids on this list his age are bigger than him! He is 30lbs. and 38 " . He

doesn't eat well at

all (very picky eater & eats limited quantities) - something I wasn't prepared

for after

having a kid with a g-tube! Can you believe I can go into Mc's, order a

happy meal

for both kids to split (almost 11 years old & 4 years old) and they can't even

finish half of

that together? I always think restaurants think I am cheap - lol! Or

situations sound very

similar. I also have 3 kids ( & used to be skinny - lol) and have a skinny

husband the same

size as your husband! My son also has vocal chord nodules that they think was

due to

silent reflux, and I am finally taking him to a GI doctor to see about this next

week. The

ENT diagnosed the vocal nodules. I don't really have any ideas for you, but I

can definitely

sypathize with you!

Kim C.

[Guest guest]

Kim,

Can you tell me more about this silent reflux causing the nodules?

He says his belly hurts a lot... I wonder if there could be a

connection. His ENT said it was caused by over use of voice but this

doc wasnt' really someone I liked, He seemed conceited and wouldn't

talk much to me so I don't know much besides what the pamphlet says.

WE just went in monday and they told him they'd take a tube and put

it in his nose and down his throat to look. They gave him some

nosespray to numb a little and took this huge black tube out, told

him it would go in his nose, and got ready to brace him down! He was

so scared. I told them I'd hold him and I put him in my lap and held

and talked to him but they were kind of gruff. I know with kids you

need to get to the point, but they did not do it well. It was a

childrens hospital! Then I was told it was nodules and they gave me

a pamphlet and said it was overuse of voice. They never asked about

anything else. (Skye has a low, chronically hoarse voice)

I too only buy one happy meal for both my boys. I have a two year

old 27 lbs loves to eat and he eats most and Skye only eats 1/2 or

maybe if he's hungry, one chicken nugget and a few fries. I refuse

to buy 2 meals anywhere because it will not be eaten!

It's nice to know of other small kids coming from tall Dads! I don't

hear about it much except for mine!

> ,

>

> My non-RSS son just turned 4 a few weeks ago, and he is also

small. In fact, some RSS

> kids on this list his age are bigger than him! He is 30lbs. and

38 " . He doesn't eat well at

> all (very picky eater & eats limited quantities) - something I

wasn't prepared for after

> having a kid with a g-tube! Can you believe I can go into

Mc's, order a happy meal

> for both kids to split (almost 11 years old & 4 years old) and they

can't even finish half of

> that together? I always think restaurants think I am cheap - lol!

Or situations sound very

> similar. I also have 3 kids ( & used to be skinny - lol) and have a

skinny husband the same

> size as your husband! My son also has vocal chord nodules that

they think was due to

> silent reflux, and I am finally taking him to a GI doctor to see

about this next week. The

> ENT diagnosed the vocal nodules. I don't really have any ideas for

you, but I can definitely

> sypathize with you!

>

> Kim C.

[Guest guest]

What you have just described is a very stereotypical child with

growth hormone deficiency. Yes, indeed, he could also have

constitutional growth delay, but that can be resolved simply with a

bone age x-ray. From what I recall, CGD kids have delayed bone ages

(meaning they will grow a whole big amount later in life --

remember, RSS/SGA parents, this does NOT work for our kids). But

GHD kids are usually born at normal weight and height, and then

sometime after 6 months of age, the height starts falling off, and

weight too, but often the weight is still pretty proportionate for

the height (if you charted it weight for height). So it's not like

they have lack of appetite, weight problems that SGA kids. They

eat, just aren't growing.

You need a good pediatric endocrinologist. See what he or she says,

but guessing start with a bone age xray to determine delay or not.

If no delay (and even if there was a delay, he is awfully short for

a 6yr old based on your husband and your height) he probably will

recommend getting a STIM test.

Make sure to check into MAGIC's GHD division, and their MAGIC yahoo

listserve. Those families can give you TONS of proper information.

> Hi everyone. I've been posting about my daugher Autumn (8 mos)and

> now I have to post about my oldest boy Skye. He just had his 6

year

> old (and one month) checkup and weighed in at 35 lbs and 41 3/4

> inches tall. He is just under the 3rd percentile for length and

> height. He was a normal sized baby, 7 11 at birth 19 1/2 inches

(was

> Autumn's current size and weight at 2 months)and stayed kind of

> chubby for a while, then he started to drop off slowly after 9

months

> to just under the 3rd percentile by 18 months. He has steadily

> remained there for 4 1/2 years. Now because of everything going

on

> with my 8 month old daughter, his ped wants to make sure

everything

> is ok with him and is sending him to an endo. I know it's not RSS

> but his weight and height just dropped off as he got older and I

> can't get it any higher and I just want to know if anyone has any

> ideas! He does not like to eat, I call him an eat to live child

> unlike my other son who lives to eat(he has no weight or height

> concerns). Now, I was a small child and so was my brother, very

> similar to my son, but my husband is 6 foot 1 and that's why the

doc

> is concerned. I am 5 3 1/2. My husband is very skinny and I used

to

> be (but I had 3 kids!) so I don't know what to think. Again he

grows

> every year consistently. Skye does have speech difficulty. He

did

> not start talking with the exception of mama and dada until 3

years

> and 4 months. He still has speech and voice (vocal chord nodules)

> problems and is in therapy for it in school. He is in

kindergarten

> now and is now realizing that there are lots of kids out there

taller

> than him. It hadn't affected him much before, we don't talk about

it

> in front of him, but questions are coming up. Anyways, I know I

am

> rambling, and I know this is an RSS support, but does anyone have

any

> ideas?

>

> I know it could be short stature or constitutional growth delay,

and

> it might just be that, but I don't know. He has an appt next

week.

> It's like that saying, when it rains, it pours. I have never had

so

> many doctor appts take my kids to and the tests are endless!

> Actually, I've never dealt with any of this stuff until a month

ago.

> Also, he is a horrible eater. He was allergic to milk (hives)

until

> 4 years and if it wasn't for peanut butter he wouldn't exist. He

> hates pediasure no matter how much choc syrup I add, and I can't

get

> him to eat much at all! He can drink milk now and have dairy so

it's

> helped a tiny bit. It's been an ongoing problem for years with the

> exception of babyhood. Grandparents, Aunts, Uncles, no one can

get

> him to eat well. He just doesn't like to eat. I'm a little

envious,

> ha ha.

> Well, maybe I'll know something soon.

> Any thoughts on what is going on is appreciated. Growth Hormone?

>

> Also, does anyone else have the bent 5th finger? My daughter does

> but so do I, all my kids, my mom, my bro (5'6 " ) and his kids. I

know

> it's a trait of RSS and other things, but it seems to be a

birthright

> in our family. Is that common?

>

> Thanks for listening

>

>

>

> mom of Autumn 8 mos 12 lbs 12 oz!(she's gained, I can't beleive

it!)

> 24 inch poss RSS, Skye 6 years 41 3/4 inches 35 pounds

[Guest guest]

Thanks ! Also, could you ell me what a STIM test is?

I appreciate all the info!

> > Hi everyone. I've been posting about my daugher Autumn (8 mos)

and

> > now I have to post about my oldest boy Skye. He just had his 6

> year

> > old (and one month) checkup and weighed in at 35 lbs and 41 3/4

> > inches tall. He is just under the 3rd percentile for length and

> > height. He was a normal sized baby, 7 11 at birth 19 1/2 inches

> (was

> > Autumn's current size and weight at 2 months)and stayed kind of

> > chubby for a while, then he started to drop off slowly after 9

> months

> > to just under the 3rd percentile by 18 months. He has steadily

> > remained there for 4 1/2 years. Now because of everything going

> on

> > with my 8 month old daughter, his ped wants to make sure

> everything

> > is ok with him and is sending him to an endo. I know it's not

RSS

> > but his weight and height just dropped off as he got older and I

> > can't get it any higher and I just want to know if anyone has any

> > ideas! He does not like to eat, I call him an eat to live child

> > unlike my other son who lives to eat(he has no weight or height

> > concerns). Now, I was a small child and so was my brother, very

> > similar to my son, but my husband is 6 foot 1 and that's why the

> doc

> > is concerned. I am 5 3 1/2. My husband is very skinny and I used

> to

> > be (but I had 3 kids!) so I don't know what to think. Again he

> grows

> > every year consistently. Skye does have speech difficulty. He

> did

> > not start talking with the exception of mama and dada until 3

> years

> > and 4 months. He still has speech and voice (vocal chord nodules)

> > problems and is in therapy for it in school. He is in

> kindergarten

> > now and is now realizing that there are lots of kids out there

> taller

> > than him. It hadn't affected him much before, we don't talk

about

> it

> > in front of him, but questions are coming up. Anyways, I know I

> am

> > rambling, and I know this is an RSS support, but does anyone have

> any

> > ideas?

> >

> > I know it could be short stature or constitutional growth delay,

> and

> > it might just be that, but I don't know. He has an appt next

> week.

> > It's like that saying, when it rains, it pours. I have never had

> so

> > many doctor appts take my kids to and the tests are endless!

> > Actually, I've never dealt with any of this stuff until a month

> ago.

> > Also, he is a horrible eater. He was allergic to milk (hives)

> until

> > 4 years and if it wasn't for peanut butter he wouldn't exist. He

> > hates pediasure no matter how much choc syrup I add, and I can't

> get

> > him to eat much at all! He can drink milk now and have dairy so

> it's

> > helped a tiny bit. It's been an ongoing problem for years with

the

> > exception of babyhood. Grandparents, Aunts, Uncles, no one can

> get

> > him to eat well. He just doesn't like to eat. I'm a little

> envious,

> > ha ha.

> > Well, maybe I'll know something soon.

> > Any thoughts on what is going on is appreciated. Growth Hormone?

> >

> > Also, does anyone else have the bent 5th finger? My daughter

does

> > but so do I, all my kids, my mom, my bro (5'6 " ) and his kids. I

> know

> > it's a trait of RSS and other things, but it seems to be a

> birthright

> > in our family. Is that common?

> >

> > Thanks for listening

> >

> >

> >

> > mom of Autumn 8 mos 12 lbs 12 oz!(she's gained, I can't beleive

> it!)

> > 24 inch poss RSS, Skye 6 years 41 3/4 inches 35 pounds

[Guest guest]

-Hi i just wanted to chime in my RSS son S is almost 5 1/2

on the 8th, and he is 28 pounds and 38 inches he is so tiny to that

he can still wear 3 to 6 month bathing suit and a size 6 infant

shoe, almost into a seven!! Wooo HOOO,I found out that he is only

just now at his 5 yr checkup that he is 3rd percentile on the growth

charts, we have been on G H now for 6 months but no change yet, I am

hoping by his next appointment he will of grown!! Anyway I just

wanted to say he isn't the only one!! HUgs

-- In RSS-Support , " Kacey171 "

<capuano_k@p...> wrote:

> ,

>

> My non-RSS son just turned 4 a few weeks ago, and he is also

small. In fact, some RSS

> kids on this list his age are bigger than him! He is 30lbs. and

38 " . He doesn't eat well at

> all (very picky eater & eats limited quantities) - something I

wasn't prepared for after

> having a kid with a g-tube! Can you believe I can go into

Mc's, order a happy meal

> for both kids to split (almost 11 years old & 4 years old) and

they can't even finish half of

> that together? I always think restaurants think I am cheap -

lol! Or situations sound very

> similar. I also have 3 kids ( & used to be skinny - lol) and have

a skinny husband the same

> size as your husband! My son also has vocal chord nodules that

they think was due to

> silent reflux, and I am finally taking him to a GI doctor to see

about this next week. The

> ENT diagnosed the vocal nodules. I don't really have any ideas for

you, but I can definitely

> sypathize with you!

>

> Kim C.

[Guest guest]

also has a hoarse, raspy voice, and it is the reason I took him to the

ENT. The first

thing they asked me was whether or not he had reflux. I told them he had silent

reflux

when he was a baby and was on meds for this, but hadn't been on them for a long

time,

and I assumed we were done with the reflux. The reason I knew he had silent

reflux when

he was a baby is that I could hear the food coming up by him gulping, screaming,

and

looking very uncomfortable (arching back, grimacing, etc.) He had an upper GI

when he

was a baby & it confirmed the reflux. He never had any other type of testing &

never saw a

GI doctor. The ENT did the same scope on on 2 separate occasions &

diagnosed

him with vocal nodules. He told me he was pretty sure that they were from the

reflux and

there was a good chance he still had it. For whatever reason (maybe my

hardheadedness),

I didn't think he could possibly still have it as age 2, so I never pursued

anything else with

it. The ENT also said he overused his voice, so this didn't help matters. He

said that if he

was older, he would have recommended voice therapy, but he didn't feel this

would be

effective for him unless he was older (maybe school age). doesn't eat

well and

occasionally says his tummy hurts, so now I am at the point of considering the

reflux

diagnosis, especially because he now has a baby sister with horrible reflux (the

worst of all

3 of my kids who have had it). So, he has an appointment in a week and a half

with a GI

doctor. I have been talking about him though with the doctor while taking my

daughter

there, and his associate thinks he is a good candidate for a pH probe test, so

we may end

up going this route. An upper GI will many times not catch the reflux even if a

child has it.

It just so happens that all of my kids had significant enough reflux that it

showed in the

upper GI with flying colors. Both of my other kids have had a pH probe which

also showed

significant reflux. This is a tube inserted into the nose down to the espohagus

and is

worn for 24 hours. It is attached to a monitor in which records acidity in the

espophagus.

You also have to keep a diary of episodes to submit. I'll let you know more

after our

appointment!

Kim C.

> > ,

> >

> > My non-RSS son just turned 4 a few weeks ago, and he is also

> small. In fact, some RSS

> > kids on this list his age are bigger than him! He is 30lbs. and

> 38 " . He doesn't eat well at

> > all (very picky eater & eats limited quantities) - something I

> wasn't prepared for after

> > having a kid with a g-tube! Can you believe I can go into

> Mc's, order a happy meal

> > for both kids to split (almost 11 years old & 4 years old) and they

> can't even finish half of

> > that together? I always think restaurants think I am cheap - lol!

> Or situations sound very

> > similar. I also have 3 kids ( & used to be skinny - lol) and have a

> skinny husband the same

> > size as your husband! My son also has vocal chord nodules that

> they think was due to

> > silent reflux, and I am finally taking him to a GI doctor to see

> about this next week. The

> > ENT diagnosed the vocal nodules. I don't really have any ideas for

> you, but I can definitely

> > sypathize with you!

> >

> > Kim C.

[Guest guest]

The STIM test is the stimulation blood test over several hours that

determines if a child is growth hormone deficient or not. You

really should connect with the GHD group at MAGIC because they will

be much better equipped with education -- they are awesome. You can

call tollfree 1-800-3MAGIC3 or join the listserve and post the

question. Good luck!

> > > Hi everyone. I've been posting about my daugher Autumn (8 mos)

> and

> > > now I have to post about my oldest boy Skye. He just had his

6

> > year

> > > old (and one month) checkup and weighed in at 35 lbs and 41

3/4

> > > inches tall. He is just under the 3rd percentile for length

and

> > > height. He was a normal sized baby, 7 11 at birth 19 1/2

inches

> > (was

> > > Autumn's current size and weight at 2 months)and stayed kind

of

> > > chubby for a while, then he started to drop off slowly after 9

> > months

> > > to just under the 3rd percentile by 18 months. He has

steadily

> > > remained there for 4 1/2 years. Now because of everything

going

> > on

> > > with my 8 month old daughter, his ped wants to make sure

> > everything

> > > is ok with him and is sending him to an endo. I know it's not

> RSS

> > > but his weight and height just dropped off as he got older and

I

> > > can't get it any higher and I just want to know if anyone has

any

> > > ideas! He does not like to eat, I call him an eat to live

child

> > > unlike my other son who lives to eat(he has no weight or

height

> > > concerns). Now, I was a small child and so was my brother,

very

> > > similar to my son, but my husband is 6 foot 1 and that's why

the

> > doc

> > > is concerned. I am 5 3 1/2. My husband is very skinny and I

used

> > to

> > > be (but I had 3 kids!) so I don't know what to think. Again he

> > grows

> > > every year consistently. Skye does have speech difficulty.

He

> > did

> > > not start talking with the exception of mama and dada until 3

> > years

> > > and 4 months. He still has speech and voice (vocal chord

nodules)

> > > problems and is in therapy for it in school. He is in

> > kindergarten

> > > now and is now realizing that there are lots of kids out there

> > taller

> > > than him. It hadn't affected him much before, we don't talk

> about

> > it

> > > in front of him, but questions are coming up. Anyways, I know

I

> > am

> > > rambling, and I know this is an RSS support, but does anyone

have

> > any

> > > ideas?

> > >

> > > I know it could be short stature or constitutional growth

delay,

> > and

> > > it might just be that, but I don't know. He has an appt next

> > week.

> > > It's like that saying, when it rains, it pours. I have never

had

> > so

> > > many doctor appts take my kids to and the tests are endless!

> > > Actually, I've never dealt with any of this stuff until a

month

> > ago.

> > > Also, he is a horrible eater. He was allergic to milk (hives)

> > until

> > > 4 years and if it wasn't for peanut butter he wouldn't exist.

He

> > > hates pediasure no matter how much choc syrup I add, and I

can't

> > get

> > > him to eat much at all! He can drink milk now and have dairy

so

> > it's

> > > helped a tiny bit. It's been an ongoing problem for years with

> the

> > > exception of babyhood. Grandparents, Aunts, Uncles, no one

can

> > get

> > > him to eat well. He just doesn't like to eat. I'm a little

> > envious,

> > > ha ha.

> > > Well, maybe I'll know something soon.

> > > Any thoughts on what is going on is appreciated. Growth

Hormone?

> > >

> > > Also, does anyone else have the bent 5th finger? My daughter

> does

> > > but so do I, all my kids, my mom, my bro (5'6 " ) and his kids.

I

> > know

> > > it's a trait of RSS and other things, but it seems to be a

> > birthright

> > > in our family. Is that common?

> > >

> > > Thanks for listening

> > >

> > >

> > >

> > > mom of Autumn 8 mos 12 lbs 12 oz!(she's gained, I can't

beleive

> > it!)

> > > 24 inch poss RSS, Skye 6 years 41 3/4 inches 35 pounds