Re: kindergarten eating

[Guest guest]

Pamela, same boat with , with regards to the Periactin. I

hate the " if this than this " rollercoaster.

Question, though. Does belle have a " snack bag " on her desk at

school? gets an average 400-600 calories per day just

through this snack bag -- and I no longer worry if she is eating her

lunch. (She wants to buy lunch like her friends). The RSS

diagnosis automatically qualifies her as Other Health Impaired, and

she should have no problem getting a 504 Plan at that point,

requiring the snacks in the classroom.

helps me pack her snacks each day, and then she gets to

snack on things she wants WHEN she wants. We found that she just

wasn't that hungry at the " time " the school said....

Frusion yogurt smoothies, expensive, but 270 calories in 10oz....

with a screw top lid so she can put the lid back on and drink 1/2

another day....

Write me if you want more info. I too am counting the days until we

can stop the Periactin. When we stopped for a year, 's

weight velocity fell WAY off. Since we struggle even WITH the

Periactin, quitting isn't an option until we stop the growth hormone.

> Hi,

> I thought I'd chime in here on the kindergarten eating dilemma.

> My daughter, belle, started kindergarten this fall and she too

> has lost about a pound. I've alerted her lunchtime teachers about

> her need to eat, they assure me they encourage her, and even

> allow her to take a portion of her lunch up to the play yard to

> finish while the other kids play. However, her boxes still come

> home mostly uneaten and boy do we pay for it later in the

> afternoon with her moodiness.

>

> She had been on periactin for about 1 1/2 years. It was

> successful in stimulating her appetite, and I feel also

> responsible for her first ever catch up growth. We decided to give

> her a drug vacation this summer, just to see what would happen.

> Well the appetite immediately slackened. But the overall change

> in her energy, personality, ability to focus, engage and

> communicate was so positive that we haven't wanted to dope

> her back up. She's a kid for whom periactin's side effects are

> pretty severe.

>

> But now here we are facing the reality that she is not able to eat

> what she needs to without being medicated. The medication

> makes her eat. It also makes her sleep, and for a very active

little

> girl, a good night sleep is heartily welcomed. I am sad, however.

> I have been so happy to have belle " back, " and am now I

> resigned to the fact that she needs periactin and will have to

> again be doped up. We will resume dosage tomorrow evening.

> Hopefully we will soon see some improvement in her

> kindergarten eating.

>

> Pamela

> mom to belle 6 years (last Sunday!) 43 inches 34 pounds